Home > Research > Publications & Outputs > Experience of Caregivers Supporting a Patient t...

Electronic data

  • Lowers JPM manuscript-VSED-FINAL

    Rights statement: Final publication is available from Mary Ann Liebert, Inc., publishers https://doi.org/10.1089/jpm.2020.0223

    Accepted author manuscript, 248 KB, PDF document

    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License


Text available via DOI:

View graph of relations

Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

Research output: Contribution to Journal/MagazineJournal articlepeer-review

<mark>Journal publication date</mark>16/02/2021
<mark>Journal</mark>Journal of Palliative Medicine
Issue number3
Number of pages6
Pages (from-to)376-381
Publication StatusPublished
Early online date9/07/20
<mark>Original language</mark>English


Background: Voluntarily stopping eating and drinking (VSED) is an ongoing voluntary choice to forego food and hydration in an effort to hasten death. Ongoing caregiving is necessary as patients become weak and lose focus as a result of dehydration, but little is known about the process of supporting a patient through VSED.

Objective: To explore the experiences of caregivers who supported a patient through VSED.

Methods: Qualitative study with thematic analysis of transcripts of semistructured interviews with 24 U.S. caregivers for 20 individuals who had attempted VSED.

Results: Analysis produced four themes: (1) Caregivers believe that VSED is the best death available to the patient. (2) Caregivers act as advocates and worry that the patient's goals will be challenged by health care professionals, the community, or legal authorities; obtaining support from a hospice is an important way to legitimize VSED. (3) Through the VSED process itself, caregivers carry the responsibility for the patient's success as the patient becomes weaker and loses focus. (4) Because there is no social script to guide the VSED process, caregivers choose what roles to play during VSED, such as focusing on physical care or being emotionally present as the patient's spouse or child.

Conclusions: Caregivers face unique challenges in helping patients undertake VSED. Many are uncertain about whether they will receive support from clinicians or the community. Support from health professionals may improve caregiver confidence and reduce worry.

Bibliographic note

Final publication is available from Mary Ann Liebert, Inc., publishers https://doi.org/10.1089/jpm.2020.0223