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International Observatory on End of Life Care

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  1. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to Journal/Magazine › Journal article

  2. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S., Nwosu, A. & Chapman, L., 18/05/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  3. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S. & Nwosu, A., 13/10/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  4. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S. & Nwosu, A., 24/03/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  5. Published

    How can technology be used to support communication in palliative care beyond the covid-19 pandemic: A mixed-methods national survey of palliative care healthcare professionals

    Stanley, S., Finucane, A., Thompson, A. & Nwosu, A., 14/02/2024, In: BMC Palliative Care. 23, 40.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    A Grounded Theory Study Exploring Palliative Care Healthcare Professionals’ Experiences of Managing Digital Legacy as Part of Advance Care Planning for People Receiving Palliative Care

    Stanley, S., Higginbotham, K., Finucane, A. & Nwosu, A., 31/10/2023, In: Palliative Medicine. 37, 9, p. 1424-1433 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    Developing a ward based research hub in a hospice; improving researcher engagement with staff in the hospice environment to promote research engagement and activity

    Stanley, S., Nwosu, A. & Chapman, L., 6/11/2023.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  8. Published

    Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

    Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

    Research output: Contribution to Journal/Magazine › Journal article

  9. Published

    Palliative care in stroke - a critical review of the literature.

    Stevens, T., Payne, S., Burton, C., Addington-Hall, J. & Jones, A., 2007, In: European Journal of Palliative Care. 10th C, p. 124-124 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Palliative care in stroke : a critical review of the literature.

    Stevens, T., Payne, S., Burton, C., Addington-Hall, J. & Jones, A., 06/2007, In: Palliative Medicine. 21, 4, p. 323-331 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Defining priorities in prognostication research: results of a consensus workshop

    Stevinson, C., Preston, N., Todd, C. & Canc Experiences Collaborative, 07/2010, In: Palliative Medicine. 24, 5, p. 462-468 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Abdominal paracentesis.

    Summerville, K. & Preston, N., 2001, The Royal Marsden Hospital Handbook of Clinical Procedures. Mallet, J. & Dougherty, L. (eds.). Oxford: Blackwell Science

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  14. Published

    Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design

    Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., Prevost, A. T., Walshe, C. & Walwyn, R., 23/02/2024, In: PLoS ONE. 19, 2, e0297184.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    When a hospice in not a haven: case report

    Swarbrick, P., Grinyer, A. & Payne, S., 01/2011, In: Progress in Palliative Care. 19, 1, p. 22-24 3 p.

    Research output: Contribution to Journal/Magazine › Journal article

  16. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to Journal/Magazine › Journal article

  17. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    How do grandparents experience the death of a grandchild following a life limiting condition?

    Tatterton, M., Morris, S. M. & Walshe, C. E., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  19. Published

    Grandparents’ experience of the death of a grandchild from a life-limiting condition: an interpretative phenomenological analysis

    Tatterton, M., Morris, S. M. & Walshe, C. E., 2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Speech

  20. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. Published

    How to appraise a systematic review

    Taylor, P., Hussain, J. A. & Gadoud, A., 06/2013, In: British Journal of Hospital Medicine. 74, 6, p. 331-334 4 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Advanced heart failure: setting the research agenda

    Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, FD., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

    Research output: Contribution to Journal/Magazine › Journal article

  23. Published

    Research priorities in advanced heart failure: James Lind alliance priority setting partnership

    Taylor, C., Huntley, A. L., Burden, J., Gadoud, A., Gronlund, T., Jones, N. R., Wicks, E., McKelvie, S., Byatt, K., Lehman, R., King, A., Mumford, B., Feder, G., Mant, J., Hobbs, R. & Johnson, R., 30/06/2020, In: BMJ Open Heart . 7, 1, 9 p., e001258.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P., & 14 othersSegat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I., & 11 othersSowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings

    Thelen, M., Walshe, C. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1474 - 1483 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Place of death in the Morecambe Bay area : patterns and preferences for place of final care and death among terminally ill cancer patients and their carers.

    Thomas, C., Morris, S. M. & Gatrell, A. C., 2003, Lancaster: University of Lancaster.

    Research output: Book/Report/Proceedings › Book

  28. Published

    Disability theory : key ideas, issues and thinkers

    Thomas, C., 2002, Disability studies today. Barnes, C., Oliver, M. & Barton, L. (eds.). Cambridge: Polity Press, p. 38-57 20 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  29. Published

    The 'disabled' body

    Thomas, C., 2002, Real bodies: a sociological introduction . Evans, M. & Lee, E. (eds.). Basingstoke: Palgrave, p. 64-78 15 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  30. Published

    Living in the borderlands of disability

    Thomas, C., 2002, Understanding care, welfare and community : a reader. Bytheway, B., Bacigalipo, V., Bornat, J., Johnson, J. & Spurr, S. (eds.). London: Routledge, p. 11-12 2 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  31. Published

    A journey around the social model

    Thomas, C. & Corker, M., 2002, Disability/postmodernity : embodying disability theory. Corker, M. & Shakespeare, T. (eds.). London: Continuum, p. 18-31 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  32. Published

    Informal carers in cancer contexts.

