International Observatory on End of Life Care

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Unpublished
Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)
Preston, N., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
A survey of practice in malignant ascites discussed in relation to findings from a systematic review of the literature (Oral presentation)
Preston, N. & Seers, A., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)
Preston, N., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The development of a nursing strategy for managing malignant ascites (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The role of the research nurse (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Blood transfusions for anaemia in patients with advanced cancer
Preston, N. J., Hurlow, A., Brine, J. & Bennett, M. I., 2012, In: Cochrane Database of Systematic Reviews. n/a, 2, 23 p., CD009007.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
MORECare research methods guidance development: recommendations for statistical methods in palliative and end of life care research
Preston, N., Grande, G., Fayers, P., Pilling, M., Higginson, I. J., Short, V., Anscombe, E., Evans, C. & Benalia, H., 06/2012, In: Palliative Medicine. 26, 4, p. 416-417 2 p., OA42.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
MORECare research methods guidance development: recommendations for presenting results to stakeholders from palliative and end of life care research
Preston, N., Short, V., Grande, G., Anscombe, E., Higginson, I. J., Evans, C., Benalia, H. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 540-541 2 p., P198.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research
Preston, N., Short, V., Hollingworth, W., McCrone, P., Grande, G., Evans, C., Anscombe, E., Benalia, H., Higginson, I. J. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 541 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Strategies to increase participant recruitment to research studies by healthcare professionals (Protocol)
Preston, N., Farquhar, M., Walshe, C., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 2012, In: Cochrane Database of Systematic Reviews. 9
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Overcoming barriers to research in palliative care: results from a consensus exercise
Preston, N., Dunleavy, L., Rigby, J., Griggs, A., Salt, S., Parr, A. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 745-745 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Patient-reported outcome measures for use in gynaecological oncology: a systematic review
Preston, N. J., Wilson, N., Wood, N. J., Brine, J., Ferreira Arcuri, J. & Brearley, S. G., 04/2015, In: BJOG: An International Journal of Obstetrics and Gynaecology. 122, 5, p. 615-622 8 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Strategies designed to help healthcare professionals to recruit participants to research studies (Review)
Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ethical and research governance approval across Europe: Experiences from three European palliative care studies
Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice
Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In: BMC Palliative Care. 19, 8 p., 54.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach
Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.
Research output: Contribution to Journal/Magazine › Comment/debate
Published
Illness perceptions, adjustment to illness, and depression in a palliative care population.
Price, A., Goodwin, L., Rayner, L., Shaw, E., Hansford, P., Sykes, N., Monroe, B., Higginson, I., Hotopf, M. & Lee, W., 31/05/2012, In: Journal of Pain and Symptom Management. 43, 5, p. 819-832 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study
Price, A., Lee, W., Goodwin, L., Rayner, L., Humphreys, R., Hansford, P., Sykes, N., Monroe, B., Higginson, I. & Hotopf, M., 1/09/2011, In: BMJ Supportive & Palliative Care. 1, 2, p. 140-148 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Budapest commitments in China: from desire to action
Qi, M., Yuan, C., Shukui, Q., Guangru, X., Jiejun, W., Aiguo, L., Jiliang, Y., Hong, Q., Yi, C., Payne, S. & Shiying, Y., 2010, In: European Journal of Palliative Care. 17, 5, p. 246-248 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
White paper on standards and norms for hospice and palliative care in Europe : part 1.
Radbruch, L. & Payne, S., 2009, In: European Journal of Palliative Care. 16, 6, p. 278-289 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
White Paper on standards and norms for hospice and palliative care in Europe : part 2.
Radbruch, L. & Payne, S., 2010, In: European Journal of Palliative Care. 17, 1, p. 22-33 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Access to opioid medication in Europe - Letter to the Editor
Radbruch, L., Juenger, S., Mantel-Teeuwisee, A., Gilson, A., Cleary, J., Payne, S. & Scholten, W., 06/2012, In: Journal of Pain and Palliative Care Pharmacotherapy. 26, 2, p. 200-201 2 p.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Access to opioid medication in Europe: final report and recommendations to the Ministries of Health
Radbruch, L. (ed.), Jünger, S., Payne, S. A. & Scholten, W., 11/2014, Bonn: Pallia Med Verlag. 156 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis
Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S. & Hewlett, S., 09/2008, In: Musculoskeletal Care. 6, 3, p. 155-167 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A sociological commentary on the refusal of treatment by patients with cancer.
