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Ghosts in the Machinery: Living With and Beyond Radiotherapy Treatment for Gynaecological Cancer

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Ghosts in the Machinery: Living With and Beyond Radiotherapy Treatment for Gynaecological Cancer. / Stewart, Hilary; Ashmore, Lisa; Kragh-Furbo, Mette et al.
In: Health, Vol. 28, No. 1, 01.01.2024, p. 90 - 107.

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Stewart H, Ashmore L, Kragh-Furbo M, Singleton V, Hutton D. Ghosts in the Machinery: Living With and Beyond Radiotherapy Treatment for Gynaecological Cancer. Health. 2024 Jan 1;28(1):90 - 107. Epub 2022 Jul 28. doi: 10.1177/13634593221114749

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@article{8aaf1b764232405db9942e457050f75b,
title = "Ghosts in the Machinery: Living With and Beyond Radiotherapy Treatment for Gynaecological Cancer",
abstract = "This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring legacies of cancer and {\textquoteleft}neglected matters{\textquoteright} in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are {\textquoteleft}out of the other side of cancer{\textquoteright} once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These {\textquoteleft}ghosts{\textquoteright} manifest in chronic states of unsettledness that are temporarily relieved by individualised {\textquoteleft}fixes{\textquoteright}, such as mobilisation of {\textquoteleft}mind over matter{\textquoteright} discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to {\textquoteleft}neglected matters{\textquoteright} of post-treatment trajectories differently.",
keywords = "cancer, haunting, radiotherapy, treatment effects",
author = "Hilary Stewart and Lisa Ashmore and Mette Kragh-Furbo and Vicky Singleton and Daniel Hutton",
year = "2024",
month = jan,
day = "1",
doi = "10.1177/13634593221114749",
language = "English",
volume = "28",
pages = "90 -- 107",
journal = "Health",
issn = "1363-4593",
publisher = "SAGE Publications Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - Ghosts in the Machinery

T2 - Living With and Beyond Radiotherapy Treatment for Gynaecological Cancer

AU - Stewart, Hilary

AU - Ashmore, Lisa

AU - Kragh-Furbo, Mette

AU - Singleton, Vicky

AU - Hutton, Daniel

PY - 2024/1/1

Y1 - 2024/1/1

N2 - This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring legacies of cancer and ‘neglected matters’ in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are ‘out of the other side of cancer’ once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These ‘ghosts’ manifest in chronic states of unsettledness that are temporarily relieved by individualised ‘fixes’, such as mobilisation of ‘mind over matter’ discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to ‘neglected matters’ of post-treatment trajectories differently.

AB - This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring legacies of cancer and ‘neglected matters’ in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are ‘out of the other side of cancer’ once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These ‘ghosts’ manifest in chronic states of unsettledness that are temporarily relieved by individualised ‘fixes’, such as mobilisation of ‘mind over matter’ discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to ‘neglected matters’ of post-treatment trajectories differently.

KW - cancer

KW - haunting

KW - radiotherapy

KW - treatment effects

U2 - 10.1177/13634593221114749

DO - 10.1177/13634593221114749

M3 - Journal article

C2 - 35900050

VL - 28

SP - 90

EP - 107

JO - Health

JF - Health

SN - 1363-4593

IS - 1

ER -