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International Observatory on End of Life Care

  1. Published

    Advanced cancer patients' prognostic preferences : a review.

    Innes, S. & Payne, S., 01/2009, In: Palliative Medicine. 23, 1, p. 29-39 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  2. Published

    Advanced heart failure: setting the research agenda

    Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, F., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

    Research output: Contribution to Journal/MagazineJournal article

  3. Published

    Advancing Palliative Care: Artificial Intelligence and Design Insights from the USA and the Netherlands

    Nwosu, A., 5/07/2024.

    Research output: Contribution to conference - Without ISBN/ISSN Otherpeer-review

  4. Published

    Age UK: Supporting Older Carers of Those Nearing the End of Life: Lancaster University Evaluation of Six Pilot Projects

    Morbey, H., Payne, S., Froggatt, K., Milligan, C. & Turner, M., 09/2013, Lancaster: Lancaster University. 69 p.

    Research output: Book/Report/ProceedingsCommissioned report

  5. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K. & Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

    Walshe, C., 2/06/2020, In: British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    All tooled up : an evaluation of end of life care tools in care homes in North Lancashire.

    Turner, M., Payne, S. & Froggatt, K., 11/2009, In: End of Life Care. 3, 4, p. 59-59 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    'Amongst the peasants, food is placed as "the sky"' (Chinese proverb) : older Chinese people's views on food and end of life care

    Payne, S., Chapman, A., Seymour, J. & Lloyd, M., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

    Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    An Australian survey of palliative care and hospice bereavement services.

    Abbott, J., O'Connor, M. & Payne, S., 2008, In: Australian Journal of Cancer Nursing. 9, 2, p. 12-17 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    An evaluation of research capacity building from the Cancer Experiences Collaborative

    Payne, S., Seymour, J., Froggatt, K., Molassiotis, A., Lloyd-Williams, M., Foster, C., Addington-Hall, J., Rolls, L. & Todd, C., 2012, In: BMJ Supportive and Palliative Care. 2, 3, p. 280-285 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  13. Published

    An exploration looking at the impact of domiciliary and day hospital delivery of stroke rehabilitation on informal carers.

    Low, J., Roderick, P. & Payne, S., 07/2004, In: Clinical Rehabilitation. 18, 7, p. 776-784 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    An exploration of family carers' experience of respite in services in one specialist palliative care unit.

    Skilbeck, J. K., Payne, S., Ingleton, C., Nolan, M., Carey, I. & Hanson, A., 12/2005, In: Palliative Medicine. 19, 8, p. 610-618 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    An exploratory study to clarify the cluster of symptoms predictive of chemotherapy-related nausea using random forest modeling

    Molassiotis, A., Farrell, C., Bourne, K., Brearley, S. G. & Pilling, M., 11/2012, In: Journal of Pain and Symptom Management. 44, 5, p. 692-703 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    An international collaboration for family carer research.

    Hudson, P. & Payne, S., 2006, In: European Journal of Palliative Care. 13, 4, p. 135

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    An online Delphi consensus process on European standards and norms in palliative care.

    Junger, S., Payne, S. & Radbruch, L., 2009, In: European Journal of Palliative Care. 16, p. 125-125 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    An overview of adult bereavement support in the United Kingdom : issues for policy and practice.

    Field, D., Payne, S., Relf, M. & Reid, D., 01/2007, In: Social Science and Medicine. 64, 2, p. 428-438 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Review)

    Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. Issue

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Withdrawn Paper. 2009, art. no. CD003143)

    Badger, C. M. A., Preston, N. J., Seers, K. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. 1, p. - 4 p., CD003143.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs.

    Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2004, In: Cochrane Database of Systematic Reviews. Issue

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    Anticipatory prescribing in end-of-life care

    Wilson, E., Seymour, J., Morbey, H., Payne, S., Brown, J. & Seale, C., 29/10/2014, Nursing Times, 110, 44, p. 16-17 2 p.

    Research output: Contribution to specialist publicationArticle

  23. Published

    Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia

    Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)

    Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Appraising the evidence : reviewing disparate data systematically.

    Hawker, S., Payne, S., Kerr, C., Hardey, M. & Powell, J., 11/2002, In: Qualitative Health Research. 12, 9, p. 1284-1299 16 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Approaches to offering adult bereavement support by hospice chaplains to people of diverse faiths in the UK.

    Reid, D., Field, D., Payne, S. & Relf, M., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    Approaching the end of life and dying with dementia in care homes : the accounts of family carers.

