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International Observatory on End of Life Care

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  1. 2022
  2. Published

    Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

    Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 21/03/2022, In: JMIR Aging. 5, 1, 15 p., e32075.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

    Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  4. Published

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 28/02/2022, In: Palliative Medicine. 36, 2, p. 216-218 3 p.

    Research output: Contribution to Journal/Magazine › Journal article

  5. Published

    Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique

    Hussain, J. A., White, I. R., Johnson, M. J., Byrne, A., Preston, N. J., Haines, A., Seddon, K. & Peters, T. J., 17/01/2022, In: Palliative Medicine. 36, 1, p. 59-70 12 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

    Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. 2021
  8. Published

    A scoping review: Investigating the extent and legal process of cauda equina syndrome claims for UK physiotherapists

    Hooley, R., Selfe, J., Ball, S., Greenhalgh, S., Hogan, G., Holway, J., Willis, E. & Yeowell, G., 31/12/2021, In: Musculoskeletal Science and Practice. 56, 102458.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia

    Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Exploring the experiences of living with Lewy body dementia: An integrative review

    Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. E-pub ahead of print

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. E., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1933-1940 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

    Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. & Walshe, C., 20/11/2021, In: medRxiv.

    Research output: Contribution to Journal/Magazine › Journal article

  15. Published

    Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

    Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  17. Published

    A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 31/10/2021, In: COPD. 18, 5, p. 576-584 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    A Narrative Exploration of the Experiences of Informal Caregivers for People with Moderate to Advanced Dementia within a Domestic Home Setting towards the End of Life

    James, C., Walshe, C. & Swarbrick, C., 6/10/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  19. Published

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Editorial MyPal Autumn Newsletter: Health apps and their use in palliative care

    Salifu, Y., 22/09/2021

    Research output: Exhibits, objects and web-based outputs › Blog › peer-review

  21. Published

    Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

    Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

    Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Evaluating the online response to a guide to support people who are caring for dying friends and family, the ‘Deathbed Etiquette: an analysis of Twitter and newspaper comments.

    Nwosu, A., Sanders, K., Elverson, J., Doherty, M. & Gadoud, A., 6/08/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  27. Published

    Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

    Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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