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Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - ‘We are still here, we are survivors’
T2 - patients’ experiences of attending a multidisciplinary group-based support programme following subarachnoid haemorrhage
AU - Storey, Alice
AU - Sheldrick, Russell
AU - Dulhanty, Louise
AU - Zarotti, Nicolò
PY - 2025/3/31
Y1 - 2025/3/31
N2 - Purpose: People who survive a subarachnoid haemorrhage (SAH) often face enduring health challenges including physical disability, fatigue, cognitive impairments, psychological difficulties, and reduced quality of life. While group interventions have shown positive results in addressing similar issues in chronic conditions, the evidence involving SAH specifically is still sparse. This service evaluation aimed to explore SAH survivors’ experiences of attending a multidisciplinary group-based support programme tailored to address unmet needs identified in previous literature, with the ultimate aim to refine future iterations of the programme and improve quality of care post-SAH.Materials and Methods: Semi-structured interviews were carried out with 12 individuals who attended the programme. The resulting data were analysed thematically. Results: Four overarching themes emerged from the analysis: 1) Barriers to accessing support after a SAH, 2) Factors acting as enablers of recovery, 3) Sharing lived experience to support one another, 4) Feeling connected while navigating a group format. Conclusions: Lack of communication, fear, loneliness, and cognitive impairments can act as barriers to engagement with support, while acceptance and adjustment, holistic multidisciplinary input, and psychological support may represent successful enablers of recovery. Implications for future iterations of the programme as well as clinical rehabilitation and service development are discussed.
AB - Purpose: People who survive a subarachnoid haemorrhage (SAH) often face enduring health challenges including physical disability, fatigue, cognitive impairments, psychological difficulties, and reduced quality of life. While group interventions have shown positive results in addressing similar issues in chronic conditions, the evidence involving SAH specifically is still sparse. This service evaluation aimed to explore SAH survivors’ experiences of attending a multidisciplinary group-based support programme tailored to address unmet needs identified in previous literature, with the ultimate aim to refine future iterations of the programme and improve quality of care post-SAH.Materials and Methods: Semi-structured interviews were carried out with 12 individuals who attended the programme. The resulting data were analysed thematically. Results: Four overarching themes emerged from the analysis: 1) Barriers to accessing support after a SAH, 2) Factors acting as enablers of recovery, 3) Sharing lived experience to support one another, 4) Feeling connected while navigating a group format. Conclusions: Lack of communication, fear, loneliness, and cognitive impairments can act as barriers to engagement with support, while acceptance and adjustment, holistic multidisciplinary input, and psychological support may represent successful enablers of recovery. Implications for future iterations of the programme as well as clinical rehabilitation and service development are discussed.
U2 - 10.1080/09638288.2024.2379024
DO - 10.1080/09638288.2024.2379024
M3 - Journal article
VL - 47
SP - 1708
EP - 1716
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
IS - 7
ER -