International Observatory on End of Life Care

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Published
Removing the boundaries : palliative care for patients with heart failure.
Horne, G. & Payne, S., 06/2004, In: Palliative Medicine. 18, 4, p. 291-296 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning : evidence and implications for practice.
Horne, G., Seymour, J. & Payne, S., 02/2009, In: End of Life Care. 3, 1, p. 58-65 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Removing the boundaries : specialist palliative care for heart failure : final report.
Horne, G. & Payne, S., 2001, Health Action Zone (Department of Health).
Research output: Working paper
Published
Maintaining integrity in the face of death: a grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care
Horne, G., Seymour, J. & Payne, S., 06/2012, In: International Journal of Nursing Studies. 49, 6, p. 718-726 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers in palliative care : a guide for health and social care professionals.
Hudson, P., Payne, S., Hudson, P. (ed.) & Payne, S. (ed.), 2009, Oxford: Oxford University Press. 309 p.
Research output: Book/Report/Proceedings › Book
Published
A systematic review of instruments related to family caregivers of palliative care patients.
Hudson, P., Trauer, T., Graham, S., Grande, G., Ewing, G., Payne, S., Stajuhar, K. I. & Thomas, K., 11/2010, In: Palliative Medicine. 24, 7, p. 656-668 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Collaboration on research into family carers moves a step forward
Hudson, P. & Payne, S., 2007, In: European Journal of Palliative Care. 14, 5, p. 218
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
An international collaboration for family carer research.
Hudson, P. & Payne, S., 2006, In: European Journal of Palliative Care. 13, 4, p. 135
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Final report of an evaluation of the North Trent Cancer Network District Nurse/Community Nurse education programme in palliative care.
Hughes, P., Payne, S. & Noble, B., 2004, London: Department of Health.
Research output: Working paper
Published
Evaluating community nurses' knowledge of palliative care : use of the palliative care quiz for nursing before and after an education programme.
Hughes, P. M., Payne, S., Ingleton, C. & Noble, T. W., 03/2004, In: Palliative Medicine. 18, 2, p. 156-157 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating an education programme in general palliative care for community nurses.
Hughes, P. M., Noble, B., Payne, S., Ingleton, C. & Parker, C., 2006, In: International Journal of Palliative Nursing. 12, 3, p. 123-131 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
Living with advanced cancer: an exploration of continuity of care
Hughes, S., 03/2010, (Unpublished) University of Manchester.
Research output: Thesis › Doctoral Thesis
Unpublished
Men's grief responses
Hughes, S., 1999, (Unpublished) Manchester Metropolitan University.
Research output: Thesis › Master's Thesis
Published
What went wrong with the Liverpool Care Pathway and how can we avoid making the same mistakes again?
Hughes, S., Preston, N. & Payne, S., 23/08/2013, In: International Journal of Palliative Nursing. 19, 8, p. 372-373 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Online learning: a scoping of the literature for a study in integrated palliative care
Hughes, S., Preston, N. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 831-832 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Core competencies for palliative care social work in Europe: an EAPC White Paper - part 1
Hughes, S., Firth, P. & Oliviere, D., 7/11/2014, In: European Journal of Palliative Care. 21, 6, p. 300-305 6 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2
Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe
Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Improving online learning in palliative care: a comprehensive review
Hughes, S., Preston, N. & Payne, S., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Challenges in living alone near the end of life: an international comparison from the InSup-C project
Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Online learning in palliative care: does it improve practice?
Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
What are the fears and support needs of those living alone in the last year of life and who responds?
Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Frontline direct care workers experiences of providing domiciliary care towards the end of life: a systematic literature review and narrative synthesis
Hughes, S., Holt, V. L. & Preston, N. J., 19/05/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Researching an innovative Cottage Hospice model of care: An academic and hospice partnership
Hughes, S., Barnes, H. E., Turner, M., Yardley, J. & Walshe, C. E., 23/11/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom
Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system
Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How to appraise a randomized controlled trial
Hussain, J. A., Gadoud, A. & Taylor, P., 04/2013, In: British Journal of Hospital Medicine. 74, 4, p. 218-222 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique
Hussain, J. A., White, I. R., Johnson, M. J., Byrne, A., Preston, N. J., Haines, A., Seddon, K. & Peters, T. J., 17/01/2022, In: Palliative Medicine. 36, 1, p. 59-70 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature
Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Commentary on Hewison, Badger, Clifford, Thomas "Delivering gold standards in the end of life care in care homes : a question of teamwork.
