International Observatory on End of Life Care

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Published
The 'disabled' body
Thomas, C., 2002, Real bodies: a sociological introduction . Evans, M. & Lee, E. (eds.). Basingstoke: Palgrave, p. 64-78 15 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The development of palliative care knowledge in care homes for older people : the place of action research.
Froggatt, K. A. & Hockley, J., 12/2006, In: Palliative Medicine. 20, 8, p. 835-843 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The development of a nursing strategy for managing malignant ascites (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies
Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The contribution of psychologists to specialist palliative care.
Payne, S. & Haines, R., 2002, In: International Journal of Palliative Nursing. 8, 8, p. 401-406 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The construction of risk of falling among and by older people.
Ballinger, C. & Payne, S., 05/2002, In: Ageing and Society. 22, 3, p. 305-324 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The complexity of nurses' attitudes and practice of sedation at the end of life: a systematic literature review
Abarshi, E. A., Papavasiliou, E., Preston, N., Brown, J., Payne, S. & EURO IMPACT, 05/2014, In: Journal of Pain and Symptom Management. 47, 5, p. 915-925 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The circumstances, experiences and preferences of older people at the end of life.
Seymour, J., Witherspoon, R., Gott, M., Ross, H. & Payne, S., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The changing terrain of disability studies
Roulstone, A., Thomas, C. & Watson, N., 2012, Routledge handbook of disability studies . Watson, N., Roulstone, A. & Thomas, C. (eds.). London: Routledge, p. 3-11 9 p. (Routledge handbooks).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The changing profile of the family caregivers of older people: a European perspective
Payne, S., 2011, Living with Ageing and Dying: Palliative and End of Life Care for Older People. Gott, M. & Ingleton, C. (eds.). Oxford: Oxford University Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The challenges of end of life care.
Froggatt, K., Hasnip, J. & Smith, P., 2000, In: Elderly Care. 12, 2, p. 11-13 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
The carer's place in the cancer situation: where does the carer stand in the medical setting?
Morris, S. M. & Thomas, C., 06/2001, In: European Journal of Cancer Care. 10, 2, p. 87-95 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The carer's place in the cancer situation : where does the carer stand in the medical setting?
Morris, S. M., 2000, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The care given by informal carers in cancer contexts.
Thomas, C., 15/10/2001.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
The cancer experiences research collaborative (CECo) : building research capacity in supportive and palliative care.
Bailey, C., Wilson, R., Addington-Hall, J., Payne, S., Clark, D., Lloyd-Williams, M., Molassiotis, A. & Seymour, J., 12/2006, In: Progress in Palliative Care. 14, 6, p. 265-270 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Body and Society: Some Reflections on the Concepts of 'Disability' and 'Impairment'.
Thomas, C., 2001, Reframing the body. Watson, N. & Cunningham-Burley, S. (eds.). 61 ed. Baskingstoke: Palgrave, p. 47-62 16 p. (British Sociological Association conference volume series).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The body and society : impairment and disability.
Thomas, C., 2001, Proceedings of the British Sociological Association Conference : reforumlating bodies. London: Macmillan, p. 47-62 16 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The biographical impact of teenage and adolescent cancer.
Grinyer, A., 2007, In: Chronic Illness. 3, 4, p. 265-277 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The benefits of involving patients in healthcare planning remain uncertain.
Payne, S., 2003, In: Evidence-based Healthcare. 7, 2, p. 83-84 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Association of Hydration Status with Physical Signs, Symptoms and Survival in Advanced Cancer—The Use of Bioelectrical Impedance Vector Analysis (BIVA) Technology to Evaluate Fluid Volume in Palliative Care: An Observational Study
Nwosu, A., Mayland, C. R., Mason, S., Cox, T. F., Varro, A. & Ellershaw, J., 27/09/2016, In: PLoS ONE. 11, 9, 20 p., 0163114.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The anonymity of research participants : assumptions, ethics and practicalities.
Grinyer, A., 2002, Surrey: University of Surrey.
Research output: Working paper
Published
The analysis of qualitative data : processes and pitfalls.
Froggatt, K., 07/2001, In: Palliative Medicine. 15, 5, p. 433-438 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The ageing prison population and increasing prisoner palliative care needs: effects, challenges and conflicts for prisoners and prison staff
Varey, S., Turner, M., Peacock, M., Froggatt, K., Payne, S., Fletcher, A., Gibson, R. & Scott, G., 1/04/2016, In: Palliative Medicine. 30, 4, 1 p., Poster 41.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
The ‘regulated death’: a documentary analysis of the regulation and inspection of dying and death in English care homes for older people.
