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International Observatory on End of Life Care

  1. Journal article
  2. Published

    An evaluation of research capacity building from the Cancer Experiences Collaborative

    Payne, S., Seymour, J., Froggatt, K., Molassiotis, A., Lloyd-Williams, M., Foster, C., Addington-Hall, J., Rolls, L. & Todd, C., 2012, In: BMJ Supportive and Palliative Care. 2, 3, p. 280-285 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  3. Published

    Strategies to increase participant recruitment to research studies by healthcare professionals (Protocol)

    Preston, N., Farquhar, M., Walshe, C., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 2012, In: Cochrane Database of Systematic Reviews. 9

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    Theorising disability and chronic illness: where next for perspectives in medical sociology?

    Thomas, C., 2012, In: Social Theory and Health. 10, 3, p. 209-228 20 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Mandatory communication skills training for cancer and palliative care staff: does one size fit all?

    Turner, M., Payne, S. & O'Brien, T., 12/2011, In: European Journal of Oncology Nursing. 15, 5, p. 398-403 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  6. Published

    End-of-life care and circumstances of death in patients dying as a result of cancer in Belgium and the Netherlands: a retrospective comparative study

    Meeussen, K., Van den Block, L., Echteld, M. A., Boffin, N., Bilsen, J., Van Casteren, V., Abarshi, E., Donker, G., Onwuteaka-Philipsen, B. & Deliens, L., 10/11/2011, In: Journal of Clinical Oncology. 29, 32, p. 4327-4334 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Palliative care in non-malignant disease

    Gadoud, A. C. & Johnson, M. J., 11/2011, In: Medicine (United Kingdom). 39, 11, p. 664-667 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    Palliative care in non-malignant disease

    Gadoud, A. C. & Johnson, M. J., 11/2011, In: Medicine (United Kingdom). 39, 11, p. 664-667 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners

    Meeussen, K., Van den Block, L., Echteld, M., Bossuyt, N., Bilsen, J., Van Casteren, V., Abarshi, E., Donker, G., Onwuteaka-Philipsen, B. & Deliens, L., 10/2011, In: Journal of Pain and Symptom Management. 42, 4, p. 565-577 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study

    Price, A., Lee, W., Goodwin, L., Rayner, L., Humphreys, R., Hansford, P., Sykes, N., Monroe, B., Higginson, I. & Hotopf, M., 1/09/2011, In: BMJ Supportive & Palliative Care. 1, 2, p. 140-148 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review

    Slort, W., Schweitzer, B. P. M., Blankenstein, A. H., Abarshi, E. A., Riphagen, I. I., Echteld, M. A., Aaronson, N. K., van der Horst, H. & Deliens, L., 09/2011, In: Palliative Medicine. 25, 6, p. 613-629 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    Recognizing advanced disease

    Gadoud, A. & Johnson, M., 08/2011, In: British Journal of Hospital Medicine. 72, 8, p. 432-436 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    The physical and practical problems experienced by cancer survivors: a rapid review and synthesis of the literature

    Brearley, S. G., Stamataki, Z., Addington-Hall, J., Foster, C., Hodges, L., Jarrett, N., Richardson, A., Scott, I., Sharpe, M., Stark, D., Siller, C., Ziegler, L. & Amir, Z., 07/2011, In: European Journal of Oncology Nursing. 15, 3, p. 204-212 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    What is the evidence for the use of mindfulness-based interventions in cancer care? a review

    Shennan, C., Payne, S. & Fenlon, D., 07/2011, In: Psycho-Oncology. 20, 7, p. 681-697 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Care or custody? an evaluation of palliative care in prisons in North West England

    Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Benefits and challenges of collaborative research: lessons from supportive and palliative care

    Payne, S., Seymour, J., Molassiotis, A., Froggatt, K., Grande, G., Lloyd-Williams, M., Foster, C., Wilson, R., Rolls, L., Todd, C. & Addington-Hall, J., 06/2011, In: BMJ Supportive and Palliative Care. 1, 1, p. 5-11 7 p.

