International Observatory on End of Life Care

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Published
Transfer and transitioning between palliative care settings
Salifu, Y. & Bayou, J., 28/10/2022, In: Annals of Palliative Medicine. 11, 10, p. 3035-3039 5 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Training for consumer participants in research
Morris, S. & Twelvetree, T., 2003, The third dimension: a report on the proceedings of a seminar. London: RCGP Research Group, p. 10-12 3 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Published
Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial
ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards a re-conceptualisation of the management of distress in palliative care patients : the self-integrity model.
Reeve, J., Lloyd-Williams, M., Payne, S. & Dowrick, C., 04/2009, In: Progress in Palliative Care. 17, 2, p. 51-60 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'To wait or not to wait': lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service at the end of life within NHS, hospice and voluntary sectors
Walshe, C. E., Preston, N. J., Payne, S. A., Perez Algorta, G. D., Dodd, S. R., Hill, M. & Ockenden, N., 9/03/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Time to reflect: the value of a longitudinal interview methodology in exploring coping strategies of patients with advanced cancer and their carers
Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P. & Walshe, C., 2014, In: BMJ Supportive and Palliative Care. 4, Supplement 1, p. A40 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Thoracic Epidural analgesia versus Rectus Sheath Catheters for open midline incisions in major abdominal surgery within an enhanced recovery programme (TERSC): study protocol for a randomised controlled trial
Wilkinson, K. M., Krige, A., Brearley, S. G., Lane, S., Scott, M., Gordon, A. C. & Carlson, G. L., 21/10/2014, In: Trials. 15, 1, 12 p., 400.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'This huge feeling as if arms are going around you to protect you and comfort you' - A sense of sanctuary deriving from the ethos and atmosphere of a cancer support service
Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 3/06/2010, In: Palliative Medicine. 24, 4 Suppl. , p. S184 1 p., 565.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Thinking about the future : promoting comfort, choice and well being for older people at the end of their lives.
Seymour, J., Witherspoon, R., Gott, M., Ross, H. & Payne, S., 2004, Help the Aged.
Research output: Working paper
Published
'They've got to learn': a qualitative study exploring the views of patients and staff regarding medical student teaching in a hospice
Arolker, M., Barnes, J., Gadoud, A., Jones, L., Barnes, L. & Johnson, M. J., 06/2010, In: Palliative Medicine. 24, 4, p. 419-426 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Theorising inequalities in health : the place of lay knowledge.
Popay, J., Williams, G., Thomas, C. & Gatrell, A. C., 2003, Health and Social Justice : politics, ideology, and inequality in the distribution of disease. Hofrichter, R. (ed.). San Francisco: Jossey-Bass/Wiley, p. 385-409 25 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Theorising disability and chronic illness: where next for perspectives in medical sociology?
Thomas, C., 2012, In: Social Theory and Health. 10, 3, p. 209-228 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Theorien der Behinderung: Schlüsselkonzepte, Themen und Personen. [In German]
Thomas, C., 2004, Disability studies : ein Lesebuch. Weisser, J. & Renggli, C. (eds.). Luzern: Ed. SZH/CSPS, p. 31-56 26 p. (Institut für Sonderpädagogik (Zürich).; ISP-Universität Zürich).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
Theoretical reflections on Care and Dependency.
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The voluntary contribution to UK childhood bereavement services : locating the place and experiences of unpaid staff.
Rolls, L. & Payne, S., 08/2008, In: Mortality. 13, 3, p. 258-281 24 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study
MacPherson, A., Walshe, C., O'Donnell, V. & Vyas, A., 03/2013, In: Palliative Medicine. 27, 3, p. 265-272 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of adults with Huntington’s disease on assisted dying: a qualitative exploration
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
The value of interviewing on multiple occasions or longitudinally
Grinyer, A. & Thomas, C., 2012, The Sage handbook of interview research: the complexity of the craft . Gubrium, J. F., Holstein, J. A., McKinney, K. & Marvasti, A. (eds.). 2nd ed. ed. Thousand Oaks: Sage, p. 219-230 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed)
Published
The use of volunteer counsellors for bereavement support in a study of bereavement services in UK hospices.
Reid, D., Field, D., Payne, S. & Relf, M., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of interpreters: the experiences of older Chinese people with cancer in the UK.
Payne, S., Chung, M., Gott, M., Seymour, J., Chapman, A. & Froggatt, K., 2008, In: Palliative Medicine. 22, 4, p. 543-543 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs.
