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International Observatory on End of Life Care

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  1. Journal article
  2. Published

    Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

    Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

    Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. Published

    Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

    Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

    Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In: Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    Living with Advanced Chronic Obstructive Pulmonary Disease: A Qualitative Interview Study with Patients and Informal Carers

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 3/07/2020, In: COPD. 17, 4, p. 410-418 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    Conservative Management of COVID-19 Patients—Emergency Palliative Care in Action

    Fusi-Schmidhauser, T., Preston, N. J., Keller, N. & Gamondi, C., 1/07/2020, In: Journal of Pain and Symptom Management. 60, 1, p. e27-e30 4 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

    James, C., Walshe, C. & Froggatt, K., 1/07/2020, In: PROSPERO.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Research priorities in advanced heart failure: James Lind alliance priority setting partnership

    Taylor, C., Huntley, A. L., Burden, J., Gadoud, A., Gronlund, T., Jones, N. R., Wicks, E., McKelvie, S., Byatt, K., Lehman, R., King, A., Mumford, B., Feder, G., Mant, J., Hobbs, R. & Johnson, R., 30/06/2020, In: BMJ Open Heart . 7, 1, 9 p., e001258.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

    James, C., Walshe, C. & Froggatt, K., 19/06/2020, In: BMC Systematic Reviews.

    Research output: Contribution to Journal/Magazine › Journal article

  12. Published

    Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

    Walshe, C., 2/06/2020, In: British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Ethical and research governance approval across Europe: Experiences from three European palliative care studies

    Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice

    Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In: BMC Palliative Care. 19, 8 p., 54.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  17. Published

    Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In: International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data

    Walshe, C., Ahmed, F. & Preston, N., 1/04/2020, In: Palliative Medicine. 34, 4, p. 541-546 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

    Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. E-pub ahead of print

    Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

    Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, (E-pub ahead of print) In: International Journal of Geriatric Psychiatry. 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F., & 9 othersMercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

    Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

    De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In: Palliative Medicine. 34, 2, p. 195-208 14 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  28. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  29. Published

    Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials

    Oriani, A., Dunleavy, L., Sharples, P., Perez Algorta, G. & Preston, N. J., 9/01/2020, In: BMC Palliative Care. 19, 1, p. 6 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  30. E-pub ahead of print

    The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

    Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  31. Published

    Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

    Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C., & 5 othersDe Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  32. Published

    Telehealth in palliative care is being described but not evaluated: A systematic review

    Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  33. Published

    ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

    Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In: BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  34. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  35. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S., & 4 othersBassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  36. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M., & 21 othersWichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  37. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  38. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  39. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  40. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P., & 14 othersSegat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  41. Published

    Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

    Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  42. Published

    Robotic technology for palliative and supportive care: Strengths, weaknesses, opportunities and threats

    Nwosu, A., Sturgeon, B., McGlinchey, T., Goodwin, C., Behera, A., Mason, S., Stanley, S. & Payne, T. R., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1106-1113 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  43. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  44. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B., & 22 othersEngels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  45. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I., & 11 othersSowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  46. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  47. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  49. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  50. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  51. Published

    Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

    Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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