International Observatory on End of Life Care

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Published
Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries
PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities
EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis
ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.
Research output: Contribution to journal › Journal article › peer-review
Published
Final transitions to place of death: Patients and families wishes
EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.
Research output: Contribution to journal › Journal article › peer-review
Published
International variations in clinical practice guidelines for palliative sedation: A systematic review
on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.
Research output: Contribution to journal › Review article › peer-review
Published
Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial
ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.
Research output: Contribution to journal › Journal article › peer-review
Published
Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries
PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.
Research output: Contribution to journal › Journal article › peer-review
Published
Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review
PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.
Research output: Contribution to journal › Review article › peer-review
Published
Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries
PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)
CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study
ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.
Research output: Contribution to journal › Journal article › peer-review
Published
Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study
PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.
Research output: Contribution to journal › Journal article › peer-review
Published
Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs
Abarshi, E. A., Echteld, M. A., Van den Block, L., Donker, G. A., Deliens, L. & Onwuteaka-Philipsen, B. D., 2011, In: British Journal of General Practice. 61, 587, p. e371-378 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Discussing end-of-life issues in the last months of life: a nationwide study among general practitioners
Abarshi, E., Echteld, M., Donker, G., Van den Block, L., Onwuteaka-Philipsen, B. & Deliens, L., 03/2011, In: Journal of Palliative Medicine. 14, 3, p. 323-330 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The oldest old and GP end-of-life care in the Dutch community: a nationwide study
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 2010, In: Age and Ageing. 39, 6, p. 716-722 7 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Transitions between care settings at the end of life in the Netherlands: results from a nationwide study
Abarshi, E., Echteld, M., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 03/2010, In: Palliative Medicine. 24, 2, p. 166-174 9 p.
Research output: Contribution to journal › Journal article › peer-review
Published
General practitioner awareness of preferred place of death and correlates of dying in a preferred place: a nationwide mortality follow-back study in the Netherlands
Abarshi, E., Onwuteaka-Philipsen, B., Donker, G., Echteld, M., Van den Block, L. & Deliens, L., 10/2009, In: Journal of Pain and Symptom Management. 38, 4, p. 568-577 10 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Euthanasia requests and cancer types in the Netherlands: is there a relationship?
Abarshi, E., Onwuteaka-Philipsen, B. D. & van der Wal, G., 02/2009, In: Health Policy. 89, 2, p. 168-173 6 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The complexity of nurses' attitudes and practice of sedation at the end of life: a systematic literature review
Abarshi, E. A., Papavasiliou, E., Preston, N., Brown, J., Payne, S. & EURO IMPACT, 05/2014, In: Journal of Pain and Symptom Management. 47, 5, p. 915-925 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
An Australian survey of palliative care and hospice bereavement services.
Abbott, J., O'Connor, M. & Payne, S., 2008, In: Australian Journal of Cancer Nursing. 9, 2, p. 12-17 6 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Research methods in palliative care.
Addington-Hall, J., Bruera, E., Higginson, J. & Payne, S., 2007, Oxford: Oxford University Press. 315 p.
Research output: Book/Report/Proceedings › Book
Published
Cancer experiences research collaborative annual progress report, year 1 : May 2006-April 2007.
Addington-Hall, J. & Payne, S., 07/2007, London: NCRI.
Research output: Working paper
Published
Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.
Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.
Research output: Working paper
Published
Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.
Ahmed, N., Bestall, J., Ahmedzai, S., Payne, S., Clark, D. & Noble, B., 09/2004, In: Palliative Medicine. 18, 6, p. 525-542 18 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs.
Ahmed, N., Bestall, J. C., Payne, S., Noble, B. & Ahmedzai, S. H., 06/2009, In: Supportive Care in Cancer. 17, 6, p. 665-673 9 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review. Age and Ageing (2006). Received 1 November 2005; accepted in revised form 2 February 2006 (pp. 1–8).
Ahmed, N., Payne, S. & Ahmedzai, S. H., 11/2009, In: Age and Ageing. 38, 6, p. 756-766 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.
