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International Observatory on End of Life Care

  1. Published

    Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

    Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  2. Published

    Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

    Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, PACE., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Marie Curie Cancer Care specialist palliative care project (Caterham) phase 1 : final report.

    Payne, S., George, S., Davis, C., Sheldon, F., Jarrett, N. & Turner, P., 2000, Marie Curie Cancer Care.

    Research output: Working paper

  4. Published

    Mapping the determinants of health inequalities in social space: can Bourdieu help us?

    Gatrell, A. C., Popay, J. & Thomas, C., 09/2004, In: Health and Place. 10, 3, p. 245-257 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Mandatory communication skills training for cancer and palliative care staff: does one size fit all?

    Turner, M., Payne, S. & O'Brien, T., 12/2011, In: European Journal of Oncology Nursing. 15, 5, p. 398-403 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  6. Published

    Managing time: an interpretive phenomenological analysis of patients' and physiotherapists' : perceptions of adherance to therapeutic exercise for low back pain.

    Dean, S., Smith, J., Payne, S. & Weinman, J., 2005, In: Disability and Rehabilitation. 27, 11, p. 625-636 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study

    Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    Managers' perspectives on death and dying in care homes for older people.

    Froggatt, K. & Payne, S., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    Malignant pleural effusions: the patient experience

    Jones, R., Steer, H., Preston, N. & Perkins, P., 7/12/2023, In: BMJ Supportive and Palliative Care. 13, e2, p. e254-e255

    Research output: Contribution to Journal/MagazineLetter

  10. Published

    Malignant Effusions

    Preston, N. & Dolan, S., 2006, Nursing patients with cancer : principles and practice. Kearney, N. & Richardson, A. (eds.). Edinburgh: Churchill Livingstone, 861 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  11. Published

    Malignant Ascites.

    Preston, N., 2008, Cancer nursing : care in context (2nd ed.). Corner, J. & Bailey, C. (eds.). Oxford: Blackwell, 724 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  12. Published

    Malignant ascites.

    Preston, N., 2001, Cancer nursing : care in context. Corner, J. & Bailey, C. (eds.). Oxford: Blackwell, 576 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  13. Published

    Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases.

    Bingley, A. F., McDermott, E., Thomas, C., Payne, S., Seymour, J. E. & Clark, D., 04/2006, In: Palliative Medicine. 20, 3, p. 183-195 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Maintaining integrity in the face of death: a grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care

    Horne, G., Seymour, J. & Payne, S., 06/2012, In: International Journal of Nursing Studies. 49, 6, p. 718-726 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Maintaining and regaining psychological wellbeing in advanced cancer: a qualitative longitudinal study exploring patients' and carers' own coping strategies

    Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P. & Walshe, C., 06/2014, In: Palliative Medicine. 28, 6, p. 538 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  16. Published

    Low back pain : exploring the meaning of exercise management through interpretative phenomenological analysis (IPA).

    Payne, S., Dean, S. & Smith, J., 2006, Qualitative research for allied health professionals : challenging choices.. Finlay, L. & Ballinger, C. (eds.). Chichester: Whurr Publishers Limited, p. 139-155 17 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  17. Published

    Loss of weight and loss of appetite in advanced cancer : a problem for the patient, the carer or the health professional?

    Poole, K. A. & Froggatt, K., 09/2002, In: Palliative Medicine. 16, 6, p. 499-506 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Looking forwards to 2018 in Palliative Medicine

    Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  19. Published

    Longitudinal bioimpedance assessments to evaluate hydration in POEMS syndrome

    Nwosu, A., Morris, L., Mayland, C. R., Mason, S., Pettitt, A. & Ellershaw, J., 28/04/2016, In: BMJ Supportive and Palliative Care. 2016, 6, p. 369-372 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

    Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    Local geographies of health inequalities.

    Gatrell, A. C., Berridge, D., Bennett, S., Bostock, L., Thomas, C., Popay, J. & Williams, G., 2004, The geography of health inequalities in the developed world: views from Britain and North America. Boyle, P., Curtis, S., Graham, E. & Moore, E. (eds.). Aldershot: Ashgate Press, p. 177-197 21 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  22. Published

    Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.

    Gardiner, C., Gott, M., Small, N., Payne, S., Seamark, D., Barnes, S., Halpin, D. & Ruse, C., 12/2009, In: Palliative Medicine. 23, 8, p. 691-697 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Living with Advanced Chronic Obstructive Pulmonary Disease: A Qualitative Interview Study with Patients and Informal Carers

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 3/07/2020, In: COPD. 17, 4, p. 410-418 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Unpublished

    Living with advanced cancer: an exploration of continuity of care

    Hughes, S., 03/2010, (Unpublished) University of Manchester.

