International Observatory on End of Life Care

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Published
Collaborative relationships: supporting the researcher in palliative care and bereavement.
Rolls, L., Payne, S. & Relf, M., 04/2006, In: Palliative Medicine. 20, 3, p. 284 Abstract number: 204.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Collaboration on research into family carers moves a step forward
Hudson, P. & Payne, S., 2007, In: European Journal of Palliative Care. 14, 5, p. 218
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cochrane corner: interventions for the management of malignant pleural effusions
Clive, A., Bhatnagar, R., Preston, N. J., Maskell, N. & Jones, H. E., 31/10/2016, In: Thorax. 71, 10, p. 964-966 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical psychology and disability studies: bridging the disciplinary divide on mental health and disability
Simpson, J. & Thomas, C., 2015, In: Disability and Rehabilitation. 37, 14, p. 1299-1304 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical features of oral chemotherapy : results of a longitudinal prospective study of breast and colorectal cancer patients receiving capecitabine in the UK.
Brearley, S. G., Craven, O., Saunders, M., Swindell, R. & Molassiotis, A., 07/2010, In: European Journal of Cancer Care. 19, 4, p. 425-433 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review
Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical and psychological outcomes of patient education in rheumatoid arthritis
Kirwan, J. R., Hewlett, S., Cockshott, Z. & Barrett, J., 03/2005, In: Musculoskeletal Care. 3, 1, p. 1-16 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clear, simple, precise, meaningful: A quick guide to writing for publication
Walshe, C. E., 15/10/2018, In: Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Chronic and terminal illness : new perspectives on caring and carers.
Payne, S. & Ellis-Hill, C., 2001, Oxford: Oxford University Press. 170 p.
Research output: Book/Report/Proceedings › Book
Unpublished
Choosing the Place of Final Care. [Plenary speaker]
Thomas, C. & Morris, S. M., 2003, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Choice over care at the end-of-life : implications of the end of life initiative for older people in care homes.
Froggatt, K., 03/2005, In: Journal of Research in Nursing. 10, 2, p. 189-202 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Chinese Community Views: Promoting Cultural Competence in Palliative Care.
Payne, S. A., Chapman, A., Holloway, M., Seymour, J. & Chau, R., 06/2005, In: Journal of Palliative Care. 21, 2, p. 111-116 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Children and young people's experience of UK childhood bereavement services.
Rolls, L. & Payne, S., 08/2007, In: Mortality. 12, 3, p. 281-303 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Childhood bereavement services : issues in UK service provision.
Rolls, L. & Payne, S., 11/2004, In: Mortality. 9, 4, p. 300-328 29 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Childhood bereavement services : a survey of UK provision.
Rolls, L. & Payne, S., 07/2003, In: Palliative Medicine. 17, 5, p. 423-432 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Charitably funded hospices and the challenges associated with the COVID-19 pandemic: A mixed-methods study (CovPall)
Garner, I., Walshe, C., Dunleavy, L., Bradshaw, A., Preston, N., Fraser, L., Murtagh, F., Oluyase, A. O., Sleeman, K. E., Hocaoglu, M. B., Bajwah, S., Chambers, R., Maddocks, M. & Higginson, IJ., 10/10/2022, In: BMC Palliative Care. 21, 9 p., 176.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Characteristics and views of family carers in older people with heart failure.
Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N. A., 25/08/2006, In: International Journal of Palliative Nursing. 12, 8, p. 380-389 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Changing care practices through staff development : beyond education and training to practice development.
Froggatt, K., 2002, Palliative care in nursing and residential care homes. Hockley, J. & Clarke, D. (eds.). Buckingham: Open University Press, p. 151-164 14 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods
Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)
Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 31/03/2022, In: Journal of Palliative Medicine. 25, 3, p. 465-471 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Challenges of undertaking a systematic review to measure residents’ length of stay in care homes
Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Challenges in living alone near the end of life: an international comparison from the InSup-C project
Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Case study research methods in end of life care : reflections on three studies.
