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International Observatory on End of Life Care

  1. 2019
  2. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R. & Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P. & Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  7. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  8. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Development of a hospice research culture through staff development, education and collaboration

    Stanley, S., McDougall, A., Chapman, L. & Nwosu, A., 16/04/2019, In: BMJ Supportive and Palliative Care. 9, 3, p. 359-360 2 p.

    Research output: Contribution to Journal/MagazineLetterpeer-review

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