Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - 'Someone to talk to' and 'pain control' : what people expect from a specialist palliative care team.
AU - Jarrett, Nicola
AU - Payne, Sheila
AU - Turner, P.
AU - Hillier, R.
PY - 1999/3
Y1 - 1999/3
N2 - This paper presents a qualitative analysis of a subsample of data from a larger investigation into general practitioner referrals to specialist palliative care services (SPCS). The aim was to identify the expectations and perceptions of patients with advanced cancer and their relatives. Twenty-nine individuals were interviewed (18 patients, 11 relatives). Qualitative analysis of the interview transcripts was undertaken using an approach based on interpretative phenomenological analysis. The results indicated that SPCS were perceived as providing psychosocial services, characterized as ‘support’ and ‘someone to talk to’. SPCS were expected to have ‘expertise in symptom control’, particularly in relation to pain management. The study demonstrated that patients' and relatives' expectations of a referral to SPCS were of psychosocial support and symptom control. It is argued that the implications of this restricted view of SPCS may mean that other salient concerns are not raised by patients and relatives.
AB - This paper presents a qualitative analysis of a subsample of data from a larger investigation into general practitioner referrals to specialist palliative care services (SPCS). The aim was to identify the expectations and perceptions of patients with advanced cancer and their relatives. Twenty-nine individuals were interviewed (18 patients, 11 relatives). Qualitative analysis of the interview transcripts was undertaken using an approach based on interpretative phenomenological analysis. The results indicated that SPCS were perceived as providing psychosocial services, characterized as ‘support’ and ‘someone to talk to’. SPCS were expected to have ‘expertise in symptom control’, particularly in relation to pain management. The study demonstrated that patients' and relatives' expectations of a referral to SPCS were of psychosocial support and symptom control. It is argued that the implications of this restricted view of SPCS may mean that other salient concerns are not raised by patients and relatives.
KW - palliative care • terminal care • patient care • caregivers
U2 - 10.1191/026921699669165706
DO - 10.1191/026921699669165706
M3 - Journal article
VL - 13
SP - 139
EP - 144
JO - Palliative Medicine
JF - Palliative Medicine
SN - 1477-030X
IS - 2
ER -