Ahmed, N., Bestall, J. C., Payne, S., Noble, B. & Ahmedzai, S. H., 06/2009, In: Supportive Care in Cancer. 17, 6, p. 665-673 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The universal, situational, and personal needs of cancer patients and their main carers.
Soothill, K. L., Morris, S. M., Thomas, C., Harman, J. C., Francis, B. & McIllmurray, M. B., 2003, In: European Journal of Oncology Nursing. 7, 1, p. 5-13 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The UK Social Model of Disability: Rescuing a Social Relational Understanding of Disability.
Thomas, C., 2004, In: Scandinavian Journal of Disability Research. 6, 1, p. 22-36 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The UK post-mortem organ retention crisis : a qualitative study of its impact on partners.
Sque, M., Long, T., Payne, S., Roche, W. R. & Speck, P., 02/2008, In: Journal of the Royal Society of Medicine. 101, 2, p. 71-77 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S. & Elghenzai, S., 5/12/2014, In: BMC Palliative Care. 13, 8 p., 55.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress
Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The Social Model of Disability and the Rights Discourse: one and the same? [Invited speaker]
Thomas, C., 2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The Social Care Needs of Cancer Patients and Their Carers. [Keynote speaker]
Thomas, C., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The significant unmet needs of cancer patients: probing psychosocial concerns.
Soothill, K. L., Morris, S., Harman, J., Francis, B. J., Thomas, C. & McIllmurray, M. B., 11/2001, In: Supportive Care in Cancer. 9, 8, p. 597-605 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of volunteers in hospice bereavement support in New Zealand.
Payne, S., 03/2001, In: Palliative Medicine. 15, 2, p. 107-115 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The role of the research nurse (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The role of the nurse in palliative care settings in a global context.
Payne, S., Ingleton, C., Sargeant, A. & Seymour, J., 2009, In: Cancer Nursing Practice. 8, 5, p. 21-26 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of the health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project
Ingleton, C., Chatwin, J., Seymour, J. & Payne, S., 2011, In: Journal of Clinical Nursing. 20, 13-14, p. 2043-2052 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of the district nurse in bereavement care.
Birtwistle, J., Payne, S., Smith, P. & Kendrick, T., 06/2002, In: Journal of Advanced Nursing. 38, 5, p. 467-478 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of psychology in end of life care.
Kalus, C., Beloff, H., Brennan, J., McWilliams, E., Payne, S., Royan, L. & Russell, P., 03/2008, London: The Professional Board of the British Psychological Society.
Research output: Working paper
Published
The research page : supportive and palliative care : cancer experiences.
Payne, S., 2007, In: Hospice Bulletin. 5, 3, p. 3
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The readability and content of written information provided to patients and families by palliative care units : a national survey : final report.
Payne, S., Jarrett, N. & Turner, P., 2000, NHS Executive South East.
Research output: Working paper
Published
The rapidly changing location of death in Canada, 1994-2004.
Wilson, D., Truman, C. D., Thomas, R., Faisinger, R., Kovacs-Burns, K., Froggatt, K. & Justice, C., 05/2009, In: Social Science and Medicine. 68, 10, p. 1752-1758 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The psychosocial needs of patients and their main carers.
Thomas, C., 10/2000, Proceedings of the National conference on co-morbidity. Bolton
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The psychosocial needs of cancer patients.
Thomas, C., 06/2000, Proceedings of a seminar at the regional visit by Sir John Pattison, national director of NHS R&D : NHS Executive north west research and development directorate. Manchester: University of Manchester Medical School, Manchester Royal Infirmary
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
The psychosocial needs of cancer patients and their main carers. [Keynote speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The psychosocial needs of cancer patients and their main carers.
Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Francis, B. J. & Harman, J. C., 2001, Lancaster : University of Lancaster.
Research output: Other contribution
Published
The psychosocial needs of cancer patients and their main carers.
Thomas, C., Morris, S. M., McIllmurray, M. B., Soothill, K. L., Ledwith, F., Francis, B. J. & Al-Hamad, A., 09/1999, Proceedings of the Lancaster University industry conference. Lancaster: University of Lancaster
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The psychosocial needs of cancer patients : findings from an observational study.
McIllmurray, M. B., Thomas, C., Francis, B. J., Morris, S., Soothill, K. L. & Al-Hamad, A., 12/2001, In: European Journal of Cancer Care. 10, 4, p. 261-269 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The psychosocial needs in cancer: a patient survey.
McIllmurray, M., Morris, S. M., Thomas, C., Soothill, K. L. & Francis, B. J., 10/2000, Proceedings of the 25th ESMO congress. Hamburg
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
The psycho-emotional dimensions of disability. [Guest lecture]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

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