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International Observatory on End of Life Care

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  1. Published

    Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

    Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 30/04/2022, In: Patient Education and Counseling. 105, 4, p. 965-973 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  2. Published

    The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries

    Bavelaar, L., Visser, M., Walshe, C., Preston, N., Kaasalainen, S., Sussman, T., Cornally, N., Hartigan, I., Loucka, M., de Giulio, P., Brazil, K., Achterberg, W. & van der Steen, J. T., 1/03/2023, In: Age and Ageing. 52, 3, 9 p., afad027.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 28/02/2022, In: Palliative Medicine. 36, 2, p. 216-218 3 p.

    Research output: Contribution to Journal/Magazine › Journal article

  4. E-pub ahead of print

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. E., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. Published

    A meta-synthesis of the transitioning experiences and career progression of migrant African nurses

    Bayou, J., Abboah-Offei, M., Duodu, P. A. & Salifu, Y., 6/04/2023, In: BMC Nursing. 22, 1, 20 p., 104.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    “Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

    Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 1/10/2022, In: Journal of Palliative Care. 37, 4, p. 494-502 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Forthcoming

    Death and Dying: Legal and ethical issues and the palliative care perspective

    Begovic, D., Salifu, Y. & Payne, S., 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed) › peer-review

  8. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

    Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Exploring the experiences of living with Lewy body dementia: An integrative review

    Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia

    Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Forthcoming

    Suffering and loss in Lewy body dementia: applying a palliative care lens to a longitudinal narrative study

    Bentley, A., Salifu, Y. & Walshe, C., 10/11/2024, (Accepted/In press) In: Palliative and Supportive Care.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

    Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., 2017, In: Disability and Society. 32, 7, p. 945-965 21 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Access and referral to specialist palliative care : patients' and professionals' experiences.

    Bestall, J., Ahmed, N., Ahmedzai, S., Payne, S., Noble, B. & Clark, D., 2004, In: International Journal of Palliative Nursing. 10, 8, p. 381-389 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Developing narrative research in supportive and palliative care : the focus on illness narratives.

    Bingley, A. F., Thomas, C., Brown, J., Reeve, J. & Payne, S., 06/2008, In: Palliative Medicine. 22, 5, p. 653-658 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases.

    Bingley, A. F., McDermott, E., Thomas, C., Payne, S., Seymour, J. E. & Clark, D., 04/2006, In: Palliative Medicine. 20, 3, p. 183-195 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  17. Published

    Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation

    Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  18. Published

    The role of the district nurse in bereavement care.

    Birtwistle, J., Payne, S., Smith, P. & Kendrick, T., 06/2002, In: Journal of Advanced Nursing. 38, 5, p. 467-478 12 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  21. Published

    Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

    Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)

    Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K. & Karen, L. & 7 others, Guido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    Perspectives of Chronic Kidney Disease Patients on Readiness for Advance Care Planning at Komfo Anokye Teaching Hospital, Ghana

    Boakye, A. S., Dzansi, G., Ofosu-Poku, R., Ansah, M. O., Owusu, A. K., Anyane, G., Addai, J., Dzaka, A. D. & Salifu, Y., 30/06/2024, In: Yale Journal of Biology and Medicine . 97, 2, p. 115-124 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Medical Students Writing on Death, Dying and Palliative Care: A Qualitative Analysis of Reflective Essays Palliative Medicine.

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/03/2016, Abstracts of the 9th World Research Congress of the European Association for Palliative Care (EAPC). 6 ed. Vol. 30. (Palliative Medicine).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

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