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    Rights statement: http://journals.cambridge.org/action/displayJournal?jid=ASO The final, definitive version of this article has been published in the Journal, Ageing and Society, 31 (3), pp 422-437 2011, © 2011 Cambridge University Press.

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Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'

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Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'. / Molyneaux, Victoria; Butchard, S.; Simpson, Jane et al.
In: Ageing and Society, Vol. 31, No. 3, 04.2011, p. 422-437.

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Molyneaux V, Butchard S, Simpson J, Murray C. Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'. Ageing and Society. 2011 Apr;31(3):422-437. doi: 10.1017/S0144686X10001066

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Molyneaux, Victoria ; Butchard, S. ; Simpson, Jane et al. / Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'. In: Ageing and Society. 2011 ; Vol. 31, No. 3. pp. 422-437.

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@article{fee13b9a36bf4e6189981afaa6ccc2c1,
title = "Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'",
abstract = "This critique of the term {\textquoteleft}carer{\textquoteright} argues that, although developed as a result of well-intentioned and socially-engaged research, it fails the people with whom it is most concerned, that is {\textquoteleft}carers{\textquoteright} and those who are cared for. The paper considers the historical and political development of the term {\textquoteleft}carer{\textquoteright} before examining research in various {\textquoteleft}carer{\textquoteright}-related settings in the United Kingdom, namely mental health, physical and intellectual impairment, cancer and palliative care and older adulthood and dementia. The article concludes that the term {\textquoteleft}carer{\textquoteright} is ineffective and that its continued use should be reconsidered. This conclusion is based on the consistent failure of the term {\textquoteleft}carer{\textquoteright} as a recognisable and valid description of the relationship between {\textquoteleft}carers{\textquoteright} and those for whom they care. Furthermore, use of the term may imply burden and therefore devalue the individual who is cared for and in this way polarises two individuals who would otherwise work together. Consequently, this commentary suggests that descriptions of the caring relationship that focus on the relationship from which it arose would be both more acceptable and useful to those it concerns. Furthermore, a more accessible term may increase uptake of support services currently aimed at {\textquoteleft}carers{\textquoteright}, therefore inadvertently meeting the original aims of the term, that is, to increase support for {\textquoteleft}carers{\textquoteright}.",
keywords = "carers, terminology , critique",
author = "Victoria Molyneaux and S. Butchard and Jane Simpson and Craig Murray",
note = "http://journals.cambridge.org/action/displayJournal?jid=ASO The final, definitive version of this article has been published in the Journal, Ageing and Society, 31 (3), pp 422-437 2011, {\textcopyright} 2011 Cambridge University Press.",
year = "2011",
month = apr,
doi = "10.1017/S0144686X10001066",
language = "English",
volume = "31",
pages = "422--437",
journal = "Ageing and Society",
issn = "0144-686X",
publisher = "Cambridge University Press",
number = "3",

}

RIS

TY - JOUR

T1 - Reconsidering the term 'carer': a critique of the universal adoption of the term 'carer'

AU - Molyneaux, Victoria

AU - Butchard, S.

AU - Simpson, Jane

AU - Murray, Craig

N1 - http://journals.cambridge.org/action/displayJournal?jid=ASO The final, definitive version of this article has been published in the Journal, Ageing and Society, 31 (3), pp 422-437 2011, © 2011 Cambridge University Press.

PY - 2011/4

Y1 - 2011/4

N2 - This critique of the term ‘carer’ argues that, although developed as a result of well-intentioned and socially-engaged research, it fails the people with whom it is most concerned, that is ‘carers’ and those who are cared for. The paper considers the historical and political development of the term ‘carer’ before examining research in various ‘carer’-related settings in the United Kingdom, namely mental health, physical and intellectual impairment, cancer and palliative care and older adulthood and dementia. The article concludes that the term ‘carer’ is ineffective and that its continued use should be reconsidered. This conclusion is based on the consistent failure of the term ‘carer’ as a recognisable and valid description of the relationship between ‘carers’ and those for whom they care. Furthermore, use of the term may imply burden and therefore devalue the individual who is cared for and in this way polarises two individuals who would otherwise work together. Consequently, this commentary suggests that descriptions of the caring relationship that focus on the relationship from which it arose would be both more acceptable and useful to those it concerns. Furthermore, a more accessible term may increase uptake of support services currently aimed at ‘carers’, therefore inadvertently meeting the original aims of the term, that is, to increase support for ‘carers’.

AB - This critique of the term ‘carer’ argues that, although developed as a result of well-intentioned and socially-engaged research, it fails the people with whom it is most concerned, that is ‘carers’ and those who are cared for. The paper considers the historical and political development of the term ‘carer’ before examining research in various ‘carer’-related settings in the United Kingdom, namely mental health, physical and intellectual impairment, cancer and palliative care and older adulthood and dementia. The article concludes that the term ‘carer’ is ineffective and that its continued use should be reconsidered. This conclusion is based on the consistent failure of the term ‘carer’ as a recognisable and valid description of the relationship between ‘carers’ and those for whom they care. Furthermore, use of the term may imply burden and therefore devalue the individual who is cared for and in this way polarises two individuals who would otherwise work together. Consequently, this commentary suggests that descriptions of the caring relationship that focus on the relationship from which it arose would be both more acceptable and useful to those it concerns. Furthermore, a more accessible term may increase uptake of support services currently aimed at ‘carers’, therefore inadvertently meeting the original aims of the term, that is, to increase support for ‘carers’.

KW - carers

KW - terminology

KW - critique

U2 - 10.1017/S0144686X10001066

DO - 10.1017/S0144686X10001066

M3 - Journal article

VL - 31

SP - 422

EP - 437

JO - Ageing and Society

JF - Ageing and Society

SN - 0144-686X

IS - 3

ER -