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International Observatory on End of Life Care

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  1. Journal article
  2. Published

    Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

    Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In: COPD. 15, 6, p. 600-611 12 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. Published

    The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

    Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

    Bunn, F., Lynch, J., Sharpe, R., Goodman, C., Walshe, C. E., Preston, N. J. & Froggatt, K. A., 6/12/2018, In: BMC Geriatrics. 18, 303, 15 p., 303.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    "We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

    Peacock, M., Turner, M. & Varey, S., 1/12/2018, In: Sociology. 52, 6, p. 1152-1168 17 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

    Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In: BMJ Open. 8, 11 p., 026531.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

    Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

    Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

    Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

    Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

    den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature

    Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  17. Published

    Wearable smartwatch technology to monitor symptoms in advanced illness

    Nwosu, A., Quinn, C., Samuels, J., Mason, S. & Payne, T. R., 1/06/2018, In: BMJ Supportive and Palliative Care. 2018, 8, 1 p., 237.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study

    Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review

    Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

    Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. Published

    Advanced heart failure: setting the research agenda

    Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, FD., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

    Research output: Contribution to Journal/Magazine › Journal article

  22. Published

    The views of adults with Huntington’s disease on assisted dying: a qualitative exploration

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

    Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., Baranska, I., & 5 othersGambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Effectiveness of advance care planning with family carers in dementia nursing homes: a paired cluster randomized controlled trial

    Brazil, K., Carter, G., Cardwell, C. R., Clarke, M., Hudson, P., Froggatt, K. A., McLaughlin, D., Passmore, P. & Kernohan, G., 1/03/2018, In: Palliative Medicine. 32, 3, p. 603-612 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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