Froggatt, K. A., 03/2007, In: Ageing and Society. 27, 2, p. 233-247 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Thank goodness you're here'. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study: A mixed methods study
Walshe, C., Mateus, C., Varey, S., Dodd, S., Cockshott, Z., Filipe, L. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1484-1497 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Telling the story of illness and death.
Grinyer, A., 2006, In: Auto/Biography. 14, p. 206-222 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Telehealth requires improved evidence to achieve its full potential in palliative care
Nwosu, A., 30/06/2023, In: Palliative Medicine. 37, 7, p. 896-897 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Telehealth in palliative care is being described but not evaluated: A systematic review
Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Teenage and young adult palliative and end of life care service evaluation
Grinyer, A. & Barbarachild, Z., 04/2011, London: Teenage Cancer Trust.
Research output: Book/Report/Proceedings › Commissioned report
Published
Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method
Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Teamworking in nursing homes.
Wicke, D., Coppin, R. & Payne, S., 01/2004, In: Journal of Advanced Nursing. 45, 2, p. 197-204 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Talk about talking: 'Safe' and 'challenging' therapeutic talk in a UK Independent Cancer Support Service
Cockshott, Z., Payne, S. & Thomas, C., 05/2011, p. 151-152.
Research output: Contribution to conference - Without ISBN/ISSN › Abstract
Published
Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.
Ahmed, N., Bestall, J., Ahmedzai, S., Payne, S., Clark, D. & Noble, B., 09/2004, In: Palliative Medicine. 18, 6, p. 525-542 18 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.
Ahmed, N., Bestall, J. C., Ahmedzai, S. H., Payne, S., Clark, D. & Noble, B., 03/2004, In: Palliative Medicine. 18, 2, p. 171-172 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Systematic literature review of prognostic variables associated with being in the last year of life in patients with heart failure (10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013)
Gadoud, A., Macleod, U. & Johnson, M., 1/10/2013, 10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013: Abstracts. Suppl. 2 ed. Vol. 126. p. 501 (Cardiology).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Published
Symptom management in primary care: an ethnographic study of the community nursing role
Walshe, C., Payne, S. & Luker, K., 2012, In: Palliative Medicine. 26, 4, p. 575 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
E-pub ahead of print
Symptom management in people dying with COVID-19: multinational observational study (CovPall)
Oluyase, A., Bajwah, S., Sleeman, K., Walshe, C., Preston, N., Hocaoglu, M., Bradshaw, A., Chambers, R., Murtagh, F., Dunleavy, L., Maddocks, M., Fraser, L. & Irene, H., 8/09/2022, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 12, 4, p. 439-447 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Symptom control and survival for people severely ill with COVID: a multicentre cohort study (CovPall-Symptom)
Higginson, I., Hocaoglu, M., Fraser, L., Maddocks, M., Sleeman, K., Oluyase, A., Chambers, R., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. & Walshe, C., 31/10/2022, In: Journal of Pain and Symptom Management. 64, 4, p. 377-390 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis
ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study
Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Survivorship in advanced disease.
Payne, S., 2007, Handbook of cancer survivorship. Feuerstein, M. (ed.). New York: Springer, p. 429-446 18 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Supportive and palliative care research collaboratives in the United Kingdom : an unnatural experiment.
Payne, S., Addington-Hall, J., Richardson, A. & Sharpe, M., 12/2007, In: Palliative Medicine. 21, 8, p. 134-144 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Supporting relatives : an investigation into obstacles and aids to information exchange within families affected by cancer : interim report.
Foster, C., Scott, I., Sayers, M., Robinson, J., Hopkinson, J., Addington-Hall, J. & Payne, S., 06/2009, Macmillan Cancer Support.
Research output: Working paper
Published
Supporting people at home in the last year of life via telephone and video consultation—an evaluation of Gold Line
Gadoud, A., 2015
Research output: Other contribution
Published
Supporting lay carers in end of life care : current gaps and future priorities.
Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall, J., Payne, S. & Todd, C., 06/2009, In: Palliative Medicine. 23, 4, p. 339-344 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Supporting family carers during end of life care
Payne, S. & Morbey, H., 12/2013, In: Care Talk. 28, p. 36 1 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Supporting family carers: national evidence based recommendations for hospices in the UK
Morbey, H. & Payne, S., 6/06/2014.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Supporting family carers: report on the evidence of how to work with and support family carers to inform the work of the Commission into the future of hospice care
Payne, S. & Morbey, H., 10/2013, London: Help the Hospices. 36 p.
Research output: Book/Report/Proceedings › Commissioned report

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