Payne, S., Field, D., Rolls, L., Hawker, S. & Kerr, C., 05/2007, In: Journal of Advanced Nursing. 58, 3, p. 236-245 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?
Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients
Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life
Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Caring for the carers.
Payne, S., 31/10/2010, Key concepts in palliative care. Baldwin, M. & Woodhouse, J. (eds.). London: Sage, 256 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Caring for a young adult with cancer: The impact on mothers' health.
Grinyer, A., 07/2006, In: Health and Social Care in the Community. 14, 4, p. 311-318 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences
Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Carers of the terminally ill and employment issues : a comprehensive literature review : final report.
Smith, P., Payne, S. & Ramcharan, P., 01/2006, Help the Hospices.
Research output: Working paper
Published
Carers and caregivers.
Payne, S., 2004, Death, dying and social differences. Oliviere, D. & Monroe, B. (eds.). Oxford: Oxford University Press, p. 181-198 18 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study
Nwosu, A., 13/10/2022, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Care or custody? an evaluation of palliative care in prisons in North West England
Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Care homes and long-term care for people with dementia.
Froggatt, K. & Parker, D., 2010, Supportive care for the person with dementia. Hughes, J. C., Lloyd-Williams, M. & Sachs, G. (eds.). Oxford: Oxford University Press, 313 p. (Supportive care series).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Care home life and identity: A qualitative case study
Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Care for people in prison
Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
Care and Dependency – Contested Disciplinary Terrain. [Invited speaker]
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals
Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cancer patients' main carers: companions through cancer.
Thomas, C. & Morris, S. M., 09/2000, Proceedings of the 30th annual conference of the BSA medical sociology group. York
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Cancer narratives and methodological uncertainties
Thomas, C., 2008, In: Qualitative Research. 8, 3, p. 423-433 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cancer in young adults: through parents’ eyes.
Grinyer, A., 2002, Buckingham: Open University Press. 194 p.
Research output: Book/Report/Proceedings › Book
Published
Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.
Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.
Research output: Working paper
Published
Cancer experiences research collaborative annual progress report, year 1 : May 2006-April 2007.
Addington-Hall, J. & Payne, S., 07/2007, London: NCRI.
Research output: Working paper
Published
Cancer experiences in metaphors: A scoping review in 4D PICTURE Project
Liu, Y., Payne, S., Rayson, P., Lal, D., Korfage, I., Rietjens, J. & Semino, E., 9/05/2024, In: Palliative Medicine. 38, Suppl. 2024 EAPC WR Congress, A05.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Cancer Experiences Collaborative: better research, by better researchers
Payne, S., 12/2011, In: Palliative Medicine. 25, 8, p. 739-740 2 p.
Research output: Contribution to Journal/Magazine › Editorial
E-pub ahead of print
Cancer experience in metaphors: patients, carers, professionals, students: A scoping review
Liu, Y., Semino, E., Rietjens, J. & Payne, S., 14/05/2024, (E-pub ahead of print) In: BMJ Supportive & Palliative Care.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Unpublished
Cancer and seeking normality: a longitudinal, qualitative study to explore how patients with advanced cancer and their carers cope and maintain psychological wellbeing
Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P., Kernaghan, S. & Walshe, C., 2013, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Cancer and faith: does it make a difference among cancer patients and their informal carers?
Soothill, K. L., Morris, S., Harman, J., Thomas, C., Francis, B. J. & McIllmurray, M. B., 09/2002, In: Scandinavian Journal of Caring Sciences. 16, 3, p. 256-263 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Can multi-disciplinary guidelines improve the palliation of symptoms in the terminal hase of dementia?
Lloyd-Williams, M. & Payne, S., 2002, In: International Journal of Palliative Nursing. 8, 8, p. 370-375 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Busyness' and the preclusion of quality palliative district nursing care
Nagington, M., Luker, K. & Walshe, C., 12/2013, In: Nursing Ethics. 20, 8, p. 893-903 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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