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International Observatory on End of Life Care

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  1. 2009
  2. Published

    Improving palliative and end-of-life care for older people in Ireland : a new model and framework for institutional care.

    Payne, S., Froggatt, K., O'Shea, E., Murphy, K., Larkin, P., Casey, D. & Leime, A., 2009, In: Journal of Palliative Care. 25, 3, p. 218-226 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Interviewing older people about end of life issues : engaging with ethical frameworks in four countries.

    Seymour, J., Pleschberger, S., Brown, J., Deschepper, R., Onwuteaka-Philipsen, B., Payne, S. & Rurup, M., 2009, In: European Journal of Palliative Care. 16, p. 51

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    Interviewing older people about end of life issues : experiences of qualitative research in four countries.

    Payne, S., Rurup, M., Onwuteaka-Philipsen, B., Deschepper, R., Pleschberger, S. & Seymour, J., 2009, In: European Journal of Palliative Care. 16, p. 126-126 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. Published

    It’s amazing how safe and secure I felt within that building. [Posters]

    Cockshott, Z. J., Payne, S. A., Thomas, C. & Fyfe, D., 2009.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  6. Published

    Key aspects of support for family carers in last months of end of life care at home.

    Ewing, G., Grande, G. & Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 45

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    Learning from challenges and opportunities in the recruitment of patients with advanced cancer within a hospice/palliative day care setting.

    Lynch, T. J., Lloyd-Williams, M., Payne, S., Reeve, J., Keogh, C., Barbarachild, Z. & Williams, C., 2009, In: European Journal of Palliative Care. 16, p. 73

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    Letter to the editor: Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review

    Ahmed, N., Payne, S. & Ahmedzai, S., 2009, In: Age and Ageing. 38, 6, p. 765-766 2 p.

    Research output: Contribution to Journal/Magazine › Letter › peer-review

  9. Published

    Life after cancer in adolescence and young adulthood: the experience of survivorship

    Grinyer, A., 2009, London: Routledge. 194 p.

    Research output: Book/Report/Proceedings › Book

  10. Published

    Narrative methods in supportive and palliative care: an annotated bibliography

    Rolls, E., Payne, S. & Brown, J., 2009, Lancaster: Observatory Publications. 130 p.

    Research output: Book/Report/Proceedings › Book

  11. Published

    Recognising the hidden volunteers in palliative care : a survey of hospice trustees in the United Kingdom.

    Turner, M. & Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 176-176 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    Reflections on the way forward.

    Davies, S., Froggatt, K. & Meyer, J., 2009, Understanding care homes : a research and development perspective. Froggatt, K., Davies, S. & Meyer, J. (eds.). London: Jessica Kingsley, p. 242-263 22 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  13. Published

    Research and development in care homes : setting the scene.

    Froggatt, K., Davies, S. & Meyer, J., 2009, Understanding care homes : a research and development perspective. Froggatt, K., Davies, S. & Meyer, J. (eds.). London: Jessica Kingsley, p. 9-22 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  14. Published

    Sharing experiences on working collaboratively and setting up a successful collaborative.

    Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 26

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Standard practice or practice standard? : family involvement at the end of life.

    Hennings, J., Froggatt, K. & Keady, J., 2009, In: Nursing and Residential Care. 11, 8, p. 403-405 3 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    The effectiveness of a home care nursing programme in the symptom management of patients with colorectal and breast cancer receiving oral chemotherapy: a randomised controlled trial

    Molassiotis, A., Brearley, S. G., Saunders, M., Craven, O., Wardley, A., Farrell, C., Swindell, R., Todd, C. & Luker, K., 2009, In: Journal of Clinical Oncology. 27, 36, p. 6190-6198 9 p.

    Research output: Contribution to Journal/Magazine › Journal article

  17. Published

    The ethics of the secondary analysis and continuing usage of qualitative data.

    Grinyer, A., 2009, In: Social Research Update. Issue, p. 1-4 4 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    The role of the nurse in palliative care settings in a global context.

    Payne, S., Ingleton, C., Sargeant, A. & Seymour, J., 2009, In: Cancer Nursing Practice. 8, 5, p. 21-26 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Unpublished

    The Social Model of Disability and the Rights Discourse: one and the same? [Invited speaker]

    Thomas, C., 2009, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN › Speech

  20. Published

    Understanding care homes : a research and development perspective.

    Froggatt, K., Davies, S. & Meyer, J., 2009, London: Jessica Kingsley. 272 p.

    Research output: Book/Report/Proceedings › Book

  21. Published

    Use of UK voluntary sector cancer support services

    Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 2009, In: European Journal of Palliative Care. 16, p. 99-99 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  22. Published

    White paper on standards and norms for hospice and palliative care in Europe : part 1.

    Radbruch, L. & Payne, S., 2009, In: European Journal of Palliative Care. 16, 6, p. 278-289 12 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    Why do family carers in end of life care decline support interventions?

    O'Brien, T., Payne, S., Ingleton, C. & Nolan, M., 2009, In: European Journal of Palliative Care. 16, p. 168-168 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. 2008
  25. Published

    Exploring the research education needs of hospices : a focus group study conducted in Manchester and London.

    Payne, S., Turner, M., Kerr, C., Amir, Z. & Brearley, S., 12/2008, Help the Hospices.

    Research output: Working paper

  26. Published

    Narrative research in palliative care.

    Rolls, L. & Payne, S., 12/2008, In: International Journal of Palliative Nursing. 14, 12, p. 576-577 2 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom

    Turner, M. & Payne, S., 12/2008, In: Palliative Medicine. 22, 8, p. 973-974 2 p.

    Research output: Contribution to Journal/Magazine › Journal article

  28. Published

    Older Chinese people's views on food : implications for supportive cancer care.

