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‘It's a double whammy’: A qualitative study of illness uncertainty in individuals with Parkinson's disease in the context of COVID-19

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‘It's a double whammy’ : A qualitative study of illness uncertainty in individuals with Parkinson's disease in the context of COVID-19. / Simpson, J.; Zarotti, N.; Varey, S.; Anestis, E.; Holland, C.; Murray, C.; Eccles, F.J.R.

In: Chronic Illness, 15.09.2021.

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@article{fb9a971583e840ed9e492961aee6bc80,
title = "{\textquoteleft}It's a double whammy{\textquoteright}: A qualitative study of illness uncertainty in individuals with Parkinson's disease in the context of COVID-19",
abstract = "Objectives: The purpose of this study was to explore the experiences of individuals with Parkinson's through the theoretical lens of illness uncertainty during the first UK full lockdown period (March–June 2020) put in place due outbreak of the COVID-19 pandemic. Methods: Individual semi-structured interviews were carried out via telephone in May 2020 with 10 individuals with Parkinson's (six men and four women) recruited from Parkinson's UK. Interviews were recorded and transcribed verbatim, and thematic analysis was adopted to analyse the resulting data. Results: Four overarching themes emerged from the interview data: (1) COVID-19 amplifying existing fears and difficulties around the uncertainty of Parkinson's; (2) practical and psychological efforts to manage uncertainty; (3) benefit-finding as a way of acknowledging the positives of lockdown; (4) risk and future management in the context of uncertainty. Discussion: Participants reported a range of implicit and explicit strategies to cope with the {\textquoteleft}double whammy{\textquoteright} of uncertainty caused by having Parkinson's during a global pandemic. While these were generally successful in maintaining well-being, it is important that such successful accounts are used to help inform novel strategies and interventions targeting individuals who might need additional support. ",
keywords = "COVID-19, illness uncertainty, Parkinson{\textquoteright}s disease, qualitative",
author = "J. Simpson and N. Zarotti and S. Varey and E. Anestis and C. Holland and C. Murray and F.J.R. Eccles",
year = "2021",
month = sep,
day = "15",
doi = "10.1177/17423953211043101",
language = "English",
journal = "Chronic Illness",
issn = "1742-3953",
publisher = "SAGE Publications Ltd",

}

RIS

TY - JOUR

T1 - ‘It's a double whammy’

T2 - A qualitative study of illness uncertainty in individuals with Parkinson's disease in the context of COVID-19

AU - Simpson, J.

AU - Zarotti, N.

AU - Varey, S.

AU - Anestis, E.

AU - Holland, C.

AU - Murray, C.

AU - Eccles, F.J.R.

PY - 2021/9/15

Y1 - 2021/9/15

N2 - Objectives: The purpose of this study was to explore the experiences of individuals with Parkinson's through the theoretical lens of illness uncertainty during the first UK full lockdown period (March–June 2020) put in place due outbreak of the COVID-19 pandemic. Methods: Individual semi-structured interviews were carried out via telephone in May 2020 with 10 individuals with Parkinson's (six men and four women) recruited from Parkinson's UK. Interviews were recorded and transcribed verbatim, and thematic analysis was adopted to analyse the resulting data. Results: Four overarching themes emerged from the interview data: (1) COVID-19 amplifying existing fears and difficulties around the uncertainty of Parkinson's; (2) practical and psychological efforts to manage uncertainty; (3) benefit-finding as a way of acknowledging the positives of lockdown; (4) risk and future management in the context of uncertainty. Discussion: Participants reported a range of implicit and explicit strategies to cope with the ‘double whammy’ of uncertainty caused by having Parkinson's during a global pandemic. While these were generally successful in maintaining well-being, it is important that such successful accounts are used to help inform novel strategies and interventions targeting individuals who might need additional support.

AB - Objectives: The purpose of this study was to explore the experiences of individuals with Parkinson's through the theoretical lens of illness uncertainty during the first UK full lockdown period (March–June 2020) put in place due outbreak of the COVID-19 pandemic. Methods: Individual semi-structured interviews were carried out via telephone in May 2020 with 10 individuals with Parkinson's (six men and four women) recruited from Parkinson's UK. Interviews were recorded and transcribed verbatim, and thematic analysis was adopted to analyse the resulting data. Results: Four overarching themes emerged from the interview data: (1) COVID-19 amplifying existing fears and difficulties around the uncertainty of Parkinson's; (2) practical and psychological efforts to manage uncertainty; (3) benefit-finding as a way of acknowledging the positives of lockdown; (4) risk and future management in the context of uncertainty. Discussion: Participants reported a range of implicit and explicit strategies to cope with the ‘double whammy’ of uncertainty caused by having Parkinson's during a global pandemic. While these were generally successful in maintaining well-being, it is important that such successful accounts are used to help inform novel strategies and interventions targeting individuals who might need additional support.

KW - COVID-19

KW - illness uncertainty

KW - Parkinson’s disease

KW - qualitative

U2 - 10.1177/17423953211043101

DO - 10.1177/17423953211043101

M3 - Journal article

JO - Chronic Illness

JF - Chronic Illness

SN - 1742-3953

ER -