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  • PatientEducationCounselRevised

    Rights statement: This is the author’s version of a work that was accepted for publication in Patient Education and Counseling. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Patient Education and Counseling, 93, 3, 2013 DOI: 10.1016/j.pec.2013.01.009

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How do people with asthma use Internet sites containing patient experiences?

Research output: Contribution to journalJournal articlepeer-review

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<mark>Journal publication date</mark>12/2013
<mark>Journal</mark>Patient Education and Counseling
Issue number3
Volume93
Number of pages5
Pages (from-to)439-443
Publication StatusPublished
Early online date15/02/13
<mark>Original language</mark>English

Abstract

Objective
To understand how people engage with websites containing patient authored accounts of health and illness. To examine how people with asthma navigate their way through this information and make use of the patient experiences they find.

Methods
Twenty-nine patients with diagnoses ranging from mild to severe asthma were shown a range of websites, some containing patient experiences, and selected two sites to explore further. They discussed their choices in a series of focus groups and interviews.

Results
Participants were influenced initially by the design quality of the sites and were subsequently drawn to websites containing patient experiences but only when contributions were from similar people offering ‘relevant stories’. The experiences reminded participants of the serious nature of the disease, provided new insights into the condition and an opportunity to reflect upon the role of the disease in their lives.

Conclusion
For people with asthma websites containing other patients’ personal experiences can serve as a useful information resource, refresh their knowledge and ensure their health behaviours are appropriate and up-to-date.

Practice implications
Health professionals should consider referring asthma patients to appropriate websites whilst being aware that online experiences are most engaging when they resonate with the participants own situation.