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The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers: An interpretative phenomenological analysis

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The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers: An interpretative phenomenological analysis. / Lyu, Jihui; Jiang, Wenjing ; Xiong, Qian et al.
In: Dementia, Vol. 23, No. 7, 31.10.2024, p. 1063-1080.

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Lyu J, Jiang W, Xiong Q, Li W, li M, Hu Y et al. The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers: An interpretative phenomenological analysis. Dementia. 2024 Oct 31;23(7):1063-1080. Epub 2024 Apr 4. doi: 10.1177/14713012241245482

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@article{0eadb3a7cabb4a33b228a623a00fd2dc,
title = "The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers: An interpretative phenomenological analysis",
abstract = "This study aims to explore the change of intimate relationship between people with Alzheimer{\textquoteright}s disease and their adult child caregivers as the disease progresses. Twelve adult child caregivers were recruited through purposive sampling. Explanatory phenomenological analysis was conducted to analyse data collected by semi-structured in-depth interviews. This study found a dynamically changing relationship between adult child caregivers and their parents with Alzheimer{\textquoteright}s disease during care giving that evolved with the progress of the disease. The relationship was the most intimate in the middle stage of the disease for most caregivers and a new reciprocal relationship developed due to caregiving. Caregivers experienced different degrees of self-growth when providing care, though caregiver burdens were common. The positive experience and perception of caregivers were important for improving the quality of life for adult child caregivers of people with Alzheimer{\textquoteright}s disease.",
keywords = "Alzheimer{\textquoteright}s disease, caregiver, interpretive phenomenological analysis, intimate relationship, personal growth",
author = "Jihui Lyu and Wenjing Jiang and Qian Xiong and Wenjie Li and Mo li and Yueqing Hu and Dongmei Jia and Wenchao Gao and Haiyan Mu and Zongjuan Ma",
year = "2024",
month = oct,
day = "31",
doi = "10.1177/14713012241245482",
language = "English",
volume = "23",
pages = "1063--1080",
journal = "Dementia",
issn = "1471-3012",
publisher = "SAGE Publications Ltd",
number = "7",

}

RIS

TY - JOUR

T1 - The change of intimate relationship between people with Alzheimer's disease and their adult child caregivers

T2 - An interpretative phenomenological analysis

AU - Lyu, Jihui

AU - Jiang, Wenjing

AU - Xiong, Qian

AU - Li, Wenjie

AU - li, Mo

AU - Hu, Yueqing

AU - Jia, Dongmei

AU - Gao, Wenchao

AU - Mu, Haiyan

AU - Ma, Zongjuan

PY - 2024/10/31

Y1 - 2024/10/31

N2 - This study aims to explore the change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers as the disease progresses. Twelve adult child caregivers were recruited through purposive sampling. Explanatory phenomenological analysis was conducted to analyse data collected by semi-structured in-depth interviews. This study found a dynamically changing relationship between adult child caregivers and their parents with Alzheimer’s disease during care giving that evolved with the progress of the disease. The relationship was the most intimate in the middle stage of the disease for most caregivers and a new reciprocal relationship developed due to caregiving. Caregivers experienced different degrees of self-growth when providing care, though caregiver burdens were common. The positive experience and perception of caregivers were important for improving the quality of life for adult child caregivers of people with Alzheimer’s disease.

AB - This study aims to explore the change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers as the disease progresses. Twelve adult child caregivers were recruited through purposive sampling. Explanatory phenomenological analysis was conducted to analyse data collected by semi-structured in-depth interviews. This study found a dynamically changing relationship between adult child caregivers and their parents with Alzheimer’s disease during care giving that evolved with the progress of the disease. The relationship was the most intimate in the middle stage of the disease for most caregivers and a new reciprocal relationship developed due to caregiving. Caregivers experienced different degrees of self-growth when providing care, though caregiver burdens were common. The positive experience and perception of caregivers were important for improving the quality of life for adult child caregivers of people with Alzheimer’s disease.

KW - Alzheimer’s disease

KW - caregiver

KW - interpretive phenomenological analysis

KW - intimate relationship

KW - personal growth

U2 - 10.1177/14713012241245482

DO - 10.1177/14713012241245482

M3 - Journal article

VL - 23

SP - 1063

EP - 1080

JO - Dementia

JF - Dementia

SN - 1471-3012

IS - 7

ER -