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International Observatory on End of Life Care

  1. 2019
  2. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S. & 4 others, Bassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P. & 14 others, Segat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

    Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to journalJournal articlepeer-review

  13. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to journalJournal articlepeer-review

  14. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  16. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  17. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  20. E-pub ahead of print

    Advance directives in European long-term care facilities: A cross-sectional survey

    Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

    Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

    Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In: COPD. 15, 6, p. 600-611 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    Palliative care for older people

    Moore, D. C. & Payne, S., 1/01/2019, Encyclopedia of Biomedical Gerontology. Rattan, S. (ed.). Academic Press, p. 8-17 10 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  26. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to journalEditorial

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