Ingleton, C. & Froggatt, K., 06/2009, In: Journal of Clinical Nursing. 18, 12, p. 1756-1765 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Respite in palliative care :a review and discussion of the literature.
Ingleton, C., Payne, S., Nolan, M. & Carey, I., 10/2003, In: Palliative Medicine. 17, 7, p. 567-575 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to achieving care at home at the end of life : transferring patients between care settings using patient transport services.
Ingleton, C., Payne, S., Sargeant, A. & Seymour, J., 12/2009, In: Palliative Medicine. 23, 8, p. 723-730 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of the health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project
Ingleton, C., Chatwin, J., Seymour, J. & Payne, S., 2011, In: Journal of Clinical Nursing. 20, 13-14, p. 2043-2052 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advanced cancer patients' prognostic preferences : a review.
Innes, S. & Payne, S., 01/2009, In: Palliative Medicine. 23, 1, p. 29-39 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study
Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Health professionals’ perspectives about advance care planning in Parkinson’s disease: a qualitative study
Jackson, T., Gerhard, A. & Walshe, C., 2014, In: BMJ Supportive and Palliative Care. 4, Supplement 1, p. A45 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Froggatt, K., 1/07/2020, In: PROSPERO.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Froggatt, K., 19/06/2020, In: BMC Systematic Reviews.
Research output: Contribution to Journal/Magazine › Journal article
Published
Exploration of the experiences of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Swarbrick, C., 1/10/2020.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
A Narrative Exploration of the Experiences of Informal Caregivers for People with Moderate to Advanced Dementia within a Domestic Home Setting towards the End of Life
James, C., Walshe, C. & Swarbrick, C., 6/10/2021.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
The experience of family carers for people with moderate to advanced dementia within a domestic home setting: a systematically constructed narrative synthesis
James, C. O., Walshe, C. & Swarbrick, C., 2/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Creating and maintaining 'optimism' in cancer care communication.
Jarrett, N. & Payne, S., 02/2000, In: International Journal of Nursing Studies. 37, 10-11, p. 81-90 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Informing future research priorities into the psychological and social problems faced by cancer survivors: a rapid review and synthesis of the literature
Jarrett, N., Scott, I., Addington-Hall, J., Amir, Z., Brearley, S., Hodges, L., Richardson, A., Sharpe, M., Stamataki, Z., Stark, D., Siller, C., Ziegler, L. & Foster, C., 10/2013, In: Journal of Family Psychology. 17, 5, p. 510-520 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care for people with chronic heart failure: when is it time?
Johnson, M. J. & Gadoud, A., 03/2011, In: Journal of Palliative Care. 27, 1, p. 37-42 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Searching for safety signals : the experience of medical surveillance amongst men with testicular teratomas.
Jones, G. Y. & Payne, S., 09/2000, In: Psycho-Oncology. 9, 5, p. 385-395 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Malignant pleural effusions: the patient experience
Jones, R., Steer, H., Preston, N. & Perkins, P., 7/12/2023, In: BMJ Supportive and Palliative Care. 13, e2, p. e254-e255
Research output: Contribution to Journal/Magazine › Letter
Published
Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States
Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
European standards and norms for palliative care : key areas, common definitions and consensus on basic requirements.
Junger, S., Payne, S. & Radbruch, L., 2009, In: European Journal of Palliative Care. 16, p. 119-119 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
An online Delphi consensus process on European standards and norms in palliative care.
Junger, S., Payne, S. & Radbruch, L., 2009, In: European Journal of Palliative Care. 16, p. 125-125 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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