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Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

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Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study . / Bajwah, Sabrina ; Koffman, Jonathan; Hussein, Jamilla et al.
In: BMJ Supportive and Palliative Care, Vol. 14, No. e1, 30.04.2024, p. e1478-e1487.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Harvard

Bajwah, S, Koffman, J, Hussein, J, Bradshaw, A, Hocaoglu, M, Fraser, L, Oluyase, A, Allwin, C, Dunleavy, L, Preston, N, Cripps, R, Maddocks, M, Sleeman, K, Irene, H, Walshe, C & Murtagh, F 2024, 'Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study ', BMJ Supportive and Palliative Care, vol. 14, no. e1, pp. e1478-e1487. https://doi.org/10.1136/ bmjspcare-2021-003083

APA

Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C., & Murtagh, F. (2024). Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study . BMJ Supportive and Palliative Care, 14(e1), e1478-e1487. https://doi.org/10.1136/ bmjspcare-2021-003083

Vancouver

Bajwah S, Koffman J, Hussein J, Bradshaw A, Hocaoglu M, Fraser L et al. Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study . BMJ Supportive and Palliative Care. 2024 Apr 30;14(e1):e1478-e1487. Epub 2021 Sept 12. doi: 10.1136/ bmjspcare-2021-003083

Author

Bajwah, Sabrina ; Koffman, Jonathan ; Hussein, Jamilla et al. / Specialist palliative care services response to ethnic minority groups with COVID-19 : equal but inequitable—an observational study . In: BMJ Supportive and Palliative Care. 2024 ; Vol. 14, No. e1. pp. e1478-e1487.

Bibtex

@article{b4c0c43de072448aaca3ab286b1f9820,
title = "Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study ",
abstract = "Objectives To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19.Methods Cross-sectional online survey of UK palliative care services response to COVID-19. Quantitative data were summarised descriptively and χ2 tests used to explore relationships between categorical variables. Free text comments were analysed using reflexive thematic analysis.Results 277 UK services responded. 168 included hospice teams (76% of all UK hospice teams). Services supporting those from ethnic minority groups were more likely to include hospital (p<0.001) and less likely to include hospice (p<0.001) or home care teams (p=0.008). 34% (93/277) of services had cared for patients with COVID-19 or families from ethnic minority groups. 66% (61/93) of these services stated no difference in how they supported or reached these groups during the pandemic.Three themes demonstrated impact of policy introduced during the pandemic, including: disproportionate adverse impact of restricted visiting, compounded communication challenges and unmet religious and faith needs. One theme demonstrated mistrust of services by ethnic minority groups, and the final theme demonstrated a focus on equal and individualised care.Conclusions Policies introduced during the COVID-19 pandemic may have adversely impacted those from ethnic minority groups making these at-risk populations even more vulnerable. The palliative care response may have been equal but inequitable. During the para-COVID-19 period, systemic steps, including equality impact assessments, are urgently needed.",
author = "Sabrina Bajwah and Jonathan Koffman and Jamilla Hussein and Andy Bradshaw and Mevhibe Hocaoglu and Lorna Fraser and Adejoke Oluyase and Caitlin Allwin and Lesley Dunleavy and Nancy Preston and Rachel Cripps and Matthew Maddocks and Katherine Sleeman and Higginson Irene and Catherine Walshe and Fliss Murtagh",
year = "2024",
month = apr,
day = "30",
doi = "10.1136/ bmjspcare-2021-003083",
language = "English",
volume = "14",
pages = "e1478--e1487",
journal = "BMJ Supportive and Palliative Care",
issn = "2045-435X",
publisher = "BMJ Publishing Group Ltd",
number = "e1",

}

RIS

TY - JOUR

T1 - Specialist palliative care services response to ethnic minority groups with COVID-19

T2 - equal but inequitable—an observational study

AU - Bajwah, Sabrina

AU - Koffman, Jonathan

AU - Hussein, Jamilla

AU - Bradshaw, Andy

AU - Hocaoglu, Mevhibe

AU - Fraser, Lorna

AU - Oluyase, Adejoke

AU - Allwin, Caitlin

AU - Dunleavy, Lesley

AU - Preston, Nancy

AU - Cripps, Rachel

AU - Maddocks, Matthew

AU - Sleeman, Katherine

AU - Irene, Higginson

AU - Walshe, Catherine

AU - Murtagh, Fliss

PY - 2024/4/30

Y1 - 2024/4/30

N2 - Objectives To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19.Methods Cross-sectional online survey of UK palliative care services response to COVID-19. Quantitative data were summarised descriptively and χ2 tests used to explore relationships between categorical variables. Free text comments were analysed using reflexive thematic analysis.Results 277 UK services responded. 168 included hospice teams (76% of all UK hospice teams). Services supporting those from ethnic minority groups were more likely to include hospital (p<0.001) and less likely to include hospice (p<0.001) or home care teams (p=0.008). 34% (93/277) of services had cared for patients with COVID-19 or families from ethnic minority groups. 66% (61/93) of these services stated no difference in how they supported or reached these groups during the pandemic.Three themes demonstrated impact of policy introduced during the pandemic, including: disproportionate adverse impact of restricted visiting, compounded communication challenges and unmet religious and faith needs. One theme demonstrated mistrust of services by ethnic minority groups, and the final theme demonstrated a focus on equal and individualised care.Conclusions Policies introduced during the COVID-19 pandemic may have adversely impacted those from ethnic minority groups making these at-risk populations even more vulnerable. The palliative care response may have been equal but inequitable. During the para-COVID-19 period, systemic steps, including equality impact assessments, are urgently needed.

AB - Objectives To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19.Methods Cross-sectional online survey of UK palliative care services response to COVID-19. Quantitative data were summarised descriptively and χ2 tests used to explore relationships between categorical variables. Free text comments were analysed using reflexive thematic analysis.Results 277 UK services responded. 168 included hospice teams (76% of all UK hospice teams). Services supporting those from ethnic minority groups were more likely to include hospital (p<0.001) and less likely to include hospice (p<0.001) or home care teams (p=0.008). 34% (93/277) of services had cared for patients with COVID-19 or families from ethnic minority groups. 66% (61/93) of these services stated no difference in how they supported or reached these groups during the pandemic.Three themes demonstrated impact of policy introduced during the pandemic, including: disproportionate adverse impact of restricted visiting, compounded communication challenges and unmet religious and faith needs. One theme demonstrated mistrust of services by ethnic minority groups, and the final theme demonstrated a focus on equal and individualised care.Conclusions Policies introduced during the COVID-19 pandemic may have adversely impacted those from ethnic minority groups making these at-risk populations even more vulnerable. The palliative care response may have been equal but inequitable. During the para-COVID-19 period, systemic steps, including equality impact assessments, are urgently needed.

U2 - 10.1136/ bmjspcare-2021-003083

DO - 10.1136/ bmjspcare-2021-003083

M3 - Journal article

VL - 14

SP - e1478-e1487

JO - BMJ Supportive and Palliative Care

JF - BMJ Supportive and Palliative Care

SN - 2045-435X

IS - e1

ER -