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International Observatory on End of Life Care

  1. Chapter
  2. Published

    Practice development in palliative care.

    Froggatt, K. & Turner, M., 2008, Palliative care nursing : principles and evidence for practice. Payne, S., Seymour, J. & Ingleton, C. (eds.). Maidenhead: McGraw Hill, p. 643-659 17 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  3. Published

    End of life care.

    Wilcock, J., Froggatt, K. & Goodman, C., 2008, Excellence in dementia care : principles and practices. Downs, M. & Bowers, B. (eds.). Maidenhead: McGraw Hill, p. 359-378 20 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  4. Published

    Palliative care for people with dementia : principles, practice and implications.

    Froggatt, K., Downs, M. & Small, N., 2008, Handbook of clinical psychology of ageing. Woods, R. T. & Clare, L. (eds.). Chichester: Wiley, p. 351-359 9 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  5. Published

    The impact of cancer on parents of adolescents and young people.

    Grinyer, A., 2008, Cancer Care for Adolescents and Young Adults. Kelly, D. & Gibson, F. (eds.). Oxford: Blackwell, p. 44-58 15 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  6. Published

    Report 2 : critical care experiences and bereavement among families of organ donors : a reflective account of grounded theory analysis.

    Sque, M. & Payne, S., 2007, Analysing qualitative data in psychology. Lyons, E. & Coyle, A. (eds.). London: Sage, p. 217-234 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  7. Published

    Grounded theory.

    Payne, S., 2007, Analysing qualitative data in psychology. Lyons, E. & Coyle, A. (eds.). London: Sage, p. 65-86 22 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  8. Published

    Why bereaved relatives decline organ and tissue donation.

    Sque, M., Long, T. & Payne, S., 2007, Organ transplantation : ethical, legal and psychosocial aspects - towards a common European policy. Weimar, W., Bos, M. A. & Busschbach, J. J. (eds.). Lengerich, Germany: PABST Science Publishers, p. 471-481 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  9. Published

    Resilient carers and caregivers.

    Payne, S., 2007, Resilience in palliative care : achievement in adversity. Monroe, B. & Oliviere, D. (eds.). Oxford: Oxford University Press, p. 83-97 15 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  10. Published

    Survivorship in advanced disease.

    Payne, S., 2007, Handbook of cancer survivorship. Feuerstein, M. (ed.). New York: Springer, p. 429-446 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  11. Published

    Improving hospices and of life care: vulnerability or resilience?

    Payne, S., 2007, Hospice: the heart of end-of-life care. London, p. 12-12 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  12. Published

    Palliative care in acute stroke: preliminary analysis.

    Payne, S., Stevens, T., Burton, C., Addington-Hall, J. & Jones, A., 2007, Hospice: the heart of end-of-life care. London, p. 48-48 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  13. Published

    What are the key issues identified by Heart Failure Nurses in the UK working with patients at the end of life?

    Sargeant, A., Payne, S., Seymour, J. & Ingleton, C., 2007, Hospice: the heart of end-of-life care. London, p. 50-50 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  14. Published

    How do the levels of physician contact differ between cancer and heart failure patients in Tayside.

    Sargeant, A., Seymour, J., Payne, S., Ingleton, C. & Ward, S., 2007, Hospice: the heart of end-of-life care.. London, p. 50-50 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  15. Published

    Foreword.

    Payne, S., 2006, An annotated bibliography for the management of pain in the older adult. Schofield, P., Dunham, M., Clarke, A., Faulkner, M., Ryan, T. & Howarth, A. (eds.). Sheffield: University of Sheffield, School of Nursing and Midwifery

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  16. Published

    Malignant Effusions

    Preston, N. & Dolan, S., 2006, Nursing patients with cancer : principles and practice. Kearney, N. & Richardson, A. (eds.). Edinburgh: Churchill Livingstone, 861 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  17. Published

    Introduction to part 1 : disability studies.