    Research output: ThesisDoctoral Thesis

  25. Published

    Living into old age with the consequences of breast cancer

    Fenlon, D., Frankland, J., Foster, C. L., Brooks, C., Coleman, P., Payne, S., Seymour, J., Simmonds, P., Stephens, R., Walsh, B. & Addington-hall, J. M., 1/06/2013, In: European Journal of Oncology Nursing. 17, 3, p. 311-316 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Living in the borderlands of disability

    Thomas, C., 2002, Understanding care, welfare and community : a reader. Bytheway, B., Bacigalipo, V., Bornat, J., Johnson, J. & Spurr, S. (eds.). London: Routledge, p. 11-12 2 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  27. Published

    Living and dying with dementia : dialogues about palliative care.

    Small, N., Froggatt, K. & Downs, M., 2007, Oxford: Oxford University Press. 248 p.

    Research output: Book/Report/ProceedingsBook

  28. Published

    Listening to the experts : a summary od 'user involvement in palliative care : a scoping study'

    Payne, S., Gott, M., Small, N. & Olivier, D., 05/2008, National Council for Palliative Care.

    Research output: Working paper

  29. Published

    Linking the ‘point of care’ with the ‘point of life’: experiences from the MyPal project

    Payne, S., Salifu, Y. & Begovic, D., 4/04/2023

    Research output: Exhibits, objects and web-based outputsBlogpeer-review

  30. Published

    Life changing research

    Payne, S., 19/03/2009, In: Nursing Standard. 23, 28, p. 19

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    Life and death in English nursing homes : sequestration or transition?

    Froggatt, K. A., 05/2001, In: Ageing and Society. 21, 3, p. 319-332 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published

    Life and death decisions : researching the way forward.

    Payne, S., 2005, In: European Journal of Palliative Care. p. 6-7 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Published

    Life after cancer in adolescence and young adulthood: the experience of survivorship

    Grinyer, A., 2009, London: Routledge. 194 p.

    Research output: Book/Report/ProceedingsBook

  34. Published

    Letter to the editor: Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review

    Ahmed, N., Payne, S. & Ahmedzai, S., 2009, In: Age and Ageing. 38, 6, p. 765-766 2 p.

    Research output: Contribution to Journal/MagazineLetterpeer-review

  35. Published

    Letter : specialist palliative care in dementia : patients with dementia are unable to access appropriate palliative care.

    Lloyd-Williams, M., Payne, S. & Dennis, M., 19/03/2005, In: BMJ. 330, 7492, p. 671-672 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R. H., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  37. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Length of stay and palliative care: Understanding long-term care facility residents in Europe

    Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.

    Research output: ThesisDoctoral Thesis

  39. Published

    Legalisation of assisted suicide: a safeguard to euthanasia?

    Gamondi, C., Borasio, G. D., Limoni, C., Preston, N. & Payne, S., 12/07/2014, In: Lancet. 384, 9938, p. 127

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Learning from challenges and opportunities in the recruitment of patients with advanced cancer within a hospice/palliative day care setting.

    Lynch, T. J., Lloyd-Williams, M., Payne, S., Reeve, J., Keogh, C., Barbarachild, Z. & Williams, C., 2009, In: European Journal of Palliative Care. 16, p. 73

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    Language barriers to defining concepts in medicine: the case of palliative sedation

    Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review

    Richardson, A., Addington-Hall, J., Amir, Z., Foster, C., Stark, D., Armes, J., Brearley, S. G., Hodges, L., Hook, J., Jarrett, N., Stamataki, Z., Scott, I., Walker, J., Ziegler, L. & Sharpe, M., 3/11/2011, In: British Journal of Cancer. 105, p. S82-S94 13 p.

    Research output: Contribution to Journal/MagazineLiterature reviewpeer-review

  44. Published

    Key aspects of support for family carers in last months of end of life care at home.

    Ewing, G., Grande, G. & Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 45

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    Key ‘narrative’ questions to pose in the analysis of cancer interview data.

    Thomas, C., 2007.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  46. Published

    Joint and individual interviewing in the context of cancer.

    Morris, S. M., 07/2001, In: Qualitative Health Research. 11, 4, p. 553-567 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    I've had a good life, what's left is a bonus: factor analysis of the Mental Adjustment to Cancer Scale in a palliative care population

    Goodwin, L., Price, A., Lee, W., Rayner, L., Moorey, S., Monroe, B., Sykes, N., Hansford, P., Higginson, IJ. & Hotopf, M., 1/03/2014, In: Palliative Medicine. 28, 3, p. 243-255 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis

    Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S. & Hewlett, S., 09/2008, In: Musculoskeletal Care. 6, 3, p. 155-167 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    It's not all doom and gloom: perceptions of medical students talking to hospice patients

    Gadoud, A., Adcock, Y., Jones, L., Koon, S. & Johnson, M., 16/09/2013, In: Journal of Palliative Medicine. 16, 9, p. 1125-1129 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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