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International Observatory on End of Life Care

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  1. Meeting abstract
  2. Published

    A randomised controlled trial of a symptom-orientated home care nursing programme in patients with colorectal and breast cancer receiving oral chemotherapy

    Molassiotis, A., Brearley, S., Saunders, M., Craven, O., Wardley, A., Farrell, C., Todd, C. & Luker, K., 09/2009, In: EJC Supplements. 7, 2, p. 69-70 2 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  3. Published

    Gastro-intestinal cancer patients: how they perceive and cope with disease and treatment-related symptoms over a 12-month period

    Brearley, S. G., Craven, O., Wilson, B., Brunton, L. & Molassiotis, A., 09/2009, In: EJC Supplements. 7, 2, p. 234-234 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  4. Published

    Use of UK voluntary sector cancer support services

    Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 2009, In: European Journal of Palliative Care. 16, p. 99-99 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  5. Editorial
  6. Forthcoming

    Writing for the world: Enhancing engagement and connection with an international audience

    Walshe, C., Beernart, K., Chong, P. H., Lowe, S., Pereira, S. M. & Yardley, S., 20/11/2023, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to Journal/Magazine › Editorial

  7. Published

    Telehealth requires improved evidence to achieve its full potential in palliative care

    Nwosu, A., 30/06/2023, In: Palliative Medicine. 37, 7, p. 896-897 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  8. Published

    Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project

    Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  9. Published

    Transfer and transitioning between palliative care settings

    Salifu, Y. & Bayou, J., 28/10/2022, In: Annals of Palliative Medicine. 11, 10, p. 3035-3039 5 p.

    Research output: Contribution to Journal/Magazine › Editorial

  10. Published

    MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

    Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  11. Published

    International practice in relation to hastened death and assisted dying

    Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  12. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  13. Published

    Perspectives on COVID-19 and palliative care research

    Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  14. Published

    Digitisation and the Patient-Professional Relationship in Palliative Care

    Payne, S., Tanner, M. & Hughes, S., 30/04/2020, In: Palliative Medicine. 34, 4, p. 441-443 3 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  15. E-pub ahead of print

    COVID-19: A personal perspective

    Walshe, C., 29/04/2020, (E-pub ahead of print) In: Palliative Medicine. 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  16. Published

    European Palliative Sedation Project

    Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  17. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  18. Published

    Clear, simple, precise, meaningful: A quick guide to writing for publication

    Walshe, C. E., 15/10/2018, In: Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  19. Published

    Looking forwards to 2018 in Palliative Medicine

    Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  20. Published

    Palliative care research: state of play and journal direction

    Walshe, C. E., 6/01/2017, In: Palliative Medicine. 31, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  21. Published

    Palliative Medicine journal: What have we done, where should we be going and why?

    Walshe, C., 09/2015, In: Palliative Medicine. 29, 8, p. 673-674 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  22. Published

    Palliative care research: has it come of age?

    Walshe, C., 12/2013, In: Palliative Medicine. 27, 10, p. 883-884 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  23. Published

    Quality indicators for palliative care: Debates and dilemmas

    Payne, S., Leget, C., Peruselli, C. & Radbruch, L., 25/06/2012, In: Palliative Medicine. 26, 5, p. 679-680 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  24. Published

    The need for new perspectives on evaluation of palliative care

    Grande, G. & Preston, N., 12/2011, In: Palliative Medicine. 25, 8, p. 737-738 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  25. Published

    Cancer Experiences Collaborative: better research, by better researchers

    Payne, S., 12/2011, In: Palliative Medicine. 25, 8, p. 739-740 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  26. Published

    Nursing and palliative care: better practices within the team.

    O'Connor, M. & Payne, S., 12/2010, In: Progress in Palliative Care. 18, 6, p. 328-329 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  27. Literature review
  28. Published

    Vetting of medical imaging referrals: A scoping review of the radiographers’ role

    CLARKE, J., Akudjedu, T. & Salifu, Y., 31/07/2023, In: Radiography. 29, 4, p. 767-776 10 p.

    Research output: Contribution to Journal/Magazine › Literature review › peer-review

  29. Published

    Examining the profound effects of COVID19 on mental health: A comprehensive systematic review on anxiety and depression

    Salifu, Y., Maurer, P., Oprina, E., Alloh, F., Bardi, J. N. & Shivji, N., 1/06/2023, In: Psychreg Journal of Psychology. 7, 2, p. 45-81 37 p.

    Research output: Contribution to Journal/Magazine › Literature review › peer-review

  30. Published

    Patient-reported outcome measures for use in gynaecological oncology: a systematic review

    Preston, N. J., Wilson, N., Wood, N. J., Brine, J., Ferreira Arcuri, J. & Brearley, S. G., 04/2015, In: BJOG: An International Journal of Obstetrics and Gynaecology. 122, 5, p. 615-622 8 p.

    Research output: Contribution to Journal/Magazine › Literature review › peer-review

  31. Published

    Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review

    Richardson, A., Addington-Hall, J., Amir, Z., Foster, C., Stark, D., Armes, J., Brearley, S. G., Hodges, L., Hook, J., Jarrett, N., Stamataki, Z., Scott, I., Walker, J., Ziegler, L. & Sharpe, M., 3/11/2011, In: British Journal of Cancer. 105, p. S82-S94 13 p.