    Thomas, C. & Barnes, C., 2006, Overcoming disabling barriers : 18 years of disability and society.. Barton, L. (ed.). London: Routledge, p. 3-6 4 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  18. Published

    Low back pain : exploring the meaning of exercise management through interpretative phenomenological analysis (IPA).

    Payne, S., Dean, S. & Smith, J., 2006, Qualitative research for allied health professionals : challenging choices.. Finlay, L. & Ballinger, C. (eds.). Chichester: Whurr Publishers Limited, p. 139-155 17 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  19. Published

    Payment for being an involved service user/carer.

    Morris, S. M., 2006, Proceedings of the NHS R&D forum : the realities of service user and carer involvement in research.. Morris, S. M. & Hinder, S. (eds.).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  20. Published

    Public involvement in health research.

    Morris, S. M., 2006, Proceedings of the Bolton research forum in health and social care, 3rd annual conference.. Morris, S. M. (ed.).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  21. Published

    Sharing successes : an encouraging process.

    Morris, S. M., 2006, Proceedings of the INVOLVE 5th national conference : people in research.. Morris, S. M., Hinder, S. & Britt, D. (eds.).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  22. Published

    Person centred care for people with dementia.

    Downs, M., Small, N. A. & Froggatt, K., 2006, Severe dementia. Burns, C. & Wingblad, B. (eds.). London: Wiley, p. 193-204 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  23. Published

    Foreword.

    Payne, S., 2006, An annotated bibliography for the management of pain in the older adult.. Schofield, P., Dunham, M., Clarke, A., Faulkner, M., Ryan, T. & Howarth, A. (eds.). Sheffield: University of Sheffield, School of Nursing and Midwifery.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  24. Published

    Improving end-of-life care for people with dementia : the benefits of combining UK approaches to palliative care and dementia care.

    Froggatt, K. A., Small, N. A. & Downs, M., 2006, Care-giving in dementia : research and applications. Miesen, B. M. L. & Jones, G. M. M. (eds.). London: Brunner-Routledge, Vol. 4. p. 365-392 28 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  25. Published

    Placing the dying body: emotional, situational and embodied factors in preferences for place of final care and death in cancer.

    Morris, S. & Thomas, C., 2005, Emotional Geographies. Davidson, J., Bondi, L. & Smith, M. (eds.). Ashgate, 258 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  26. Published

    Developing expert palliative care nursing through research and practice development.

    Froggatt, K. & Booth, K., 2004, Palliative care nursing : principles and evidence for practice. Payne, S., Seymour, J. & Ingleton, C. (eds.). Maidenhead: Open University Press, p. 697-712 16 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  27. Published

    Observation and action research.

    Ballinger, C., Yardley, L. & Payne, S., 2004, Research methods for clinical and health psychology. Marks, D. F. & Yardley, L. (eds.). London: Sage, 248 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  28. Published

    Designing and conducting qualitative studies.

    Payne, S., 2004, Health psychology in practice. Michie, S. & Abraham, C. (eds.). London: BPS Books, Routledge

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  29. Published

    Carers and caregivers.

    Payne, S., 2004, Death, dying and social differences. Oliviere, D. & Monroe, B. (eds.). Oxford: Oxford University Press, p. 181-198 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  30. Published

    Exercise therapy for low back pain : a pragmatic controlled trial of a psychological approach to promote adherence and outcome.

    Dean, S., Weinman, J. & Payne, S., 2004, 5th Interdisciplinary World Congress on Low Back and Pelvic Pain. Melbourne, p. 332-335 4 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  31. Published

    Developing the social relational in the social model of disability: a theoretical agenda.

    Thomas, C., 2004, Implementing the social model of disability. Barnes, C. & Mercer, G. (eds.). Leeds: Disability Press, p. 32-47 16 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  32. Published

    Theorien der Behinderung: Schlüsselkonzepte, Themen und Personen. [In German]

    Thomas, C., 2004, Disability studies : ein Lesebuch. Weisser, J. & Renggli, C. (eds.). Luzern: Ed. SZH/CSPS, p. 31-56 26 p. (Institut für Sonderpädagogik (Zürich).; ISP-Universität Zürich).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  33. Published

    Local geographies of health inequalities.

