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“I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This": Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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“I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This": Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention. / Atkinson, Thomas; Brown, Emma; Jones, Georgina et al.
In: Healthcare, Vol. 11, No. 3, 399, 31.01.2023.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Atkinson, T, Brown, E, Jones, G, Sage, K & Wang, X 2023, '“I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This": Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention', Healthcare, vol. 11, no. 3, 399. https://doi.org/10.3390/healthcare11030399

APA

Atkinson, T., Brown, E., Jones, G., Sage, K., & Wang, X. (2023). “I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This": Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention. Healthcare, 11(3), Article 399. https://doi.org/10.3390/healthcare11030399

Vancouver

Atkinson T, Brown E, Jones G, Sage K, Wang X. “I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This": Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention. Healthcare. 2023 Jan 31;11(3):399. doi: 10.3390/healthcare11030399

Author

Atkinson, Thomas ; Brown, Emma ; Jones, Georgina et al. / “I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This" : Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention. In: Healthcare. 2023 ; Vol. 11, No. 3.

Bibtex

@article{4dafed5d35b04c889a7c4897d97d9b8f,
title = "“I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This{"}: Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention",
abstract = "Stroke survivors and informal caregivers experience high levels of stress and anxiety, linked to heightened risk of secondary stroke in survivors. Relaxation and mindfulness could reduce stress and anxiety; being most effective when tailored to the target populations. Aims of the PPI include to: (1) consult on possible alterations to an existing relaxation and mindfulness intervention, delivered via YouTube/DVD and (2) discuss relevance and preference of prompts and cues designed to facilitate the daily practice of the intervention. Eleven UK PPI contributors were consulted during 2020: four stroke survivors (F = 2, M = 2), three caregivers (F = 1, M = 2), and four HCPs (F = 4) (range = 23-63 years). Contributors watched the existing intervention and provided feedback via online discussions. Transcripts were analysed using thematic analysis. Five themes were identified, highlighting several necessary alterations to the intervention: {"}Who represents the stroke population?{"}; {"}The paradox of age{"}; {"}Specifically selected language{"}; {"}Visual presentation of the intervention{"}; and the {"}Audio qualities{"}. Contributors ranked the prompts and cues in order of preference with setting alarms and email alerts as the most popular. The PPI consultations resulted in several alterations enabling a revised version of the intervention. Including a PPI consultation at an early stage of the research improves the relevance and appropriateness of the research. The revised intervention is more representative of the stroke population thus more likely to be practised by survivors and caregivers, which will enhance the extent of effectiveness, reducing the risk of a secondary stroke.",
keywords = "patient and public involvement, PPI, stroke, secondary prevention, relaxation, mindfulness, tailored techniques, prompts and cues, behaviour change",
author = "Thomas Atkinson and Emma Brown and Georgina Jones and Karen Sage and Xu Wang",
year = "2023",
month = jan,
day = "31",
doi = "10.3390/healthcare11030399",
language = "English",
volume = "11",
journal = "Healthcare",
issn = "2227-9032",
publisher = "Multidisciplinary Digital Publishing Institute (MDPI)",
number = "3",

}

RIS

TY - JOUR

T1 - “I Assumed It Would Be Somebody Who Had a Stroke That Was Doing This"

T2 - Views of Stroke Survivors, Caregivers, and Health Professionals on Tailoring a Relaxation and Mindfulness Intervention

AU - Atkinson, Thomas

AU - Brown, Emma

AU - Jones, Georgina

AU - Sage, Karen

AU - Wang, Xu

PY - 2023/1/31

Y1 - 2023/1/31

N2 - Stroke survivors and informal caregivers experience high levels of stress and anxiety, linked to heightened risk of secondary stroke in survivors. Relaxation and mindfulness could reduce stress and anxiety; being most effective when tailored to the target populations. Aims of the PPI include to: (1) consult on possible alterations to an existing relaxation and mindfulness intervention, delivered via YouTube/DVD and (2) discuss relevance and preference of prompts and cues designed to facilitate the daily practice of the intervention. Eleven UK PPI contributors were consulted during 2020: four stroke survivors (F = 2, M = 2), three caregivers (F = 1, M = 2), and four HCPs (F = 4) (range = 23-63 years). Contributors watched the existing intervention and provided feedback via online discussions. Transcripts were analysed using thematic analysis. Five themes were identified, highlighting several necessary alterations to the intervention: "Who represents the stroke population?"; "The paradox of age"; "Specifically selected language"; "Visual presentation of the intervention"; and the "Audio qualities". Contributors ranked the prompts and cues in order of preference with setting alarms and email alerts as the most popular. The PPI consultations resulted in several alterations enabling a revised version of the intervention. Including a PPI consultation at an early stage of the research improves the relevance and appropriateness of the research. The revised intervention is more representative of the stroke population thus more likely to be practised by survivors and caregivers, which will enhance the extent of effectiveness, reducing the risk of a secondary stroke.

AB - Stroke survivors and informal caregivers experience high levels of stress and anxiety, linked to heightened risk of secondary stroke in survivors. Relaxation and mindfulness could reduce stress and anxiety; being most effective when tailored to the target populations. Aims of the PPI include to: (1) consult on possible alterations to an existing relaxation and mindfulness intervention, delivered via YouTube/DVD and (2) discuss relevance and preference of prompts and cues designed to facilitate the daily practice of the intervention. Eleven UK PPI contributors were consulted during 2020: four stroke survivors (F = 2, M = 2), three caregivers (F = 1, M = 2), and four HCPs (F = 4) (range = 23-63 years). Contributors watched the existing intervention and provided feedback via online discussions. Transcripts were analysed using thematic analysis. Five themes were identified, highlighting several necessary alterations to the intervention: "Who represents the stroke population?"; "The paradox of age"; "Specifically selected language"; "Visual presentation of the intervention"; and the "Audio qualities". Contributors ranked the prompts and cues in order of preference with setting alarms and email alerts as the most popular. The PPI consultations resulted in several alterations enabling a revised version of the intervention. Including a PPI consultation at an early stage of the research improves the relevance and appropriateness of the research. The revised intervention is more representative of the stroke population thus more likely to be practised by survivors and caregivers, which will enhance the extent of effectiveness, reducing the risk of a secondary stroke.

KW - patient and public involvement

KW - PPI

KW - stroke

KW - secondary prevention

KW - relaxation

KW - mindfulness

KW - tailored techniques

KW - prompts and cues

KW - behaviour change

U2 - 10.3390/healthcare11030399

DO - 10.3390/healthcare11030399

M3 - Journal article

C2 - 36766974

VL - 11

JO - Healthcare

JF - Healthcare

SN - 2227-9032

IS - 3

M1 - 399

ER -