    Research output: Contribution to Journal/Magazine › Literature review › peer-review

  32. Comment/debate
  33. Published

    Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach

    Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.

    Research output: Contribution to Journal/Magazine › Comment/debate

  34. Letter
  35. Published

    Malignant pleural effusions: the patient experience

    Jones, R., Steer, H., Preston, N. & Perkins, P., 7/12/2023, In: BMJ Supportive and Palliative Care. 13, e2, p. e254-e255

    Research output: Contribution to Journal/Magazine › Letter

  36. E-pub ahead of print

    Emergency Palliative Care Planning and Support in a COVID-19 Pandemic

    Chidiac, C., Feuer, D., Naismith, J., Flatley, M. & Preston, N., 20/04/2020, (E-pub ahead of print) In: Journal of Palliative Medicine.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  37. Published

    Development of a hospice research culture through staff development, education and collaboration

    Stanley, S., McDougall, A., Chapman, L. & Nwosu, A., 16/04/2019, In: BMJ Supportive and Palliative Care. 9, 3, p. 359-360 2 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  38. Published

    Big Data analysis to improve care for people living with serious illness: The potential to use new emerging technology in palliative care

    Nwosu, A., Collins, B. & Mason, S., 14/08/2017, In: Palliative Medicine. 32, 1, p. 164-166 3 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  39. Published

    Unaddressed biases in reported prevalence of continuous deep sedation until death

    Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  40. Published

    Response : What tools are available to identify patients with palliative care needs in primary care: A systematic literature review and survey of European practice?

    Gadoud, A. C. & Johnson, M. J., 06/2014, In: BMJ Supportive and Palliative Care. 4, 2, p. 130 1 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  41. Published

    Patients want to be involved in end-of-life care research

    Nwosu, A. C., Mayland, C. R., Mason, S., Varro, A. & Ellershaw, J. E., 1/07/2013, In: BMJ Supportive and Palliative Care. 3, 4, 1 p., 457.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  42. Published

    Access to opioid medication in Europe - Letter to the Editor

    Radbruch, L., Juenger, S., Mantel-Teeuwisee, A., Gilson, A., Cleary, J., Payne, S. & Scholten, W., 06/2012, In: Journal of Pain and Palliative Care Pharmacotherapy. 26, 2, p. 200-201 2 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  43. Published

    Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with Heart Failure and Chronic Obstructive Pulmonary Disease (COPD)

    Small, N., Gardiner, C., Barnes, S., Gott, M., Payne, S., Seamark, D. & Halpin, D., 10/2010, In: Palliative Medicine. 24, 7, p. 740-741 2 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  44. Published

    On dying and human suffering

    Gadoud, A. C. & Rahman, A., 01/2010, In: Palliative Medicine. 24, 1, p. 99 1 p.

    Research output: Contribution to Journal/Magazine › Letter

  45. Published

    Letter to the editor: Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review

    Ahmed, N., Payne, S. & Ahmedzai, S., 2009, In: Age and Ageing. 38, 6, p. 765-766 2 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  46. Journal article
  47. Published

    Implementation of an advance care planning intervention in nursing homes: an international multiple case study

    Brazil, K., Walshe, C., Doherty, J., Harding, A., Preston, N., Bavelaar, L., Cornally, N., Di Giulio, P., Gonella, S., Hartigan, I., Henderson, C., Kaasalainen, S., Loucka, M., Sussman, T., Vlckova, K. & van der Steen, J. T., 1/06/2024, In: The Gerontologist. 64, 6, gnae007.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. Forthcoming

    Dignity Enhanced through Faith & Family Support in Palliative Care: A Qualitative Study

    Dakessian Sailian, S., Salifu, Y. & Preston, N., 30/05/2024, (Accepted/In press) In: BMC Palliative Care.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  49. Published

    Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

    Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 1/05/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e727-e735 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  50. Published

    Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 30/04/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e1478-e1487 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  51. Published

    Community perspectives on structural barriers to dying well at home in Canada

    Chan, W-S., Funk, L., Krawczyk, M., Cohen, S. R., Cherba, M., Dujela, C. & Stajduhar, K., 30/04/2024, In: Palliative and Supportive Care. 22, 2, p. 347-353 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  52. Published

    Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods

    Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  53. E-pub ahead of print

    Self-perceived preparedness of the new UK palliative medicine consultants: A survey of clinical and non-clinical preparedness after higher specialty training

    Hanchanale, S., Nwosu, A. & Boland, J. W., 23/02/2024, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  54. Published

    Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design

    Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., Prevost, A. T., Walshe, C. & Walwyn, R., 23/02/2024, In: PLoS ONE. 19, 2, e0297184.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  55. Published

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 21/02/2024, In: BMJ Supportive and Palliative Care. 14, 1, p. 47-51 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  56. Published

    How can technology be used to support communication in palliative care beyond the covid-19 pandemic: A mixed-methods national survey of palliative care healthcare professionals

    Stanley, S., Finucane, A., Thompson, A. & Nwosu, A., 14/02/2024, In: BMC Palliative Care. 23, 40.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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