International Observatory on End of Life Care

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2012
Published
MoreCare research methods guidance development: recommendations for using mixed methods to develop and evaluate complex interventions in palliative and end of life care
Farquhar, M., Preston, N., Short, V., Evans, C., Walshe, C., Grande, G., Benalia, H., Anscombe, E., Higginson, I. J. & Todd, C., 2012, In: Palliative Medicine. 26, 4, p. 419 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Observing district nurses roles in palliative care: an understanding of aims and actions
Walshe, C., Payne, S. & Luker, K., 2012, In: BMJ Supportive and Palliative Care. 2, Supplement 1, p. A2-A3 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Routledge handbook of disability studies
Watson, N. (ed.), Roulstone, A. & Thomas, C. (ed.), 2012, New York: Routledge. 452 p. (Routledge handbooks)
Research output: Book/Report/Proceedings › Book
Published
Strategies to increase participant recruitment to research studies by healthcare professionals (Protocol)
Preston, N., Farquhar, M., Walshe, C., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 2012, In: Cochrane Database of Systematic Reviews. 9
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Symptom management in primary care: an ethnographic study of the community nursing role
Walshe, C., Payne, S. & Luker, K., 2012, In: Palliative Medicine. 26, 4, p. 575 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
The changing terrain of disability studies
Roulstone, A., Thomas, C. & Watson, N., 2012, Routledge handbook of disability studies . Watson, N., Roulstone, A. & Thomas, C. (eds.). London: Routledge, p. 3-11 9 p. (Routledge handbooks).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The value of interviewing on multiple occasions or longitudinally
Grinyer, A. & Thomas, C., 2012, The Sage handbook of interview research: the complexity of the craft . Gubrium, J. F., Holstein, J. A., McKinney, K. & Marvasti, A. (eds.). 2nd ed. ed. Thousand Oaks: Sage, p. 219-230 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed)
Published
Theorising disability and chronic illness: where next for perspectives in medical sociology?
Thomas, C., 2012, In: Social Theory and Health. 10, 3, p. 209-228 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2011
Published
Cancer Experiences Collaborative: better research, by better researchers
Payne, S., 12/2011, In: Palliative Medicine. 25, 8, p. 739-740 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Mandatory communication skills training for cancer and palliative care staff: does one size fit all?
Turner, M., Payne, S. & O'Brien, T., 12/2011, In: European Journal of Oncology Nursing. 15, 5, p. 398-403 6 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The need for new perspectives on evaluation of palliative care
Grande, G. & Preston, N., 12/2011, In: Palliative Medicine. 25, 8, p. 737-738 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
End-of-life care and circumstances of death in patients dying as a result of cancer in Belgium and the Netherlands: a retrospective comparative study
Meeussen, K., Van den Block, L., Echteld, M. A., Boffin, N., Bilsen, J., Van Casteren, V., Abarshi, E., Donker, G., Onwuteaka-Philipsen, B. & Deliens, L., 10/11/2011, In: Journal of Clinical Oncology. 29, 32, p. 4327-4334 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review
Richardson, A., Addington-Hall, J., Amir, Z., Foster, C., Stark, D., Armes, J., Brearley, S. G., Hodges, L., Hook, J., Jarrett, N., Stamataki, Z., Scott, I., Walker, J., Ziegler, L. & Sharpe, M., 3/11/2011, In: British Journal of Cancer. 105, p. S82-S94 13 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Palliative care in non-malignant disease
Gadoud, A. C. & Johnson, M. J., 11/2011, In: Medicine (United Kingdom). 39, 11, p. 664-667 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care in non-malignant disease
Gadoud, A. C. & Johnson, M. J., 11/2011, In: Medicine (United Kingdom). 39, 11, p. 664-667 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners
Meeussen, K., Van den Block, L., Echteld, M., Bossuyt, N., Bilsen, J., Van Casteren, V., Abarshi, E., Donker, G., Onwuteaka-Philipsen, B. & Deliens, L., 10/2011, In: Journal of Pain and Symptom Management. 42, 4, p. 565-577 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study
Price, A., Lee, W., Goodwin, L., Rayner, L., Humphreys, R., Hansford, P., Sykes, N., Monroe, B., Higginson, I. & Hotopf, M., 1/09/2011, In: BMJ Supportive & Palliative Care. 1, 2, p. 140-148 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review
Slort, W., Schweitzer, B. P. M., Blankenstein, A. H., Abarshi, E. A., Riphagen, I. I., Echteld, M. A., Aaronson, N. K., van der Horst, H. & Deliens, L., 09/2011, In: Palliative Medicine. 25, 6, p. 613-629 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Recognizing advanced disease
Gadoud, A. & Johnson, M., 08/2011, In: British Journal of Hospital Medicine. 72, 8, p. 432-436 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The physical and practical problems experienced by cancer survivors: a rapid review and synthesis of the literature
Brearley, S. G., Stamataki, Z., Addington-Hall, J., Foster, C., Hodges, L., Jarrett, N., Richardson, A., Scott, I., Sharpe, M., Stark, D., Siller, C., Ziegler, L. & Amir, Z., 07/2011, In: European Journal of Oncology Nursing. 15, 3, p. 204-212 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What is the evidence for the use of mindfulness-based interventions in cancer care? a review
Shennan, C., Payne, S. & Fenlon, D., 07/2011, In: Psycho-Oncology. 20, 7, p. 681-697 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Benefits and challenges of collaborative research: lessons from supportive and palliative care
Payne, S., Seymour, J., Molassiotis, A., Froggatt, K., Grande, G., Lloyd-Williams, M., Foster, C., Wilson, R., Rolls, L., Todd, C. & Addington-Hall, J., 06/2011, In: BMJ Supportive and Palliative Care. 1, 1, p. 5-11 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Care or custody? an evaluation of palliative care in prisons in North West England
Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Talk about talking: 'Safe' and 'challenging' therapeutic talk in a UK Independent Cancer Support Service
Cockshott, Z., Payne, S. & Thomas, C., 05/2011, p. 151-152.
