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The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers: An interpretative phenomenological analysis

Research output: Contribution to Journal/MagazineJournal articlepeer-review

E-pub ahead of print
  • Jihui Lyu
  • Wenjing Jiang
  • Qian Xiong
  • Wenjie Li
  • Mo li
  • Yueqing Hu
  • Dongmei Jia
  • Wenchao Gao
  • Haiyan Mu
  • Zongjuan Ma
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<mark>Journal publication date</mark>4/04/2024
<mark>Journal</mark>Dementia
Publication StatusE-pub ahead of print
Early online date4/04/24
<mark>Original language</mark>English

Abstract

This study aims to explore the change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers as the disease progresses. Twelve adult child caregivers were recruited through purposive sampling. Explanatory phenomenological analysis was conducted to analyse data collected by semi-structured in-depth interviews. This study found a dynamically changing relationship between adult child caregivers and their parents with Alzheimer’s disease during care giving that evolved with the progress of the disease. The relationship was the most intimate in the middle stage of the disease for most caregivers and a new reciprocal relationship developed due to caregiving. Caregivers experienced different degrees of self-growth when providing care, though caregiver burdens were common. The positive experience and perception of caregivers were important for improving the quality of life for adult child caregivers of people with Alzheimer’s disease.