    Gatrell, A. C., Berridge, D., Bennett, S., Bostock, L., Thomas, C., Popay, J. & Williams, G., 2004, The geography of health inequalities in the developed world: views from Britain and North America. Boyle, P., Curtis, S., Graham, E. & Moore, E. (eds.). Aldershot: Ashgate Press, p. 177-197 21 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  34. Published

    Theorising inequalities in health : the place of lay knowledge.

    Popay, J., Williams, G., Thomas, C. & Gatrell, A. C., 2003, Health and Social Justice : politics, ideology, and inequality in the distribution of disease. Hofrichter, R. (ed.). San Francisco: Jossey-Bass/Wiley, p. 385-409 25 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  35. Published

    Issues for palliative care in nursing and residential homes.

    Field, D. & Froggatt, K., 2003, End of life in care homes. Katz, J. & Peace, S. (eds.). Oxford: Oxford University Press, p. 175-194 20 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  36. Published

    Bereavement care.

    Payne, S., 2003, Psychosocial issues in palliative care. Lloyd-Williams, M. (ed.). Oxford: Oxford University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  37. Published

    Palliative care in chronic illness.

    Skilbeck, J. & Payne, S., 2003, Palliative care nursing : a guide to practice. Aranda, S. & O'Connor, M. (eds.). Victoria: Ausmed

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  38. Published

    Place of final care and death : patterns and preferences among cancer patients in the Morecambe Bay health authority.

    Morris, S. M., Harman, J. C., Gatrell, A. C., Francis, B. J. & Thomas, C., 04/2002, Proceedings of the palliative care congress. Sheffield

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  39. Published

    Disability theory : key ideas, issues and thinkers

    Thomas, C., 2002, Disability studies today. Barnes, C., Oliver, M. & Barton, L. (eds.). Cambridge: Polity Press, p. 38-57 20 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  40. Published

    The 'disabled' body

    Thomas, C., 2002, Real bodies: a sociological introduction . Evans, M. & Lee, E. (eds.). Basingstoke: Palgrave, p. 64-78 15 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  41. Published

    Living in the borderlands of disability

    Thomas, C., 2002, Understanding care, welfare and community : a reader. Bytheway, B., Bacigalipo, V., Bornat, J., Johnson, J. & Spurr, S. (eds.). London: Routledge, p. 11-12 2 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  42. Published

    A journey around the social model

    Thomas, C. & Corker, M., 2002, Disability/postmodernity : embodying disability theory. Corker, M. & Shakespeare, T. (eds.). London: Continuum, p. 18-31 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  43. Published

    Changing care practices through staff development : beyond education and training to practice development.

    Froggatt, K., 2002, Palliative care in nursing and residential care homes. Hockley, J. & Clarke, D. (eds.). Buckingham: Open University Press, p. 151-164 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  44. Published

    Balancing information needs : dilemmas in producing patient information leaflets.

    Payne, S., 2002, Health Informatics : proceedings of the 7th International Symposium on Health Information Management Research. p. 16-23 8 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  45. Published

    Trying to be sociological : our experience of conducting a three year research project on 'The psychosocial needs of cancer patients and their main carers'.

    Thomas, C., 12/2001, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  46. Published

    Gender roles, role quality and health in Venezuelan working women : addictive and interactive effects.

    Feldman, L., Payne, S. & Vivas, E., 2001, Gender and social inequalities in health. Wamala, S. P. & Lynch, Y. (eds.). Lund: Student Literature

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  47. Published

    The body and society : impairment and disability.

    Thomas, C., 2001, Proceedings of the British Sociological Association Conference : reforumlating bodies. London: Macmillan, p. 47-62 16 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  48. Published

    Disabled women enter the academy.

    Thomas, C., 2001, Identity and difference in higher education : feminist perspectives. Anderson, P. & Williams, J. (eds.). Aldershot: Ashgate, p. 67-78 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  49. Published

    Feminism and disability : the theoretical and political significance of the personal and the experiential.