    Thomas, C. & Morris, S. M., 09/2002, In: European Journal of Cancer Care. 11, 3, p. 178-182 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  33. Published

    The body and society : impairment and disability.

    Thomas, C., 2001, Proceedings of the British Sociological Association Conference : reforumlating bodies. London: Macmillan, p. 47-62 16 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  34. Published

    Disabled women enter the academy.

    Thomas, C., 2001, Identity and difference in higher education : feminist perspectives. Anderson, P. & Williams, J. (eds.). Aldershot: Ashgate, p. 67-78 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  35. Published

    Feminism and disability : the theoretical and political significance of the personal and the experiential.

    Thomas, C., 2001, Disability, politics and the struggle for change. Barton, L. (ed.). London: David Fulton Publications, p. 48-58 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  36. Published

    Medicine, gender and disability : disabled women's health care encounter.

    Thomas, C., 04/2001, In: Health Care for Women International. 22, 3, p. 245-262 18 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  37. Published

    Place of death in Morecambe Bay : patterns and preferences for place of final care and death among terminally ill cancer patients and their carers.

    Thomas, C., Morris, S. M., Gatrell, A. C. & McIllmurray, M. B., 2001, In: Morecambe Bay Medical Journal. 3, 10, p. 356-358 3 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  38. Published

    The psychosocial needs of cancer patients and their main carers.

    Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Francis, B. J. & Harman, J. C., 2001, Lancaster : University of Lancaster.

    Research output: Other contribution

  39. Published

    Women's health in Europe : beyond epidemiology?

    Thomas, C. & Rigby, J., 2001, Geographies of women's health. McLafferty, S., Dyke, I. & Davis Lewis, N. (eds.). London: Routledge, p. 23-40 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  40. Published

    What are the 'needs' of cancer patients and their main carers?

    Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Ledwith, F. & Francis, B. J., 1999, In: European Journal of Cancer. 35, Supplement 4, p. s21-s22

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  41. Published

    What are the 'needs' of cancer patients and their main carers?

    Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Ledwith, F. & Francis, B. J., 09/1999, Proceedings of the ECCO European Cancer Conference. Vienna

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  42. Published

    The psychosocial needs of cancer patients and their main carers.

    Thomas, C., Morris, S. M., McIllmurray, M. B., Soothill, K. L., Ledwith, F., Francis, B. J. & Al-Hamad, A., 09/1999, Proceedings of the Lancaster University industry conference. Lancaster: University of Lancaster

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  43. Published

    The psychosocial needs of cancer patients.

    Thomas, C., 06/2000, Proceedings of a seminar at the regional visit by Sir John Pattison, national director of NHS R&D : NHS Executive north west research and development directorate. Manchester: University of Manchester Medical School, Manchester Royal Infirmary

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  44. Published

    The psychosocial needs of patients and their main carers.

    Thomas, C., 10/2000, Proceedings of the National conference on co-morbidity. Bolton

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  45. Published

    Trying to be sociological : our experience of conducting a three year research project on 'The psychosocial needs of cancer patients and their main carers'.

    Thomas, C., 12/2001, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  46. Published

    Cancer patients' main carers: companions through cancer.

    Thomas, C. & Morris, S. M., 09/2000, Proceedings of the 30th annual conference of the BSA medical sociology group. York

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  47. Published

    Narrative research methods in palliative care contexts : two case studies.

    Thomas, C., Reeve, J., Bingley, A. F., Brown, J., Payne, S. & Lynch, T., 05/2009, In: Journal of Pain and Symptom Management. 37, 5, p. 788-796 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. Published

    Disabling barriers - enabling environments (2nd ed.)

    Thomas, C., Swain, J., Barnes, C. & French, S., 2004, London: Sage. 306 p.

    Research output: Book/Report/Proceedings › Book

  49. Published

    The Body and Society: Some Reflections on the Concepts of 'Disability' and 'Impairment'.

    Thomas, C., 2001, Reframing the body. Watson, N. & Cunningham-Burley, S. (eds.). 61 ed. Baskingstoke: Palgrave, p. 47-62 16 p. (British Sociological Association conference volume series).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  50. Published

    The UK Social Model of Disability: Rescuing a Social Relational Understanding of Disability.

    Thomas, C., 2004, In: Scandinavian Journal of Disability Research. 6, 1, p. 22-36 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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