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    Rights statement: The final, definitive version of this article has been published in the Journal, Palliative Medicine, 34 (9), 2020, © SAGE Publications Ltd, 2020 by SAGE Publications Ltd at the Palliative Medicine page: https://journals.sagepub.com/home/pmj on SAGE Journals Online: http://journals.sagepub.com/

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The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation

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The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation. / Chidiac, C.; Feuer, D.; Flatley, M. et al.
In: Palliative Medicine, Vol. 34, No. 9, 01.10.2020, p. 1241-1248.

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Chidiac C, Feuer D, Flatley M, Rodgerson A, Grayson K, Preston N. The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation. Palliative Medicine. 2020 Oct 1;34(9):1241-1248. Epub 2020 Jul 31. doi: 10.1177/0269216320946688

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@article{16f33dc0e2574720b6422ff4064024bf,
title = "The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation",
abstract = "Background: Palliative care services face challenges in adapting and responding to the COVID-19 pandemic. Understanding how palliative care needs and outcomes have changed during the pandemic compared to before the pandemic is crucial to inform service planning and research initiatives. Aim: To evaluate the impact of COVID-19 on symptoms, clinical characteristics, and outcomes for patients referred to a hospital-based palliative care service in a district general hospital in London, UK. Design: A retrospective service evaluation. Data were extracted from the electronic patient records. Setting/participants: The first 60 inpatients with confirmed COVID-19 infection, referred to the hospital palliative care service between 1 March 2020 and 23 April 2020, and another 60 inpatients, referred to the hospital palliative care service between 11 March 2019 and 23 April 2019, were included from a district general hospital in East London, UK. Results: Patients with COVID-19 have lower comorbidity scores, poorer performance status, and a shorter time from referral to death compared to patients without COVID-19. Breathlessness, drowsiness, agitation, and fever are the most prevalent symptoms during COVID-19 compared to pain and drowsiness pre-COVID-19. Time from admission to referral to palliative care is longer for Black, Asian and minority ethnic patients, especially during COVID-19. Conclusion: Early referral to palliative care is essential in COVID-19, especially for Black, Asian and minority ethnic groups. There is urgent need to research why Black, Asian and minority ethnic patients are referred late; how palliative care services have changed; and possible solutions to setting up responsive, flexible, and integrated services.",
keywords = "COVID-19, ethnic minorities, outcomes, palliative care, pandemic, symptoms",
author = "C. Chidiac and D. Feuer and M. Flatley and A. Rodgerson and K. Grayson and N. Preston",
note = "The final, definitive version of this article has been published in the Journal, Palliative Medicine, 34 (9), 2020, {\textcopyright} SAGE Publications Ltd, 2020 by SAGE Publications Ltd at the Palliative Medicine page: https://journals.sagepub.com/home/pmj on SAGE Journals Online: http://journals.sagepub.com/ ",
year = "2020",
month = oct,
day = "1",
doi = "10.1177/0269216320946688",
language = "English",
volume = "34",
pages = "1241--1248",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "9",

}

RIS

TY - JOUR

T1 - The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic

T2 - Findings from a service evaluation

AU - Chidiac, C.

AU - Feuer, D.

AU - Flatley, M.

AU - Rodgerson, A.

AU - Grayson, K.

AU - Preston, N.

N1 - The final, definitive version of this article has been published in the Journal, Palliative Medicine, 34 (9), 2020, © SAGE Publications Ltd, 2020 by SAGE Publications Ltd at the Palliative Medicine page: https://journals.sagepub.com/home/pmj on SAGE Journals Online: http://journals.sagepub.com/

PY - 2020/10/1

Y1 - 2020/10/1

N2 - Background: Palliative care services face challenges in adapting and responding to the COVID-19 pandemic. Understanding how palliative care needs and outcomes have changed during the pandemic compared to before the pandemic is crucial to inform service planning and research initiatives. Aim: To evaluate the impact of COVID-19 on symptoms, clinical characteristics, and outcomes for patients referred to a hospital-based palliative care service in a district general hospital in London, UK. Design: A retrospective service evaluation. Data were extracted from the electronic patient records. Setting/participants: The first 60 inpatients with confirmed COVID-19 infection, referred to the hospital palliative care service between 1 March 2020 and 23 April 2020, and another 60 inpatients, referred to the hospital palliative care service between 11 March 2019 and 23 April 2019, were included from a district general hospital in East London, UK. Results: Patients with COVID-19 have lower comorbidity scores, poorer performance status, and a shorter time from referral to death compared to patients without COVID-19. Breathlessness, drowsiness, agitation, and fever are the most prevalent symptoms during COVID-19 compared to pain and drowsiness pre-COVID-19. Time from admission to referral to palliative care is longer for Black, Asian and minority ethnic patients, especially during COVID-19. Conclusion: Early referral to palliative care is essential in COVID-19, especially for Black, Asian and minority ethnic groups. There is urgent need to research why Black, Asian and minority ethnic patients are referred late; how palliative care services have changed; and possible solutions to setting up responsive, flexible, and integrated services.

AB - Background: Palliative care services face challenges in adapting and responding to the COVID-19 pandemic. Understanding how palliative care needs and outcomes have changed during the pandemic compared to before the pandemic is crucial to inform service planning and research initiatives. Aim: To evaluate the impact of COVID-19 on symptoms, clinical characteristics, and outcomes for patients referred to a hospital-based palliative care service in a district general hospital in London, UK. Design: A retrospective service evaluation. Data were extracted from the electronic patient records. Setting/participants: The first 60 inpatients with confirmed COVID-19 infection, referred to the hospital palliative care service between 1 March 2020 and 23 April 2020, and another 60 inpatients, referred to the hospital palliative care service between 11 March 2019 and 23 April 2019, were included from a district general hospital in East London, UK. Results: Patients with COVID-19 have lower comorbidity scores, poorer performance status, and a shorter time from referral to death compared to patients without COVID-19. Breathlessness, drowsiness, agitation, and fever are the most prevalent symptoms during COVID-19 compared to pain and drowsiness pre-COVID-19. Time from admission to referral to palliative care is longer for Black, Asian and minority ethnic patients, especially during COVID-19. Conclusion: Early referral to palliative care is essential in COVID-19, especially for Black, Asian and minority ethnic groups. There is urgent need to research why Black, Asian and minority ethnic patients are referred late; how palliative care services have changed; and possible solutions to setting up responsive, flexible, and integrated services.

KW - COVID-19

KW - ethnic minorities

KW - outcomes

KW - palliative care

KW - pandemic

KW - symptoms

U2 - 10.1177/0269216320946688

DO - 10.1177/0269216320946688

M3 - Journal article

VL - 34

SP - 1241

EP - 1248

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 9

ER -