Rights statement: This is the peer reviewed version of the following article: Robertson, J., Baines, S., Emerson, E. and Hatton, C. (2017), Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review. J Appl Res Intellect Disabil, 30: 1–32. doi:10.1111/jar.12228 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12228 This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
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Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - Service responses to people with intellectual disabilities and epilepsy
T2 - a systematic review
AU - Robertson, Janet
AU - Baines, Susannah
AU - Emerson, Eric
AU - Hatton, Chris
N1 - This is the peer reviewed version of the following article: Robertson, J., Baines, S., Emerson, E. and Hatton, C. (2017), Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review. J Appl Res Intellect Disabil, 30: 1–32. doi:10.1111/jar.12228 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12228 This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
PY - 2017/1
Y1 - 2017/1
N2 - BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.RESULTS: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.CONCLUSION: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.
AB - BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.RESULTS: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.CONCLUSION: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.
KW - epilepsy
KW - intellectual disabilities
KW - service responses
U2 - 10.1111/jar.12228
DO - 10.1111/jar.12228
M3 - Journal article
C2 - 26525459
VL - 30
SP - 1
EP - 32
JO - Journal of Applied Research in Intellectual Disabilities
JF - Journal of Applied Research in Intellectual Disabilities
SN - 1360-2322
IS - 1
ER -