Ahmed, N., Bestall, J. C., Ahmedzai, S. H., Payne, S., Clark, D. & Noble, B., 03/2004, In: Palliative Medicine. 18, 2, p. 171-172 2 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Letter to the editor: Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review
Ahmed, N., Payne, S. & Ahmedzai, S., 2009, In: Age and Ageing. 38, 6, p. 765-766 2 p.
Research output: Contribution to journal › Letter › peer-review
Published
Improving access to specialist palliative care : developing a screening measure to assess the distress caused by advanced illness that may require referral to specialist palliative care : final report.
Ahmedzai, S. H., Payne, S., Bestall, J. C., Ahmed, N., Dobson, K., Clark, D. & Noble, B., 2005, Elizabeth Clark Charitable Trust.
Research output: Working paper
Published
A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective
EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
Advance directives in European long-term care facilities: A cross-sectional survey
Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, In: BMJ Supportive and Palliative Care. 10 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review
Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review
Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.
Research output: Contribution to journal › Journal article › peer-review
Published
'They've got to learn': a qualitative study exploring the views of patients and staff regarding medical student teaching in a hospice
Arolker, M., Barnes, J., Gadoud, A., Jones, L., Barnes, L. & Johnson, M. J., 06/2010, In: Palliative Medicine. 24, 4, p. 419-426 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Communication between patients with strokes and physiotherapists.
Ashburn, A., Wiles, R. A., Murphy, C., Payne, S. & Campbell, F., 04/2001, In: Clinical Rehabilitation. 15, 4, p. 449-450 2 p.
Research output: Contribution to journal › Journal article › peer-review
Published
“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study
Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.
Research output: Contribution to journal › Journal article › peer-review
Unpublished
Exploring the impact of user involvement on health and social care services for cancer in the UK.
Attree, P., Morris, S., Clifton, M., Hinder, S. & Vaughan, S., 01/2009, (Unpublished) Lancaster, UK, 92 p.
Research output: Working paper
Published
Exploring the influence of service user involvement on health and social care services for cancer.
Attree, P., Morris, S., Payne, S., Vaughan, S. & Hinder, S., 03/2011, In: Health Expectations. 14, 1, p. 48-58 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
A post-graduate's guide to doing a literature review in health and social care
Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.
Research output: Book/Report/Proceedings › Book
Published
Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Review)
Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. Issue
Research output: Contribution to journal › Journal article › peer-review
Published
Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs.
Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2004, In: Cochrane Database of Systematic Reviews. Issue
Research output: Contribution to journal › Journal article › peer-review
Published
Benzo-pyrones for reducing and controlling lymphoedema of the limbs.
Badger, C. M. A., Preston, N., Seers, K. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. 2009, 1
Research output: Contribution to journal › Journal article › peer-review
Published
Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Withdrawn Paper. 2009, art. no. CD003143)
Badger, C. M. A., Preston, N. J., Seers, K. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. 1, p. - 4 p., CD003143.
Research output: Contribution to journal › Journal article › peer-review
Published
The nursing contribution to qualitative research in palliative care 1990-1999 : a critical evaluation.
Bailey, C., Froggatt, K., Field, D. & Krishnasamy, M., 10/2002, In: Journal of Advanced Nursing. 40, 1, p. 48-60 13 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The cancer experiences research collaborative (CECo) : building research capacity in supportive and palliative care.
Bailey, C., Wilson, R., Addington-Hall, J., Payne, S., Clark, D., Lloyd-Williams, M., Molassiotis, A. & Seymour, J., 12/2006, In: Progress in Palliative Care. 14, 6, p. 265-270 6 p.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)
Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.
Research output: Contribution to journal › Journal article › peer-review
Published
Reflecting on the Long-term (Neurological) End-of-Life Conference
Baker, M., Payne, S., Stanley, C., Bowen, C., Webb, P., Daveson, B., Morrey, V. & O'Connor, M., 04/2010, In: British Journal of Neuroscience Nursing. 6, 4, p. 188-190 3 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Language barriers to defining concepts in medicine: the case of palliative sedation
Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease
Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.
Research output: Contribution to journal › Journal article › peer-review

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