Research output: Contribution to conference - Without ISBN/ISSN › Abstract
Published
Review of Becker R. Fundamental Aspects of Palliative Care Nursing
Payne, S., 8/04/2011, In: Cancer Nursing Practice. 10, 3, p. 8 1 p.
Research output: Contribution to Journal/Magazine › Journal article
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 6/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 5/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Nursing life: 60 seconds with Sheila Payne
Payne, S., 04/2011, In: Nursing Times. 107, 13, p. 24 1 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Teenage and young adult palliative and end of life care service evaluation
Grinyer, A. & Barbarachild, Z., 04/2011, London: Teenage Cancer Trust.
Research output: Book/Report/Proceedings › Commissioned report
Published
Discussing end-of-life issues in the last months of life: a nationwide study among general practitioners
Abarshi, E., Echteld, M., Donker, G., Van den Block, L., Onwuteaka-Philipsen, B. & Deliens, L., 03/2011, In: Journal of Palliative Medicine. 14, 3, p. 323-330 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Do nursing homes for older people have the support they need to provide end-of-life care? a mixed methods enquiry in England
Seymour, J., Kumar, A. & Froggatt, K., 03/2011, In: Palliative Medicine. 25, 2, p. 125-138 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the influence of service user involvement on health and social care services for cancer.
Attree, P., Morris, S., Payne, S., Vaughan, S. & Hinder, S., 03/2011, In: Health Expectations. 14, 1, p. 48-58 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Interventions for improving palliative care for older people living in nursing care homes
Hall, S., Kolliakou, A., Petkova, H., Froggatt, K. & Higginson, I. J., 03/2011, In: Cochrane Database of Systematic Reviews. 3, CD007132.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care for people with chronic heart failure: when is it time?
Johnson, M. J. & Gadoud, A., 03/2011, In: Journal of Palliative Care. 27, 1, p. 37-42 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What research evidence is there for the use of art therapy in the management of symptoms in adults with cancer? : a systematic review.
Wood, M. J. M., Molassiotis, A. & Payne, S., 02/2011, In: Psycho-Oncology. 20, 2, p. 135-145 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A system lifeworld perspective on dying in long term care settings for older people: contested states in contested places
Froggatt, K., Hockley, J., Parker, D. & Brazil, K., 01/2011, In: Health and Place. 17, 1, p. 263-268 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative Care in Long-Term Care Settings for Older People: introducing an EAPC Task Force
Froggatt, K. A. & Reitinger, E., 01/2011, In: European Journal of Palliative Care. 18, 1, p. 26-28 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
When a hospice in not a haven: case report
Swarbrick, P., Grinyer, A. & Payne, S., 01/2011, In: Progress in Palliative Care. 19, 1, p. 22-24 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Death, dying, and social differences
Oliviere, D. (ed.), Monroe, B. (ed.) & Payne, S. (ed.), 2011, 2 ed. Oxford: Oxford University Press. 226 p.
Research output: Book/Report/Proceedings › Book
Published
Disability: prospects for social inclusion
Thomas, C., 2011, Fighting poverty, inequality and injustice: a manifesto inspired by Peter Townsend . Walker, A., Sinfield, A. & Walker, C. (eds.). Bristol: Policy Press, p. 223-240 18 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Disability and the death and dying agenda
Thomas, C., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). Oxford: Oxford University Press, p. 85-97 13 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Dying as a teenager or young person
Grinyer, A., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2nd ed. ed. Oxford: Oxford University Press, p. 118-125 8 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed)
Published
Introduction: social differences - the challenge for palliative care
Monroe, B., Oliviere, D. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2 ed. Oxford: Oxford University Press, p. 3-7 5 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Palliative care for prisoners
Turner, M. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2 ed. Oxford: Oxford University Press, p. 200-206 7 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Place and space: geographic perspectives on death and dying
Gatrell, A. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). Oxford: Oxford University Press, p. 32-44 13 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Psychological issues for the patient with breast cancer
Rogers, J. & Turner, M., 2011, Breast cancer nursing: care and management. Harmer, V. (ed.). Chichester : Blackwell Publishing Ltd, p. 309-328 20 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs
Abarshi, E. A., Echteld, M. A., Van den Block, L., Donker, G. A., Deliens, L. & Onwuteaka-Philipsen, B. D., 2011, In: British Journal of General Practice. 61, 587, p. e371-378 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The changing profile of the family caregivers of older people: a European perspective
Payne, S., 2011, Living with Ageing and Dying: Palliative and End of Life Care for Older People. Gott, M. & Ingleton, C. (eds.). Oxford: Oxford University Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The role of the health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project
Ingleton, C., Chatwin, J., Seymour, J. & Payne, S., 2011, In: Journal of Clinical Nursing. 20, 13-14, p. 2043-2052 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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