    Research output: Contribution to Journal/MagazineJournal article

  17. Published

    Review of Becker R. Fundamental Aspects of Palliative Care Nursing

    Payne, S., 8/04/2011, In: Cancer Nursing Practice. 10, 3, p. 8 1 p.

    Research output: Contribution to Journal/MagazineJournal article

  18. Published

    Nursing life: 60 seconds with Sheila Payne

    Payne, S., 04/2011, In: Nursing Times. 107, 13, p. 24 1 p.

    Research output: Contribution to Journal/MagazineJournal article

  19. Published

    Interventions for improving palliative care for older people living in nursing care homes

    Hall, S., Kolliakou, A., Petkova, H., Froggatt, K. & Higginson, I. J., 03/2011, In: Cochrane Database of Systematic Reviews. 3, CD007132.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Palliative care for people with chronic heart failure: when is it time?

    Johnson, M. J. & Gadoud, A., 03/2011, In: Journal of Palliative Care. 27, 1, p. 37-42 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    Exploring the influence of service user involvement on health and social care services for cancer.

    Attree, P., Morris, S., Payne, S., Vaughan, S. & Hinder, S., 03/2011, In: Health Expectations. 14, 1, p. 48-58 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    Discussing end-of-life issues in the last months of life: a nationwide study among general practitioners

    Abarshi, E., Echteld, M., Donker, G., Van den Block, L., Onwuteaka-Philipsen, B. & Deliens, L., 03/2011, In: Journal of Palliative Medicine. 14, 3, p. 323-330 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Do nursing homes for older people have the support they need to provide end-of-life care? a mixed methods enquiry in England

    Seymour, J., Kumar, A. & Froggatt, K., 03/2011, In: Palliative Medicine. 25, 2, p. 125-138 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    What research evidence is there for the use of art therapy in the management of symptoms in adults with cancer? : a systematic review.

    Wood, M. J. M., Molassiotis, A. & Payne, S., 02/2011, In: Psycho-Oncology. 20, 2, p. 135-145 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium

    Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Palliative Care in Long-Term Care Settings for Older People: introducing an EAPC Task Force

    Froggatt, K. A. & Reitinger, E., 01/2011, In: European Journal of Palliative Care. 18, 1, p. 26-28 3 p.

    Research output: Contribution to Journal/MagazineJournal article

  27. Published

    When a hospice in not a haven: case report

    Swarbrick, P., Grinyer, A. & Payne, S., 01/2011, In: Progress in Palliative Care. 19, 1, p. 22-24 3 p.

    Research output: Contribution to Journal/MagazineJournal article

  28. Published

    A system lifeworld perspective on dying in long term care settings for older people: contested states in contested places

    Froggatt, K., Hockley, J., Parker, D. & Brazil, K., 01/2011, In: Health and Place. 17, 1, p. 263-268 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs

    Abarshi, E. A., Echteld, M. A., Van den Block, L., Donker, G. A., Deliens, L. & Onwuteaka-Philipsen, B. D., 2011, In: British Journal of General Practice. 61, 587, p. e371-378 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    The role of the health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project

    Ingleton, C., Chatwin, J., Seymour, J. & Payne, S., 2011, In: Journal of Clinical Nursing. 20, 13-14, p. 2043-2052 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    Use of antiemetics in the management of chemotherapy-related nausea and vomiting in current UK practice

    Molassiotis, A., Brearley, S. G. & Stamataki, Z., 2011, In: Supportive Care in Cancer. 19, 7, p. 949-956 8 p.

    Research output: Contribution to Journal/MagazineJournal article

  32. Published

    Barriers to the development of palliative care in Western Europe

    Lynch, T., Clark, D., Centeno, C., Rocafort, J., de Lima, L., Filbet, M., Hegedus, K., Belle, O., Giordano, A., Guillen, F. & Wright, M., 12/2010, In: Palliative Medicine. 24, 8, p. 812-819 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Published

    A systematic review of instruments related to family caregivers of palliative care patients.

    Hudson, P., Trauer, T., Graham, S., Grande, G., Ewing, G., Payne, S., Stajuhar, K. I. & Thomas, K., 11/2010, In: Palliative Medicine. 24, 7, p. 656-668 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    EAPC Task Force on Family Carers White Paper on improving support for family carers in palliative care: part 2

    Payne, S., 11/2010, In: European Journal of Palliative Care. 17, 6, p. 286-290 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    Health and social impacts of flood disaster: responding to needs and implications for practice.