Radley, A. & Payne, S., 2009, In: Mortality. 14, 4, p. 309-324 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative and end-of-life care in intensive care units in low- and middle-income countries: A systematically constructed scoping review
Rao, S., Salins, N., Joshi, U., Patel, J., Remawi, B., Simha, S., Preston, N. & Walshe, C., 31/10/2022, In: Journal of Critical Care. 71, 13 p., 154115.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Stakeholder Engagement as a Strategy to Enhance Palliative Care Involvement in Intensive Care Units: A Theory of Change Approach
Rao, S., Salins, N., Remawi, B., Rao, S., Shanbaug, V., Arjun, N. R., Bhat, N., Shetty, R., Karanth, S., Gupta, V., Jahan, N., Setlur, R., Simha, S., Walshe, C. & Preston, N., 30/06/2023, In: Journal of Critical Care. 75, 7 p., 154244.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Healing narratives in people with advanced metastatic cancer.
Reeve, J., Lloyd-Willams, M., Dowrick, C. & Payne, S., 04/2006, In: Palliative Medicine. 20, 3, p. 374 Abstract number: 522.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards a re-conceptualisation of the management of distress in palliative care patients : the self-integrity model.
Reeve, J., Lloyd-Williams, M., Payne, S. & Dowrick, C., 04/2009, In: Progress in Palliative Care. 17, 2, p. 51-60 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Insights into the impact of clinical encounters gained from personal accounts of living with advanced cancer.
Reeve, J., Lloyd-Williams, M., Payne, S. & Dowrick, C., 10/2009, In: Primary Health Care Research and Development. 10, 4, p. 357-367 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Revisiting biographical disruption : exploring individual embodied illness experience in people with terminal cancer.
Reeve, J., Lloyd-Williams, M., Payne, S. & Dowrick, C., 03/2010, In: Health. 14, 2, p. 178-195 18 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of adults with Huntington’s disease on assisted dying: a qualitative exploration
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Adult Bereavement Support in Hospices: Sources of satisfaction amongst bereaved people.
Reid, D., Field, D., Payne, S. & Relf, M., 03/2006, In: Palliative Medicine. 20, 2, p. 145-146 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating bereavement support to older people by hospices : an update.
Reid, D., Payne, S., Field, D. & Relf, M., 2004, In: READ (Research Endeavours and Dissemination), School of Nursing & Midwifery, University of Sheffield.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of volunteer counsellors for bereavement support in a study of bereavement services in UK hospices.
Reid, D., Field, D., Payne, S. & Relf, M., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Approaches to offering adult bereavement support by hospice chaplains to people of diverse faiths in the UK.
Reid, D., Field, D., Payne, S. & Relf, M., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Adult bereavement in five English hospices : participants, organisations and pre-bereavement support.
Reid, D., Payne, S., Field, D. & Relf, M., 2006, In: International Journal of Palliative Nursing. 12, 7, p. 320-327 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A systematically structured review of biomarkers of dying in cancer patients in the last months of life: An exploration of the biology of dying
Reid, V., McDonald, R., Nwosu, A., Mason, S., Probert, C., Ellershaw, J. & Coyle, S., 6/04/2017, In: PLoS ONE. 12, 4, 31 p., e0175123.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care in long-term care settings for older people: findings from an EAPC taskforce
Reitinger, E., Froggatt, K., Brazil, K., Heimerl, K., Hockley, J., Kunz, R., Morbey, H., Parker, D. & Husebo, B. S., 09/2013, In: European Journal of Palliative Care. 20, 5, p. 251-253 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis
Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review
Richardson, A., Addington-Hall, J., Amir, Z., Foster, C., Stark, D., Armes, J., Brearley, S. G., Hodges, L., Hook, J., Jarrett, N., Stamataki, Z., Scott, I., Walker, J., Ziegler, L. & Sharpe, M., 3/11/2011, In: British Journal of Cancer. 105, p. S82-S94 13 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study
Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What evidence is there about the specific environmental needs of older people who are near the end of life and are cared for in hospices or similar institutions? a literature review.
Rigby, J., Payne, S. & Froggatt, K., 04/2010, In: Palliative Medicine. 24, 3, p. 268-285 18 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 5/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 6/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
What evidence is there about the specific environmental needs of older people who are near the end of life and are cared for in hospices or similar institutions: a literature review
Rigby, J., 7/05/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
My Experience as a CECo Scholar
Rigby, J., 10/05/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Improving the Physical Environment for Older In-Patients at the End of Life
Rigby, J., 21/04/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Retaining older staff members in care homes and hospices in England and Australia: the impact of environment
Rigby, J. & O'Connor, M., 05/2012, In: International Journal of Palliative Nursing. 18, 5, p. 235-239 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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