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Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services

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Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services. / Marshall, Paul; Barbrook, John; Collins, Grace et al.
In: BMJ Open, Vol. 14, No. 1, e081188, 31.01.2024.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Marshall, P, Barbrook, J, Collins, G, Foster, S, Glossop, Z, Inkster, C, Jebb, P, Johnston, R, Jones, SH, Khan, H, Lodge, C, Machin, K, Michalak, E, Powell, S, Russell, S, Rycroft-Malone, J, Slade, M, Whittaker, L & Lobban, F 2024, 'Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services', BMJ Open, vol. 14, no. 1, e081188. https://doi.org/10.1136/bmjopen-2023-081188

APA

Marshall, P., Barbrook, J., Collins, G., Foster, S., Glossop, Z., Inkster, C., Jebb, P., Johnston, R., Jones, S. H., Khan, H., Lodge, C., Machin, K., Michalak, E., Powell, S., Russell, S., Rycroft-Malone, J., Slade, M., Whittaker, L., & Lobban, F. (2024). Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services. BMJ Open, 14(1), Article e081188. https://doi.org/10.1136/bmjopen-2023-081188

Vancouver

Marshall P, Barbrook J, Collins G, Foster S, Glossop Z, Inkster C et al. Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services. BMJ Open. 2024 Jan 31;14(1):e081188. doi: 10.1136/bmjopen-2023-081188

Author

Marshall, Paul ; Barbrook, John ; Collins, Grace et al. / Designing a Library of Lived Experience for Mental Health : integrated realist synthesis and experience-based co-design study in UK mental health services. In: BMJ Open. 2024 ; Vol. 14, No. 1.

Bibtex

@article{99bb75e3a18243ecb0d7e15436011c8d,
title = "Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services",
abstract = "OBJECTIVE: Living Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM).DESIGN: Integrated realist synthesis and experience-based co-design.SETTING: Ten online workshops with participants based in the North of England.PARTICIPANTS: Thirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles.RESULTS: Database searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held.CONCLUSIONS: The LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers.TRIAL REGISTRATION NUMBER: PROSPERO CRD42022312789.",
author = "Paul Marshall and John Barbrook and Grace Collins and Sheena Foster and Zoe Glossop and Clare Inkster and Paul Jebb and Rose Johnston and Jones, {Steven H} and Hameed Khan and Christopher Lodge and Karen Machin and Erin Michalak and Sarah Powell and Samantha Russell and Jo Rycroft-Malone and Mike Slade and Lesley Whittaker and Fiona Lobban",
year = "2024",
month = jan,
day = "31",
doi = "10.1136/bmjopen-2023-081188",
language = "English",
volume = "14",
journal = "BMJ Open",
issn = "2044-6055",
publisher = "BMJ Publishing Group Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - Designing a Library of Lived Experience for Mental Health

T2 - integrated realist synthesis and experience-based co-design study in UK mental health services

AU - Marshall, Paul

AU - Barbrook, John

AU - Collins, Grace

AU - Foster, Sheena

AU - Glossop, Zoe

AU - Inkster, Clare

AU - Jebb, Paul

AU - Johnston, Rose

AU - Jones, Steven H

AU - Khan, Hameed

AU - Lodge, Christopher

AU - Machin, Karen

AU - Michalak, Erin

AU - Powell, Sarah

AU - Russell, Samantha

AU - Rycroft-Malone, Jo

AU - Slade, Mike

AU - Whittaker, Lesley

AU - Lobban, Fiona

PY - 2024/1/31

Y1 - 2024/1/31

N2 - OBJECTIVE: Living Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM).DESIGN: Integrated realist synthesis and experience-based co-design.SETTING: Ten online workshops with participants based in the North of England.PARTICIPANTS: Thirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles.RESULTS: Database searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held.CONCLUSIONS: The LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers.TRIAL REGISTRATION NUMBER: PROSPERO CRD42022312789.

AB - OBJECTIVE: Living Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM).DESIGN: Integrated realist synthesis and experience-based co-design.SETTING: Ten online workshops with participants based in the North of England.PARTICIPANTS: Thirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles.RESULTS: Database searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held.CONCLUSIONS: The LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers.TRIAL REGISTRATION NUMBER: PROSPERO CRD42022312789.

U2 - 10.1136/bmjopen-2023-081188

DO - 10.1136/bmjopen-2023-081188

M3 - Journal article

C2 - 38296304

VL - 14

JO - BMJ Open

JF - BMJ Open

SN - 2044-6055

IS - 1

M1 - e081188

ER -