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International Observatory on End of Life Care

  1. 2025
  2. Published
  3. Published

    The needs, preferences, and experiences of LGBT+ people living with dementia: A systematic review with thematic synthesis

    Chidiac, C., Walshe, C., Lowers, J. & Preston, N., 13/05/2025, In: BMC Geriatrics. 25, 326.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. E-pub ahead of print

    Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services

    Salifu, Y. & Bamidele, O., 10/05/2025, (E-pub ahead of print) In: Palliative Medicine. p. 1-4 4 p.

    Research output: Contribution to Journal/MagazineEditorial

  5. Published

    Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End-of-Life Care Settings

    Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K., Doherty, M. & Gadoud, A., 30/04/2025, In: Journal of Palliative Care. 40, 2, p. 162-167 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Peer review and Palliative Medicine: Guiding reviewers’ contributions to ensuring high quality publications

    Walshe, C., Beernaert, K., Chong, P. H., Lowe, S., Martins Pereira, S. & Yardley, S., 30/04/2025, In: Palliative Medicine. 39, 4, p. 444-447 4 p., 2692163251321082.

    Research output: Contribution to Journal/MagazineEditorial

  7. E-pub ahead of print

    The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis

    Ali, V., Preston, N., Machin, L. & Malone, J., 29/04/2025, (E-pub ahead of print) In: Palliative Medicine.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    ‘Regrets become a lasting source of pain’: A qualitative study on family caregivers’ experiences leading up to a relative’s death

    Liang, H.-J., Xiong, Q. & Preston, N., 31/03/2025, In: Palliative Medicine. 39, 3, p. 401-412 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. E-pub ahead of print

    Timing of advance care planning in patients with advanced cancer: analysis of ACTION data

    Zhu, T., Rietjens, J. A., van Delden, J. J. M., Deliens, L., van der Heide, A., Johnsen, A. T., Ingravallo, F., Lunder, U., Preston, N. J., Seymour, J. & Korfage, I. J., 31/07/2025, In: Patient Education and Counseling. 136, 108761.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. E-pub ahead of print

    Developing research collaborations and building capacity in palliative and end-of-life care in the north west coast of England: The PalCaRE-NWC partnership

    Dunleavy, L., Board, R., Coyle, S., Dickman, A., Ellershaw, J. E., Gadoud, A., Halvorsen, J., Hulbert-Williams, N., Lightbody, C. E., Mason, S., Nwosu, A., Partridge, A., Payne, S., Preston, N., Swash, B., Taylor, V. & Walshe, C., 19/03/2025, (E-pub ahead of print) In: Public Health Research.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Urinary metabolite model to predict the dying process in lung cancer patients

    Coyle, S., Chapman, E., Hughes, D. M., Baker, J., Slater, R., Davison, A. S., Norman, B. P., Roberts, I., Nwosu, A. C., Gallagher, J. A., Ranganath, L. R., Boyd, M. T., Mayland, C. R., Kell, D. B., Mason, S., Ellershaw, J. & Probert, C., 27/02/2025, In: communications medicine. 5, 1, 49.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. E-pub ahead of print

    Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country

    Sailian, S. D., Salifu, Y. & Preston, N., 31/12/2025, In: Palliative and Supportive Care. 23, e61.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Forthcoming

    Death and Dying: Legal and ethical issues and the palliative care perspective

    Begovic, D., Salifu, Y. & Payne, S., 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)peer-review

  14. Published

    Improving hospital palliative care between COVID-19 waves: A retrospective cohort study

    Chidiac, C., Sedda, L., Walshe, C., Feuer, D., Flatley, M., Rodgerson, A. & Preston, N., 31/01/2025, In: Journal of Pain and Symptom Management. 69, 1, p. e37-e45

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published
  16. 2024
  17. Published

    ‘A good ending but not the end’: Exploring family preparations surrounding a relative’s death and the Afterlife – A qualitative study

    Liang, H.-J., Xiong, Q., Lin, P.-C., Tsai, J.-H. & Preston, N., 31/12/2024, In: Palliative Medicine. 38, 10, p. 1184-1193 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Cancer experience in metaphors: patients, carers, professionals, students: A scoping review

    Liu, Y., Semino, E., Rietjens, J. & Payne, S., 19/12/2024, In: BMJ Supportive & Palliative Care. 14, e3, p. e2366-e2376 11 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  19. Published

