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International Observatory on End of Life Care

  1. 2025
  2. Published

    The needs, preferences, and experiences of LGBT+ people living with dementia: A systematic review with thematic synthesis

    Chidiac, C., Walshe, C., Lowers, J. & Preston, N., 13/05/2025, In: BMC Geriatrics. 25, 326.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. E-pub ahead of print

    Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services

    Salifu, Y. & Bamidele, O., 10/05/2025, (E-pub ahead of print) In: Palliative Medicine. p. 1-4 4 p.

    Research output: Contribution to Journal/MagazineEditorial

  4. Published

    Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End-of-Life Care Settings

    Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K., Doherty, M. & Gadoud, A., 30/04/2025, In: Journal of Palliative Care. 40, 2, p. 162-167 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Peer review and Palliative Medicine: Guiding reviewers’ contributions to ensuring high quality publications

    Walshe, C., Beernaert, K., Chong, P. H., Lowe, S., Martins Pereira, S. & Yardley, S., 30/04/2025, In: Palliative Medicine. 39, 4, p. 444-447 4 p., 2692163251321082.

    Research output: Contribution to Journal/MagazineEditorial

  6. E-pub ahead of print

    The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis

    Ali, V., Preston, N., Machin, L. & Malone, J., 29/04/2025, (E-pub ahead of print) In: Palliative Medicine.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    ‘Regrets become a lasting source of pain’: A qualitative study on family caregivers’ experiences leading up to a relative’s death

    Liang, H.-J., Xiong, Q. & Preston, N., 31/03/2025, In: Palliative Medicine. 39, 3, p. 401-412 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. E-pub ahead of print

    Timing of advance care planning in patients with advanced cancer: analysis of ACTION data

    Zhu, T., Rietjens, J. A., van Delden, J. J. M., Deliens, L., van der Heide, A., Johnsen, A. T., Ingravallo, F., Lunder, U., Preston, N. J., Seymour, J. & Korfage, I. J., 31/07/2025, In: Patient Education and Counseling. 136, 108761.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. E-pub ahead of print

    Developing research collaborations and building capacity in palliative and end-of-life care in the north west coast of England: The PalCaRE-NWC partnership

    Dunleavy, L., Board, R., Coyle, S., Dickman, A., Ellershaw, J. E., Gadoud, A., Halvorsen, J., Hulbert-Williams, N., Lightbody, C. E., Mason, S., Nwosu, A., Partridge, A., Payne, S., Preston, N., Swash, B., Taylor, V. & Walshe, C., 19/03/2025, (E-pub ahead of print) In: Public Health Research.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Urinary metabolite model to predict the dying process in lung cancer patients

    Coyle, S., Chapman, E., Hughes, D. M., Baker, J., Slater, R., Davison, A. S., Norman, B. P., Roberts, I., Nwosu, A. C., Gallagher, J. A., Ranganath, L. R., Boyd, M. T., Mayland, C. R., Kell, D. B., Mason, S., Ellershaw, J. & Probert, C., 27/02/2025, In: communications medicine. 5, 1, 49.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. E-pub ahead of print

    Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country

    Sailian, S. D., Salifu, Y. & Preston, N., 31/12/2025, In: Palliative and Supportive Care. 23, e61.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Forthcoming

    Death and Dying: Legal and ethical issues and the palliative care perspective

    Begovic, D., Salifu, Y. & Payne, S., 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)peer-review

  13. Published

    Improving hospital palliative care between COVID-19 waves: A retrospective cohort study

    Chidiac, C., Sedda, L., Walshe, C., Feuer, D., Flatley, M., Rodgerson, A. & Preston, N., 31/01/2025, In: Journal of Pain and Symptom Management. 69, 1, p. e37-e45

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. 2024
  15. Published

    ‘A good ending but not the end’: Exploring family preparations surrounding a relative’s death and the Afterlife – A qualitative study

    Liang, H.-J., Xiong, Q., Lin, P.-C., Tsai, J.-H. & Preston, N., 31/12/2024, In: Palliative Medicine. 38, 10, p. 1184-1193 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Cancer experience in metaphors: patients, carers, professionals, students: A scoping review

    Liu, Y., Semino, E., Rietjens, J. & Payne, S., 19/12/2024, In: BMJ Supportive & Palliative Care. 14, e3, p. e2366-e2376 11 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  17. Published

    Why are organisational approvals needed for low-risk staff studies in the UK? Procedures, barriers, and burdens

    Dunleavy, L., Board, R., Coyle, S., Dickman, A., Ellershaw, J. E., Gadoud, A., Halvorsen, J., Hulbert-Williams, N., Lightbody, C. E., Mason, S., Nwosu, A., Partridge, A., Payne, S., Preston, N., Swash, B., Taylor, V. & Walshe, C., 15/11/2024, In: BMC Health Services Research. 24, 1, 1408.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Understanding Experiences of Diabetes Distress: A Systematic Review and Thematic Synthesis

    Morales-Brown, L., Perez Algorta, G. & Salifu, Y., 14/11/2024, In: Journal of Diabetes Research. 2024

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Forthcoming

    Suffering and loss in Lewy body dementia: applying a palliative care lens to a longitudinal narrative study

    Bentley, A., Salifu, Y. & Walshe, C., 10/11/2024, (Accepted/In press) In: Palliative and Supportive Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Exploring the contribution of cancer palliative care development toward alleviating the human crisis of suffering in low- and middle-income countries: A framework synthesis protocol

    Atreya, S., Rao, A., Dhyani, V. S., Mathew, M., Gursahani, R., Simha, S., Preston, N., Walshe, C. & Salins, N., 31/10/2024, In: Palliative and Supportive Care. 22, 5, p. 1489-1495 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    Factors associated with the place of death of persons with advanced dementia: A systematic review of international literature with meta-analysis

    Tay, R., Tan, J. Y., Lim, B., Hum, A. Y., Simpson, J. & Preston, N., 31/10/2024, In: Palliative Medicine. 38, 9, p. 896-922 27 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  22. Published

    Opportunities and Challenges in Patient and Public Involvement and Engagement in Palliative Care Research

    Payne, S. A., Sumerfield, M. & Hughes, S., 31/10/2024, In: Journal of Palliative Medicine. 27, 10, p. 1288-1290 3 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  23. Published

    Hospital initiated palliative care interventions for adults with frailty: findings from a systematic review and narrative synthesis.

    Sharratt, P., Zacharias, A., Nwosu, A. & Gadoud, A., 17/09/2024, In: Age and Ageing. 53, 9, 14 p., afae190.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. E-pub ahead of print

    The lived experiences of hospice healthcare workers caring for adolescents and young adults with advanced cancer: An Interpretative Phenomenological Analysis

    Persaud, N., Walshe, C. & Brearley, S., 30/08/2024, (E-pub ahead of print) In: Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis

    Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J., 19/08/2024, In: BMC Palliative Care. 23, 209.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Collaboration, coordination and communication as facilitators of transitions for patients with advanced cancer: a scoping review linked to the Pal-Cycles project

    Hooley, R. L., Payne, S., Begovic, D., Correa-Morales, J. E., Harding, A., Hasselaar, J. & Preston, N., 7/08/2024, In: BMC Palliative Care. 23, 1, 204.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    A palliative care approach for adult non-cancer patients with life-limiting illnesses is cost-saving or cost-neutral: a systematic review of RCTs

    Janke, K., Salifu, Y., Gavini, S., Preston, N. & Gadoud, A., 5/08/2024, In: BMC Palliative Care. 23, 12 p., 200.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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