    Hennings, J., Froggatt, K. & Keady, J., 05/2010, In: Reviews in Clinical Gerontology. 20, 2, p. 114-127 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    Are nurse-led chemotherapy clinics really nurse-led? an ethnographic study

    Farrell, C., Walshe, C. E. & Molassiotis, A., 04/2017, In: International Journal of Nursing Studies. 69, p. 1-8 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials

    Oriani, A., Dunleavy, L., Sharples, P., Perez Algorta, G. & Preston, N. J., 9/01/2020, In: BMC Palliative Care. 19, 1, p. 6 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    Are we using the users?

    Payne, S., 2002, In: International Journal of Palliative Nursing. 8, 5, p. 212

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    Area influences: the experience of place.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  32. Published

    Assessing the family and caregivers.

    Payne, S. & Hudson, P., 2008, Palliative medicine. Walsh, D. (ed.). Philadelphia: Saunders Elsevier, p. 320-325 6 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  33. Published

    Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In: International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    Attitudes and beliefs about end-of-life care in the Chinese community : challenging stereotypes.

    Payne, S., Seymour, J., Chapman, A., Chau, R. & Lloyd, M., 03/2004, In: Palliative Medicine. 18, 2, p. 153-153 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    Autism Spectrum Social Stories In Schools Trial (ASSSIST): study protocol for a feasibility randomised controlled trial analysing clinical and cost-effectiveness of Social Stories in mainstream schools

    Wright, B., Marshall, D., Collingridge Moore, D., Ainsworth, H., Hackney, L., Adamson, J., Ali, S., Allgar, V., Cook, L., Dyson, L., Littlewood, E., Hargate, R., McLaren, A., McMillan, D., Trépel, D., Whitehead, J. & Williams, C., 9/07/2014, In: BMJ Open. 4, 7, 7 p., e005952.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation

    Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  37. Published

    Balancing information needs : dilemmas in producing patient information leaflets.

    Payne, S., 12/2002, In: Health Informatics Journal. 8, 4, p. 174-179 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Balancing information needs : dilemmas in producing patient information leaflets.

    Payne, S., 2002, Health Informatics : proceedings of the 7th International Symposium on Health Information Management Research. p. 16-23 8 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  39. Published

    Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries

    Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M.-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Barriers to achieving care at home at the end of life : transferring patients between care settings using patient transport services.

    Ingleton, C., Payne, S., Sargeant, A. & Seymour, J., 12/2009, In: Palliative Medicine. 23, 8, p. 723-730 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Barriers to advance care planning in Chronic Obstructive Pulmonary Disease.

    Gott, M., Gardiner, C., Small, N., Payne, S., Seamark, D., Barnes, S., Halpin, D. & Ruse, C., 10/2009, In: Palliative Medicine. 23, 7, p. 642-648 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    Barriers to care at home at the end of life: the role of transport between care settings.

    Sargeant, A. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 471-471 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Barriers to the Development of Palliative Care in the Countries of Central and Eastern Europe and the Commonwealth of Independent States

    Lynch, T., Clark, D., Centeno, C., Rocafort, J., Alberto Flores, L., Greenwood, A., Praill, D., Brasch, S., Giordano, A., De Lima, L. & Wright, M., 03/2009, In: Journal of Pain and Symptom Management. 37, 3, p. 305-315 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    Barriers to the development of palliative care in Western Europe

    Lynch, T., Clark, D., Centeno, C., Rocafort, J., de Lima, L., Filbet, M., Hegedus, K., Belle, O., Giordano, A., Guillen, F. & Wright, M., 12/2010, In: Palliative Medicine. 24, 8, p. 812-819 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    Beautiful and winding yet unending story….

    Salifu, Y., 28/02/2023

    Research output: Exhibits, objects and web-based outputsBlog

  46. Published

    Being heard : engaging patients and families in designing, developing and evaluating palliative care in the UK.

    Sargeant, A., Payne, S., Small, N., Gott, M. & Oliviere, D., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

    Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    Benefits and challenges of collaborative research: lessons from supportive and palliative care

    Payne, S., Seymour, J., Molassiotis, A., Froggatt, K., Grande, G., Lloyd-Williams, M., Foster, C., Wilson, R., Rolls, L., Todd, C. & Addington-Hall, J., 06/2011, In: BMJ Supportive and Palliative Care. 1, 1, p. 5-11 7 p.

    Research output: Contribution to Journal/MagazineJournal article

  49. Published
  50. Published

    Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review

    Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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