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International Observatory on End of Life Care

  1. E-pub ahead of print

    Timing of advance care planning in patients with advanced cancer: analysis of ACTION data

    Zhu, T., Rietjens, J. A., van Delden, J. J. M., Deliens, L., van der Heide, A., Johnsen, A. T., Ingravallo, F., Lunder, U., Preston, N. J., Seymour, J. & Korfage, I. J., 31/07/2025, In: Patient Education and Counseling. 136, 108761.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  2. Published

    ‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study

    Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Medico-legal litigation of UK physiotherapists in relation to cauda equina syndrome: a multimethods study

    Yeowell, G., Hooley, R., Greenhalgh, S., Willis, E. & Selfe, J., 12/07/2022, In: BMJ Open. 12, e060023.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    The lived experiences of UK physiotherapists involved in Cauda Equina Syndrome litigation: A qualitative study

    Yeowell, G., Leech, R., Greenhalgh, S., Willis, E. & Selfe, J., 14/09/2023, In: PLoS One. 18, 9, e0290882.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  6. Published

    Palliative care policy development in Central and Eastern Europe and Central Asia: an Open Society Institute initiative

    Wright, M., Clark, J., Greenwood, A., Callaway, M. & Clark, D., 04/2004, In: Progress in Palliative Care. 12, 2, p. 71-75 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Autism Spectrum Social Stories In Schools Trial (ASSSIST): study protocol for a feasibility randomised controlled trial analysing clinical and cost-effectiveness of Social Stories in mainstream schools

    Wright, B., Marshall, D., Collingridge Moore, D., Ainsworth, H., Hackney, L., Adamson, J., Ali, S., Allgar, V., Cook, L., Dyson, L., Littlewood, E., Hargate, R., McLaren, A., McMillan, D., Trépel, D., Whitehead, J. & Williams, C., 9/07/2014, In: BMJ Open. 4, 7, 7 p., e005952.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    What research evidence is there for the use of art therapy in the management of symptoms in adults with cancer? : a systematic review.

    Wood, M. J. M., Molassiotis, A. & Payne, S., 02/2011, In: Psycho-Oncology. 20, 2, p. 135-145 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    Going beyond words: Benefits and challenges of visual research methods for qualitative research in palliative care

    Wood, M., Nwosu, A. & Walshe, C., 31/01/2023, In: BMJ Supportive and Palliative Care. 13, Suppl. 1, 1 p., 27.

    Research output: Contribution to Journal/MagazineMeeting abstract

  10. Published
  11. Published

    A quantitative investigation into women's experiences after a miscarriage : implications for the primary healthcare team.

    Wong, M. K., Crawford, T., Gask, L. & Grinyer, A., 09/2003, In: British Journal of General Practice. 53, 494, p. 697-702 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    A qualitative investigation into women's experiences after a miscarriage: implications for the primary healthcare team

    Wong, M. K. Y., Crawford, T. J., Gask, L. & Grinyer, A., 09/2003, In: British Journal of General Practice. 53, 494, p. 697-702 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    The rapidly changing location of death in Canada, 1994-2004.

    Wilson, D., Truman, C. D., Thomas, R., Faisinger, R., Kovacs-Burns, K., Froggatt, K. & Justice, C., 05/2009, In: Social Science and Medicine. 68, 10, p. 1752-1758 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    A review of the literature on hospice or palliative day care.

    Wilson, D. M., Kinch, J., Justice, C., Thomas, R., Shepherd, D. & Froggatt, K., 2005, In: European Journal of Palliative Care. 12, 5, p. 244-257 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes

    Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Anticipatory prescribing in end-of-life care

    Wilson, E., Seymour, J., Morbey, H., Payne, S., Brown, J. & Seale, C., 29/10/2014, Nursing Times, 110, 44, p. 16-17 2 p.

    Research output: Contribution to specialist publicationArticle

  17. Published

    Thoracic Epidural analgesia versus Rectus Sheath Catheters for open midline incisions in major abdominal surgery within an enhanced recovery programme (TERSC): study protocol for a randomised controlled trial

    Wilkinson, K. M., Krige, A., Brearley, S. G., Lane, S., Scott, M., Gordon, A. C. & Carlson, G. L., 21/10/2014, In: Trials. 15, 1, 12 p., 400.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Referrals for bereavement counselling in primary care : a qualitative study.

    Wiles, R. A., Jarrett, N., Payne, S. & Field, D., 09/2002, In: Patient Education and Counseling. 48, 1, p. 79-85 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Patients expectations of recovery following a stroke : a qualitative study.

    Wiles, R. A., Ashburn, A., Payne, S. & Murphy, C., 1/11/2002, In: Disability and Rehabilitation. 24, 16, p. 841-850 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Discharge from physiotherapy following stroke : the management of disappointment.