    Carroll, B., Balogh, R., Morbey, H. & Araoz, G., 10/2010, In: Disasters. 34, 4, p. 1045-1063 19 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    Unpacking the Politics of Evaluation: A Dramaturgical Analysis

    O'Brien, T., Payne, S., Nolan, M. & Ingleton, C., 10/2010, In: Evaluation. 16, 4, p. 431-444 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published

    What is the meaning of palliative care in the Asia-Pacific region?

    O'Connor, M., O'Brien, A. P., Griffiths, D., Poon, E., Chin, J., Payne, S. & Nordin, R., 09/2010, In: Asia-Pacific Journal of Clinical Oncology. 6, 3, p. 197-202 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  38. Published

    The palliative care needs of acute stroke patients : a prospective study of hospital admissions.

    Burton, C., Payne, S., Addington-Hall, J. & Jones, A., 09/2010, In: Age and Ageing. 39, 5, p. 554-559 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  39. Published

    EAPC Task Force on Family Carers White Paper on improving support for family carers in palliative care: part 1

    Payne, S., 09/2010, In: European Journal of Palliative Care. 17, 5, p. 238-245 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Ensnared by positivity: a constructivist perspective on 'being positive' in cancer care

    McCreaddie, M., Payne, S. & Froggatt, K., 09/2010, In: European Journal of Oncology Nursing. 14, 4, p. 283-290 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD

    Gardiner, C., Barnes, S., Small, N., Gott, M., Payne, S., Halpin, D. & Seamark, D., 07/2010, In: Palliative Medicine. 24, 5, p. 469-472 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    The late effects of mantle field radiotherapy : the information and support needs of women survivors of Hodgkin's disease.

    Grinyer, A., 07/2010, In: European Journal of Oncology Nursing. 14, 3, p. 183-189 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Clinical features of oral chemotherapy : results of a longitudinal prospective study of breast and colorectal cancer patients receiving capecitabine in the UK.

    Brearley, S. G., Craven, O., Saunders, M., Swindell, R. & Molassiotis, A., 07/2010, In: European Journal of Cancer Care. 19, 4, p. 425-433 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    Defining priorities in prognostication research: results of a consensus workshop

    Stevinson, C., Preston, N., Todd, C. & Canc Experiences Collaborative, 07/2010, In: Palliative Medicine. 24, 5, p. 462-468 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    The place of supportive, palliative and end-of-life care research in the United Kingdom Research Assessment Exercise, 2001 and 2008

    Clark, D., Clark, J. & Greenwood, A., 07/2010, In: Palliative Medicine. 24, 5, p. 533-543 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  46. Published

    'They've got to learn': a qualitative study exploring the views of patients and staff regarding medical student teaching in a hospice

    Arolker, M., Barnes, J., Gadoud, A., Jones, L., Barnes, L. & Johnson, M. J., 06/2010, In: Palliative Medicine. 24, 4, p. 419-426 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Evolving grounded theory methodology : towards a discursive approach.

    McCreaddie, M. & Payne, S., 06/2010, In: International Journal of Nursing Studies. 47, 6, p. 781-793 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    Negotiating the contested terrain of narrative methods in illness contexts.

    Thomas, C., 05/2010, In: Sociology of Health and Illness. 32, 4, p. 647-660 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Approaching the end of life and dying with dementia in care homes : the accounts of family carers.

    Hennings, J., Froggatt, K. & Keady, J., 05/2010, In: Reviews in Clinical Gerontology. 20, 2, p. 114-127 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    One on One ... with Sheila Payne

    Payne, S., 05/2010, In: Psychologist. 23, 5, p. 448 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  51. Published

    Reflecting on the Long-term (Neurological) End-of-Life Conference

    Baker, M., Payne, S., Stanley, C., Bowen, C., Webb, P., Daveson, B., Morrey, V. & O'Connor, M., 04/2010, In: British Journal of Neuroscience Nursing. 6, 4, p. 188-190 3 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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