    Thomas, C., 2001, Disability, politics and the struggle for change. Barton, L. (ed.). London: David Fulton Publications, p. 48-58 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  50. Published

    Malignant ascites.

    Preston, N., 2001, Cancer nursing : care in context. Corner, J. & Bailey, C. (eds.). Oxford: Blackwell, 576 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  51. Published

    Abdominal paracentesis.

    Summerville, K. & Preston, N., 2001, The Royal Marsden Hospital Handbook of Clinical Procedures. Mallet, J. & Dougherty, L. (eds.). Oxford: Blackwell Science

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  52. Published

    The Body and Society: Some Reflections on the Concepts of 'Disability' and 'Impairment'.

    Thomas, C., 2001, Reframing the body. Watson, N. & Cunningham-Burley, S. (eds.). 61 ed. Baskingstoke: Palgrave, p. 47-62 16 p. (British Sociological Association conference volume series).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  53. Published

    Women's health in Europe : beyond epidemiology?

    Thomas, C. & Rigby, J., 2001, Geographies of women's health. McLafferty, S., Dyke, I. & Davis Lewis, N. (eds.). London: Routledge, p. 23-40 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  54. Published

    The psychosocial needs in cancer: a patient survey.

    McIllmurray, M., Morris, S. M., Thomas, C., Soothill, K. L. & Francis, B. J., 10/2000, Proceedings of the 25th ESMO congress. Hamburg

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  55. Published

    The psychosocial needs of patients and their main carers.

    Thomas, C., 10/2000, Proceedings of the National conference on co-morbidity. Bolton

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  56. Published

    Cancer patients' main carers: companions through cancer.

    Thomas, C. & Morris, S. M., 09/2000, Proceedings of the 30th annual conference of the BSA medical sociology group. York

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  57. Published

    The psychosocial needs of cancer patients.

    Thomas, C., 06/2000, Proceedings of a seminar at the regional visit by Sir John Pattison, national director of NHS R&D : NHS Executive north west research and development directorate. Manchester: University of Manchester Medical School, Manchester Royal Infirmary

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  58. Published

    Research strategy.

    Payne, S., 2000, School strategic plan 2000-2004. Payne, S. (ed.). Southampton: School of Health Professions and Rehabilitation Sciences

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  59. Published

    Understanding health inequalities: Locating people in geographical and social spaces

    Gatrell, A. C., Thomas, C., Bennett, S., Bostock, L., Popay, J., Williams, G. & Shahtahmasebi, S., 2000, Understanding health inequalities. Graham, H. (ed.). Buckingham: Open University Press, p. 156-169 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  60. Published

    The carer's place in the cancer situation : where does the carer stand in the medical setting?

    Morris, S. M., 2000, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  61. Published

    What are the 'needs' of cancer patients and their main carers?

    Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Ledwith, F. & Francis, B. J., 09/1999, Proceedings of the ECCO European Cancer Conference. Vienna

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  62. Published

    The psychosocial needs of cancer patients and their main carers.

    Thomas, C., Morris, S. M., McIllmurray, M. B., Soothill, K. L., Ledwith, F., Francis, B. J. & Al-Hamad, A., 09/1999, Proceedings of the Lancaster University industry conference. Lancaster: University of Lancaster

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  63. Chapter (peer-reviewed)
  64. Forthcoming

    Death and Dying: Legal and ethical issues and the palliative care perspective

    Begovic, D., Salifu, Y. & Payne, S., expected on 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)peer-review

  65. Published

    The value of interviewing on multiple occasions or longitudinally

    Grinyer, A. & Thomas, C., 2012, The Sage handbook of interview research: the complexity of the craft . Gubrium, J. F., Holstein, J. A., McKinney, K. & Marvasti, A. (eds.). 2nd ed. ed. Thousand Oaks: Sage, p. 219-230 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)

  66. Published

    Dying as a teenager or young person

    Grinyer, A., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2nd ed. ed. Oxford: Oxford University Press, p. 118-125 8 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)

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