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Knowledge or understanding? Informed choice in the context of newborn bloodspot screening.

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Knowledge or understanding? Informed choice in the context of newborn bloodspot screening. / Nicholls, Stuart G.

In: Public Health Ethics, Vol. 3, No. 2, 07.2010, p. 128-136.

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Nicholls, Stuart G. / Knowledge or understanding? Informed choice in the context of newborn bloodspot screening. In: Public Health Ethics. 2010 ; Vol. 3, No. 2. pp. 128-136.

Bibtex

@article{e947242b822f40d7a8d7085686a7cbdc,
title = "Knowledge or understanding? Informed choice in the context of newborn bloodspot screening.",
abstract = "The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.",
keywords = "consent, informed choice, recall, interviews, heel prick",
author = "Nicholls, {Stuart G}",
year = "2010",
month = jul,
doi = "10.1093/phe/phq016",
language = "English",
volume = "3",
pages = "128--136",
journal = "Public Health Ethics",
issn = "1754-9973",
publisher = "Oxford University Press",
number = "2",

}

RIS

TY - JOUR

T1 - Knowledge or understanding? Informed choice in the context of newborn bloodspot screening.

AU - Nicholls, Stuart G

PY - 2010/7

Y1 - 2010/7

N2 - The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.

AB - The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.

KW - consent

KW - informed choice

KW - recall

KW - interviews

KW - heel prick

U2 - 10.1093/phe/phq016

DO - 10.1093/phe/phq016

M3 - Journal article

VL - 3

SP - 128

EP - 136

JO - Public Health Ethics

JF - Public Health Ethics

SN - 1754-9973

IS - 2

ER -