International Observatory on End of Life Care

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In Press/Forthcoming
Forthcoming
Death and Dying: Legal and ethical issues and the palliative care perspective
Begovic, D., Salifu, Y. & Payne, S., expected on 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed) › peer-review
2024
Published
Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis
Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J., 19/08/2024, In: BMC Palliative Care. 23, 209.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Collaboration, coordination and communication as facilitators of transitions for patients with advanced cancer: a scoping review linked to the Pal-Cycles project
Hooley, R. L., Payne, S., Begovic, D., Correa-Morales, J. E., Harding, A., Hasselaar, J. & Preston, N., 7/08/2024, In: BMC Palliative Care. 23, 1, 204.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A palliative care approach for adult non-cancer patients with life-limiting illnesses is cost-saving or cost-neutral: a systematic review of RCTs
Janke, K., Salifu, Y., Gavini, S., Preston, N. & Gadoud, A., 5/08/2024, In: BMC Palliative Care. 23, 12 p., 200.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Forthcoming
The lived experiences of hospice healthcare workers caring for adolescents and young adults with advanced cancer: An Interpretative Phenomenological Analysis
Persaud, N., Walshe, C. & Brearley, S., 1/08/2024, (Accepted/In press) In: Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Writing research papers
Walshe, C., 23/07/2024
Research output: Exhibits, objects and web-based outputs › Blog
Published
Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory
De Souza, J., Gillett, K., Salifu, Y. & Walshe, C., 18/07/2024, In: BMC Palliative Care. 23, 176.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advancing Palliative Care: Artificial Intelligence and Design Insights from the USA and the Netherlands
Nwosu, A., 5/07/2024.
Research output: Contribution to conference - Without ISBN/ISSN › Other › peer-review
Published
Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers
Machin, L., Walshe, C. & Dunleavy, L., 1/07/2024, In: Journal of Palliative Care. 39, 3, p. 175-183 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Perspectives of Chronic Kidney Disease Patients on Readiness for Advance Care Planning at Komfo Anokye Teaching Hospital, Ghana
Boakye, A. S., Dzansi, G., Ofosu-Poku, R., Ansah, M. O., Owusu, A. K., Anyane, G., Addai, J., Dzaka, A. D. & Salifu, Y., 30/06/2024, In: Yale Journal of Biology and Medicine . 97, 2, p. 115-124 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals
Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Nwosu, A., Gadoud, A., Board, R., Swash, B., Coyle, S., Dickson, A., Partridge, A., Halvorsen, J. & Hulbert-Williams, N., 25/06/2024, (E-pub ahead of print) In: BMC Palliative Care. 159.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Implementation of an advance care planning intervention in nursing homes: an international multiple case study
Brazil, K., Walshe, C., Doherty, J., Harding, A., Preston, N., Bavelaar, L., Cornally, N., Di Giulio, P., Gonella, S., Hartigan, I., Henderson, C., Kaasalainen, S., Loucka, M., Sussman, T., Vlckova, K. & van der Steen, J. T., 1/06/2024, In: The Gerontologist. 64, 6, gnae007.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Correction: Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework
Salins, N., Rao, K., Damani, A., Hughes, S. & Preston, N., 28/05/2024, In: BMC Palliative Care. 23, 1, 133.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Cancer experience in metaphors: patients, carers, professionals, students: A scoping review
Liu, Y., Semino, E., Rietjens, J. & Payne, S., 14/05/2024, (E-pub ahead of print) In: BMJ Supportive & Palliative Care.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Cancer experiences in metaphors: A scoping review in 4D PICTURE Project
Liu, Y., Payne, S., Rayson, P., Lal, D., Korfage, I., Rietjens, J. & Semino, E., 9/05/2024, In: Palliative Medicine. 38, Suppl. 2024 EAPC WR Congress, A05.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)
Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 1/05/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e727-e735 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative Care in Advanced Heart Failure
Gadoud, A., 1/05/2024, Handbook of Palliative Care . Kitchen, R., Faull, C., Russell, S. & Wilson, J. (eds.). 4th ed. WILEY-BLACKWELL
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Community perspectives on structural barriers to dying well at home in Canada
Chan, W.-S., Funk, L., Krawczyk, M., Cohen, S. R., Cherba, M., Dujela, C. & Stajduhar, K., 30/04/2024, In: Palliative and Supportive Care. 22, 2, p. 347-353 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study
Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 30/04/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e1478-e1487 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
How clinicians recognise people who are dying: An integrative review
Colquhoun-Flannery, E., Goodwin, D. & Walshe, C., 31/03/2024, In: International Journal of Nursing Studies. 151, 104666.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods
Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design
Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., Prevost, A. T., Walshe, C. & Walwyn, R., 23/02/2024, In: PLoS ONE. 19, 2, e0297184.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Self-perceived preparedness of the new UK palliative medicine consultants: A survey of clinical and non-clinical preparedness after higher specialty training
Hanchanale, S., Nwosu, A. & Boland, J. W., 23/02/2024, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption
Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 21/02/2024, In: BMJ Supportive and Palliative Care. 14, 1, p. 47-51 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How can technology be used to support communication in palliative care beyond the covid-19 pandemic: A mixed-methods national survey of palliative care healthcare professionals
Stanley, S., Finucane, A., Thompson, A. & Nwosu, A., 14/02/2024, In: BMC Palliative Care. 23, 40.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences and perceptions of men following breast cancer diagnosis: A Mixed Method Systematic Review
Abboah-Offei, M., Bayou, J., Salifu, Y., Ayobami Afolabi, O. & Akudjedu, T., 6/02/2024, In: BMC Cancer. 24, 1, p. 179 1 p., 179.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)
Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Online interviews for qualitative health research in Africa: a scoping review
Akyirem, S., Ekpor, E., Aidoo-Frimpong, G. A., Salifu, Y. & Nelson, L. E., 2/01/2024, In: International Health. 16, 1, p. 4-13 10 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development
Chan, W.-S., Payne, S. & Funk, L., 2/01/2024, In: Mortality. 29, 1, p. 159-175 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2023
Published
Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)
Hocaoglu, M., Murtagh, F., Walshe, C., Chambers, R., Maddocks, M., Sleeman, K., Oluyase, A., Dunleavy, L., Bradshaw, A., Bajwah, S., Fraser, L., Preston, N. & Irene, H., 31/12/2023, In: Health and Quality of Life Outcomes. 21, 12 p., 29.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial
Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Malignant pleural effusions: the patient experience
Jones, R., Steer, H., Preston, N. & Perkins, P., 7/12/2023, In: BMJ Supportive and Palliative Care. 13, e2, p. e254-e255
Research output: Contribution to Journal/Magazine › Letter
Published
A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings
Thelen, M., Walshe, C. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1474 - 1483 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care
Oliver, K., Brown, M., Walshe, C. & Salifu, Y., 1/12/2023, In: Journal of Pain and Symptom Management. 66, 6, p. 656-670 e.11.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
Dunleavy, L., Preston, N. & Walshe, C., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1540 - 1553 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Thank goodness you're here'. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study: A mixed methods study
Walshe, C., Mateus, C., Varey, S., Dodd, S., Cockshott, Z., Filipe, L. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1484-1497 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Forthcoming
Writing for the world: Enhancing engagement and connection with an international audience
Walshe, C., Beernart, K., Chong, P. H., Lowe, S., Pereira, S. M. & Yardley, S., 20/11/2023, (Accepted/In press) In: Palliative Medicine.
Research output: Contribution to Journal/Magazine › Editorial
Published
Developing a ward based research hub in a hospice; improving researcher engagement with staff in the hospice environment to promote research engagement and activity
Stanley, S., Nwosu, A. & Chapman, L., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Digital legacy and palliative care: Using technology, design and healthcare partnerships to research how digital information is managed after death
Nwosu, A., Stanley, S., Norris, J. & Taubert, M., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Ethical conundrums roundtable – The ethical implications of AI in digital legacy and managing grief.
Nwosu, A., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
A Grounded Theory Study Exploring Palliative Care Healthcare Professionals’ Experiences of Managing Digital Legacy as Part of Advance Care Planning for People Receiving Palliative Care
Stanley, S., Higginbotham, K., Finucane, A. & Nwosu, A., 31/10/2023, In: Palliative Medicine. 37, 9, p. 1424-1433 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The lived experiences of UK physiotherapists involved in Cauda Equina Syndrome litigation: A qualitative study
Yeowell, G., Leech, R., Greenhalgh, S., Willis, E. & Selfe, J., 14/09/2023, In: PLoS One. 18, 9, e0290882.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach
Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.
Research output: Contribution to Journal/Magazine › Comment/debate
Published
Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis
Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J. E., 25/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
The experience of family carers for people with moderate to advanced dementia within a domestic home setting: a systematically constructed narrative synthesis
James, C. O., Walshe, C. & Swarbrick, C., 2/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Vetting of medical imaging referrals: A scoping review of the radiographers’ role
CLARKE, J., Akudjedu, T. & Salifu, Y., 31/07/2023, In: Radiography. 29, 4, p. 767-776 10 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Abstracts from the Lancaster Clinical Academic Trainee Symposium 2023
Chowdhury, S., Sharratt, P. & Gadoud, A., 1/07/2023, In: Morecambe Bay Medical Journal. 9, 4, p. 84-88 5 p.
Research output: Contribution to Journal/Magazine › Conference article
Published
Stakeholder Engagement as a Strategy to Enhance Palliative Care Involvement in Intensive Care Units: A Theory of Change Approach
Rao, S., Salins, N., Remawi, B., Rao, S., Shanbaug, V., Arjun, N. R., Bhat, N., Shetty, R., Karanth, S., Gupta, V., Jahan, N., Setlur, R., Simha, S., Walshe, C. & Preston, N., 30/06/2023, In: Journal of Critical Care. 75, 7 p., 154244.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Telehealth requires improved evidence to achieve its full potential in palliative care
Nwosu, A., 30/06/2023, In: Palliative Medicine. 37, 7, p. 896-897 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review

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