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Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

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Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers. / Bavelaar, Laura; Nicula, Maria; Morris, Sophie et al.
In: Patient Education and Counseling, Vol. 105, No. 4, 30.04.2022, p. 965-973.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Bavelaar, L, Nicula, M, Morris, S, Kaasalainen, S, Achterberg, W, Loucka, M, Vickova, K, Thompson, G, Cornally, N, Hartigan, I, Harding, A, Preston, N, Walshe, C, Cousins, E, Harrison Dening, K, De Vries, K, Brazil, K & van der Steen, JT 2022, 'Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.', Patient Education and Counseling, vol. 105, no. 4, pp. 965-973. https://doi.org/10.1016/j.pec.2021.07.031

APA

Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K., & van der Steen, J. T. (2022). Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers. Patient Education and Counseling, 105(4), 965-973. https://doi.org/10.1016/j.pec.2021.07.031

Vancouver

Bavelaar L, Nicula M, Morris S, Kaasalainen S, Achterberg W, Loucka M et al. Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers. Patient Education and Counseling. 2022 Apr 30;105(4):965-973. Epub 2022 Apr 14. doi: 10.1016/j.pec.2021.07.031

Author

Bavelaar, Laura ; Nicula, Maria ; Morris, Sophie et al. / Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers. In: Patient Education and Counseling. 2022 ; Vol. 105, No. 4. pp. 965-973.

Bibtex

@article{6335b8c06eb640a789078a506b561f1d,
title = "Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.",
abstract = "ObjectiveWe aimed to develop question prompt lists (QPLs) for family caregivers of nursing home residents with advanced dementia in the context of a study involving Canada, the Czech Republic, Italy, the Netherlands, the United Kingdom and Ireland, and to explore cross-national differences. QPLs can encourage family caregivers to ask questions about their relative{\textquoteright}s end-of-life care.MethodsWe used nominal group methods to create country-specific QPLs. Family caregivers read an information booklet about end-of-life care for people with dementia, and generated questions to ask healthcare professionals. They also selected questions from a shortlist. We analyzed and compared the QPLs using content analysis.ResultsFour to 20 family caregivers per country were involved. QPLs ranged from 15 to 24 questions. A quarter (24%) of the questions appeared in more than one country{\textquoteright}s QPL. One question was included in all QPLs: “Can you tell me more about palliative care in dementia?”.ConclusionFamily caregivers have many questions about dementia palliative care, but the local context may influence which questions specifically. Local end-user input is thus important to customize QPLs.Practice implicationsPrompts for family caregivers should attend to the unique information preferences among different countries. Further research is needed to evaluate the QPLs{\textquoteright} use.",
keywords = "Dementia, Family caregiver, Patient engagement, Shared decision making, End-of-life care, Nursing home",
author = "Laura Bavelaar and Maria Nicula and Sophie Morris and Sharon Kaasalainen and Wilco Achterberg and Martin Loucka and Karolina Vickova and Genevieve Thompson and Nicola Cornally and Irene Hartigan and Andrew Harding and Nancy Preston and Catherine Walshe and Emily Cousins and {Harrison Dening}, Karen and {De Vries}, Kay and Kevin Brazil and {van der Steen}, {Jenny T.}",
year = "2022",
month = apr,
day = "30",
doi = "10.1016/j.pec.2021.07.031",
language = "English",
volume = "105",
pages = "965--973",
journal = "Patient Education and Counseling",
issn = "0738-3991",
publisher = "Elsevier Ireland Ltd",
number = "4",

}

RIS

TY - JOUR

T1 - Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

AU - Bavelaar, Laura

AU - Nicula, Maria

AU - Morris, Sophie

AU - Kaasalainen, Sharon

AU - Achterberg, Wilco

AU - Loucka, Martin

AU - Vickova, Karolina

AU - Thompson, Genevieve

AU - Cornally, Nicola

AU - Hartigan, Irene

AU - Harding, Andrew

AU - Preston, Nancy

AU - Walshe, Catherine

AU - Cousins, Emily

AU - Harrison Dening, Karen

AU - De Vries, Kay

AU - Brazil, Kevin

AU - van der Steen, Jenny T.

PY - 2022/4/30

Y1 - 2022/4/30

N2 - ObjectiveWe aimed to develop question prompt lists (QPLs) for family caregivers of nursing home residents with advanced dementia in the context of a study involving Canada, the Czech Republic, Italy, the Netherlands, the United Kingdom and Ireland, and to explore cross-national differences. QPLs can encourage family caregivers to ask questions about their relative’s end-of-life care.MethodsWe used nominal group methods to create country-specific QPLs. Family caregivers read an information booklet about end-of-life care for people with dementia, and generated questions to ask healthcare professionals. They also selected questions from a shortlist. We analyzed and compared the QPLs using content analysis.ResultsFour to 20 family caregivers per country were involved. QPLs ranged from 15 to 24 questions. A quarter (24%) of the questions appeared in more than one country’s QPL. One question was included in all QPLs: “Can you tell me more about palliative care in dementia?”.ConclusionFamily caregivers have many questions about dementia palliative care, but the local context may influence which questions specifically. Local end-user input is thus important to customize QPLs.Practice implicationsPrompts for family caregivers should attend to the unique information preferences among different countries. Further research is needed to evaluate the QPLs’ use.

AB - ObjectiveWe aimed to develop question prompt lists (QPLs) for family caregivers of nursing home residents with advanced dementia in the context of a study involving Canada, the Czech Republic, Italy, the Netherlands, the United Kingdom and Ireland, and to explore cross-national differences. QPLs can encourage family caregivers to ask questions about their relative’s end-of-life care.MethodsWe used nominal group methods to create country-specific QPLs. Family caregivers read an information booklet about end-of-life care for people with dementia, and generated questions to ask healthcare professionals. They also selected questions from a shortlist. We analyzed and compared the QPLs using content analysis.ResultsFour to 20 family caregivers per country were involved. QPLs ranged from 15 to 24 questions. A quarter (24%) of the questions appeared in more than one country’s QPL. One question was included in all QPLs: “Can you tell me more about palliative care in dementia?”.ConclusionFamily caregivers have many questions about dementia palliative care, but the local context may influence which questions specifically. Local end-user input is thus important to customize QPLs.Practice implicationsPrompts for family caregivers should attend to the unique information preferences among different countries. Further research is needed to evaluate the QPLs’ use.

KW - Dementia

KW - Family caregiver

KW - Patient engagement

KW - Shared decision making

KW - End-of-life care

KW - Nursing home

U2 - 10.1016/j.pec.2021.07.031

DO - 10.1016/j.pec.2021.07.031

M3 - Journal article

VL - 105

SP - 965

EP - 973

JO - Patient Education and Counseling

JF - Patient Education and Counseling

SN - 0738-3991

IS - 4

ER -