    Payne, S., Seymour, J., Chapman, A. & Holloway, M., 11/2008, In: Ethnicity and Health. 13, 5, p. 497-514 18 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  29. Published

    Older people's views of a good death in heart failure : implications for palliative care provision.

    Gott, M., Small, N., Barnes, S., Payne, S. & Seamark, D., 10/2008, In: Social Science and Medicine. 67, 7, p. 1113-1121 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  30. Published

    Ethnicity and cancer : examining psychosocial trnasitions for older people : final report.

    Payne, S., Chapman, A., Froggatt, K., Gott, M. & Chung, M., 09/2008, Dimbleby Cancer Care.

    Research output: Working paper

  31. Published

    'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis

    Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S. & Hewlett, S., 09/2008, In: Musculoskeletal Care. 6, 3, p. 155-167 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  32. Published

    Educational needs : palliative care link nurses in care homes.

    Partington, L., Langhorn, H. & Froggatt, K., 08/2008, In: End of Life Care. 2, 3, p. 65-70 6 p.

    Research output: Contribution to Journal/Magazine › Journal article

  33. Published

    Heart failure nurses' experiences of specialist palliative care.

    Sargeant, A., Payne, S., Seymour, J. & Ingleton, C., 08/2008, In: End of Life Care. 2, 3, p. 55-60 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  34. Published

    The voluntary contribution to UK childhood bereavement services : locating the place and experiences of unpaid staff.

    Rolls, L. & Payne, S., 08/2008, In: Mortality. 13, 3, p. 258-281 24 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  35. Published

    Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.

    Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.

    Research output: Working paper

  36. Published

    Developing narrative research in supportive and palliative care : the focus on illness narratives.

    Bingley, A. F., Thomas, C., Brown, J., Reeve, J. & Payne, S., 06/2008, In: Palliative Medicine. 22, 5, p. 653-658 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  37. Published

    Listening to the experts : a summary od 'user involvement in palliative care : a scoping study'

    Payne, S., Gott, M., Small, N. & Olivier, D., 05/2008, National Council for Palliative Care.

    Research output: Working paper

  38. Published

    Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy

    Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., Lowe, R., Greenwood, R., Kirwan, J. & RASE Study Group, 03/2008, In: Musculoskeletal Care. 6, 1, p. 49-67 19 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  39. Published

    The role of psychology in end of life care.

    Kalus, C., Beloff, H., Brennan, J., McWilliams, E., Payne, S., Royan, L. & Russell, P., 03/2008, London: The Professional Board of the British Psychological Society.

    Research output: Working paper

  40. Published

    End of life care for older people in community hospitals.

    Kerr, C., Payne, S., Hawker, S., Seamark, D., Jarratt, N., Roberts, H. & Smith, H., 02/2008, In: End of Life Care. 2, 1

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  41. Published

    Original revised end evaluation report for Lincolnshire May 2007-October 2007.

    Payne, S., Seymour, J., Ingleton, C., Sargeant, A. & Kidd, H., 02/2008, Marie Curie Cancer Care.

    Research output: Working paper

  42. Published

    Palliative care in acute stroke : final report.

    Payne, S., Addington-Hall, J., Burton, C. R., Jones, A., Hendra, T. & Stevens, T., 02/2008, The Stroke Association.

    Research output: Working paper

  43. Published

    Physical therapies for reducing and controlling lymphoedema of the limbs.

    Preston, N., Seers, K. & Mortimer, P. S., 02/2008, In: Cochrane Database of Systematic Reviews. 2008, 3

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  44. Published

    Report on evaluation of Richard Dimbleby Cancer Information and Support Service.

    Payne, S., Hawker, S. & Kerr, C., 02/2008, Dimbleby Cancer Care.

    Research output: Working paper

  45. Published

    Structured end evaluation report for Lincolnshire, January 2008.

    Payne, S., Seymour, J., Ingleton, C., Sargeant, A. & Kidd, H., 02/2008, Marie Curie Cancer Care.

    Research output: Working paper

  46. Published

    The UK post-mortem organ retention crisis : a qualitative study of its impact on partners.

    Sque, M., Long, T., Payne, S., Roche, W. R. & Speck, P., 02/2008, In: Journal of the Royal Society of Medicine. 101, 2, p. 71-77 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  47. Published

    Why relatives do not donate organs for transplant : 'sacrifice' or 'gift of life'?

    Sque, M., Long, T., Payne, S. & Allardyce, D., 01/2008, In: Journal of Advanced Nursing. 61, 2, p. 134-144 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. Published

    A Review of Patient Self-report Tools for Chemotherapy-induced Nausea and Vomiting

    Brearley, S. G., Clements, C. & Molassiotis, A., 2008, In: Supportive Care in Cancer. 16, p. 1213-1229 17 p.

    Research output: Contribution to Journal/Magazine › Journal article

  49. Published

    A study of the provision of care for older people dying in acute and community hospitals and nursing homes in Ireland. Towards a quality of life focus.

    Larkin, P., Casey, D., Leime, A., O'Shea, E., Murphy, K., Froggatt, K. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 542-542 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  50. Published

    An Australian survey of palliative care and hospice bereavement services.

    Abbott, J., O'Connor, M. & Payne, S., 2008, In: Australian Journal of Cancer Nursing. 9, 2, p. 12-17 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  51. Published

    Assessing the family and caregivers.

    Payne, S. & Hudson, P., 2008, Palliative medicine. Walsh, D. (ed.). Philadelphia: Saunders Elsevier, p. 320-325 6 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  52. Published

    Barriers to care at home at the end of life: the role of transport between care settings.

    Sargeant, A. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 471-471 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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