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International Observatory on End of Life Care

  1. 2022
  2. Published

    Implementing and evaluating online advance care planning training in UK nursing homes during COVID-19: findings from the Necessary Discussions multi-site case study project

    Cousins, E., Preston, N., Doherty, J., Varey, S., Harding, A., Adrienne, M., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 13/05/2022, In: BMC Geriatrics. 22, 419.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

    Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 30/04/2022, In: Patient Education and Counseling. 105, 4, p. 965-973 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

    Drury, A., Payne, S. & Brady, A-M., 30/04/2022, In: Quality of Life Research. 31, 4, p. 1117-1134 18 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Forthcoming

    The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis

    Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 13/04/2022, (Accepted/In press) In: Journal of Health Services Research and Policy.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study

    Payne, S., Harding, A., Williams, T., Ling, J. & Ostgathe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 680-697 18 p.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis

    Coleman, H., Sanderson-Thomas, A. & Walshe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 671-679 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)

    Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 31/03/2022, In: Journal of Palliative Medicine. 25, 3, p. 465-471 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

    Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 21/03/2022, In: JMIR Aging. 5, 1, 15 p., e32075.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

    Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.

    Research output: Contribution to journalReview articlepeer-review

  11. E-pub ahead of print

    Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

    Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. J. & Walshe, C., 8/02/2022, (E-pub ahead of print) In: Journal of the Royal Society of Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  12. E-pub ahead of print

    The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 4/02/2022, (E-pub ahead of print) In: Chronic Illness. 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Published

    Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique

    Hussain, J. A., White, I. R., Johnson, M. J., Byrne, A., Preston, N. J., Haines, A., Seddon, K. & Peters, T. J., 17/01/2022, In: Palliative Medicine. 36, 1, p. 59-70 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  14. Published

    The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

    Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

    Research output: Contribution to journalJournal articlepeer-review

  15. 2021
  16. Published

    Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia

    Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    Exploring the experiences of living with Lewy body dementia: An integrative review

    Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. E-pub ahead of print

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. EM., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. E-pub ahead of print
  20. Published

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1933-1940 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

    Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  23. Forthcoming

    Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)

    Dunleavy, L., Preston, N. & Walshe, C., 17/11/2021, (Accepted/In press) In: Journal of Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

    Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to journalJournal articlepeer-review

  26. E-pub ahead of print

    “Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

    Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 29/10/2021, (E-pub ahead of print) In: Journal of Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

    Research output: Contribution to journalJournal articlepeer-review

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