    Wiles, R. A., Ashburn, A., Payne, S. & Murphy, C., 09/2004, In: Social Science and Medicine. 59, 6, p. 1263-1273 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    A study of the information giving process between physiotherapists and patients in relation to recovery following stroke : final report.

    Wiles, R., Ashburn, A., Payne, S., Murphy, C. & Campbell, F., 2000, NHS Executive South East.

    Research output: Working paper

  22. Published

    End of life care.

    Wilcock, J., Froggatt, K. & Goodman, C., 2008, Excellence in dementia care : principles and practices. Downs, M. & Bowers, B. (eds.). Maidenhead: McGraw Hill, p. 359-378 20 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  23. Published

    Teamworking in nursing homes.

    Wicke, D., Coppin, R. & Payne, S., 01/2004, In: Journal of Advanced Nursing. 45, 2, p. 197-204 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, P. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    International palliative care journal club on twitter: experience so far

    Whitburn, T., Walshe, C. & Sleeman, K. E., 03/2015, In: BMJ Supportive and Palliative Care. 5, 1, p. 120 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  26. Published

    Developing a process to support the wellbeing of children facing the death of a parent

    Werner, K., Mayne-Semple, D., Lynch, J. & Nwosu, A., 13/10/2022.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  27. Published

    Working at the coalface: using action research to study ‘integrative medicine’ in the NHS

    Welch, P., Thomas, C. & Bingley, A., 02/2013, In: European Journal of Integrative Medicine. 5, 1, p. 75-82 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    Routledge handbook of disability studies

    Watson, N. (Editor), Roulstone, A. & Thomas, C. (Editor), 2012, New York: Routledge. 452 p. (Routledge handbooks)

    Research output: Book/Report/ProceedingsBook

  29. Published

    District nurses, palliative care and relationships with patients : a realist review.

    Walshe, C., Payne, S. & Lurker, K., 2009, In: European Journal of Palliative Care. 16, p. 175-175 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    Palliative care research: has it come of age?

    Walshe, C., 12/2013, In: Palliative Medicine. 27, 10, p. 883-884 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  31. Published

    60 seconds with Catherine Walshe

    Walshe, C., 24/04/2014, In: Nursing Times. 110, 9, p. 28

    Research output: Contribution to Journal/MagazineJournal article

  32. Published

    Symptom management in primary care: an ethnographic study of the community nursing role

    Walshe, C., Payne, S. & Luker, K., 2012, In: Palliative Medicine. 26, 4, p. 575 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  33. Published

    Observing district nurses roles in palliative care: an understanding of aims and actions

    Walshe, C., Payne, S. & Luker, K., 2012, In: BMJ Supportive and Palliative Care. 2, Supplement 1, p. A2-A3 2 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  34. Published

    Palliative Medicine journal: What have we done, where should we be going and why?

    Walshe, C., 09/2015, In: Palliative Medicine. 29, 8, p. 673-674 2 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  35. Published
  36. Published

    Who accesses befriending services near the end of life? baseline results from a wait-list controlled trial (ELSA) of a volunteer befriending service in the last year of life

    Walshe, C. E., Payne, S. A., Preston, N. J., Perez Algorta, G. D., Dodd, S. R., Ockenden, N. & Hill, M., 06/2016, In: Palliative Medicine. 30, 6, 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  37. Published

    Working with non-clinical staff to deliver research: lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service towards the end of life

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Perez Algorta, G. D. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  38. Published

    ELSA: a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action services on end of life experience

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

    Research output: Contribution to Journal/MagazineMeeting abstract

  39. Published
  40. Published

    Palliative care research: state of play and journal direction

    Walshe, C. E., 6/01/2017, In: Palliative Medicine. 31, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  41. Published

    How effective are volunteers at supporting people in their last year of life? a pragmatic randomised wait-list trial in palliative care (ELSA)

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 9/12/2016, In: BMC Medicine. 14, 12 p., 203.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    Coping well with advanced cancer: a serial qualitative interview study with patients and family carers

    Walshe, C. E., Roberts, D., Appleton, L., Calman, L., Large, P., Lloyd-Williams, M. & Grande, G., 20/01/2017, In: PLoS ONE. 12, 1, 25 p., e0169071.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Looking forwards to 2018 in Palliative Medicine

    Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  44. Published

    Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published
  46. Published
  47. Published

    Palliative Care Nursing: Principles and Evidence for Practice

    Walshe, C. E., Preston, N. J. & Johnston, B., 31/05/2018, 3rd ed. McGraw-Hill / Open University Press. 544 p.

    Research output: Book/Report/ProceedingsBook

  48. Published

    Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

    Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Mixed Method Research in Palliative Care

    Walshe, C. E., 6/06/2018, Textbook of Palliative Care. MacLeod, R. D. & van den Block, L. (eds.). Cham: Springer, 19 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNEntry for encyclopedia/dictionary

  50. Published

    Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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