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The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries

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  • Laura Bavelaar
  • Mandy Visser
  • Catherine Walshe
  • Nancy Preston
  • Sharon Kaasalainen
  • Tamara Sussman
  • Nicola Cornally
  • Irene Hartigan
  • Martin Loucka
  • Paola de Giulio
  • Kevin Brazil
  • Wilco Achterberg
  • Jenny T. van der Steen
Article numberafad027
<mark>Journal publication date</mark>1/03/2023
<mark>Journal</mark>Age and Ageing
Issue number3
Number of pages9
Publication StatusPublished
<mark>Original language</mark>English


the mySupport advance care planning intervention was originally developed and evaluated in Northern Ireland (UK). Family caregivers of nursing home residents with dementia received an educational booklet and a family care conference with a trained facilitator to discuss their relative’s future care.

to investigate whether upscaling the intervention adapted to local context and complemented by a question prompt list impacts family caregivers’ uncertainty in decision-making and their satisfaction with care across six countries. Second, to investigate whether mySupport affects residents’ hospitalisations and documented advance decisions.

a pretest–posttest design.

in Canada, the Czech Republic, Ireland, Italy, the Netherlands and the UK, two nursing homes participated.

in total, 88 family caregivers completed baseline, intervention and follow-up assessments.

family caregivers’ scores on the Decisional Conflict Scale and Family Perceptions of Care Scale before and after the intervention were compared with linear mixed models. The number of documented advance decisions and residents’ hospitalisations was obtained via chart review or reported by nursing home staff and compared between baseline and follow-up with McNemar tests.

family caregivers reported less decision-making uncertainty (−9.6, 95% confidence interval: −13.3, −6.0, P 
the mySupport intervention may be impactful in countries beyond the original setting.