    Why are organisational approvals needed for low-risk staff studies in the UK? Procedures, barriers, and burdens

    Dunleavy, L., Board, R., Coyle, S., Dickman, A., Ellershaw, J. E., Gadoud, A., Halvorsen, J., Hulbert-Williams, N., Lightbody, C. E., Mason, S., Nwosu, A., Partridge, A., Payne, S., Preston, N., Swash, B., Taylor, V. & Walshe, C., 15/11/2024, In: BMC Health Services Research. 24, 1, 1408.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Understanding Experiences of Diabetes Distress: A Systematic Review and Thematic Synthesis

    Morales-Brown, L., Perez Algorta, G. & Salifu, Y., 14/11/2024, In: Journal of Diabetes Research. 2024

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Forthcoming

    Suffering and loss in Lewy body dementia: applying a palliative care lens to a longitudinal narrative study

    Bentley, A., Salifu, Y. & Walshe, C., 10/11/2024, (Accepted/In press) In: Palliative and Supportive Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    Exploring the contribution of cancer palliative care development toward alleviating the human crisis of suffering in low- and middle-income countries: A framework synthesis protocol

    Atreya, S., Rao, A., Dhyani, V. S., Mathew, M., Gursahani, R., Simha, S., Preston, N., Walshe, C. & Salins, N., 31/10/2024, In: Palliative and Supportive Care. 22, 5, p. 1489-1495 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Factors associated with the place of death of persons with advanced dementia: A systematic review of international literature with meta-analysis

    Tay, R., Tan, J. Y., Lim, B., Hum, A. Y., Simpson, J. & Preston, N., 31/10/2024, In: Palliative Medicine. 38, 9, p. 896-922 27 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  24. Published

    Opportunities and Challenges in Patient and Public Involvement and Engagement in Palliative Care Research

    Payne, S. A., Sumerfield, M. & Hughes, S., 31/10/2024, In: Journal of Palliative Medicine. 27, 10, p. 1288-1290 3 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  25. Published

    Hospital initiated palliative care interventions for adults with frailty: findings from a systematic review and narrative synthesis.

    Sharratt, P., Zacharias, A., Nwosu, A. & Gadoud, A., 17/09/2024, In: Age and Ageing. 53, 9, 14 p., afae190.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. E-pub ahead of print

    The lived experiences of hospice healthcare workers caring for adolescents and young adults with advanced cancer: An Interpretative Phenomenological Analysis

    Persaud, N., Walshe, C. & Brearley, S., 30/08/2024, (E-pub ahead of print) In: Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis

    Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J., 19/08/2024, In: BMC Palliative Care. 23, 209.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    Collaboration, coordination and communication as facilitators of transitions for patients with advanced cancer: a scoping review linked to the Pal-Cycles project

    Hooley, R. L., Payne, S., Begovic, D., Correa-Morales, J. E., Harding, A., Hasselaar, J. & Preston, N., 7/08/2024, In: BMC Palliative Care. 23, 1, 204.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    A palliative care approach for adult non-cancer patients with life-limiting illnesses is cost-saving or cost-neutral: a systematic review of RCTs

    Janke, K., Salifu, Y., Gavini, S., Preston, N. & Gadoud, A., 5/08/2024, In: BMC Palliative Care. 23, 12 p., 200.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    Writing research papers

    Walshe, C., 23/07/2024

    Research output: Exhibits, objects and web-based outputsBlog

  31. Published

    Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

    De Souza, J., Gillett, K., Salifu, Y. & Walshe, C., 18/07/2024, In: BMC Palliative Care. 23, 176.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published

    Advancing Palliative Care: Artificial Intelligence and Design Insights from the USA and the Netherlands

    Nwosu, A., 5/07/2024.

    Research output: Contribution to conference - Without ISBN/ISSN Otherpeer-review

  33. Published

    Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers

    Machin, L., Walshe, C. & Dunleavy, L., 1/07/2024, In: Journal of Palliative Care. 39, 3, p. 175-183 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    Perspectives of Chronic Kidney Disease Patients on Readiness for Advance Care Planning at Komfo Anokye Teaching Hospital, Ghana

    Boakye, A. S., Dzansi, G., Ofosu-Poku, R., Ansah, M. O., Owusu, A. K., Anyane, G., Addai, J., Dzaka, A. D. & Salifu, Y., 30/06/2024, In: Yale Journal of Biology and Medicine . 97, 2, p. 115-124 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals

    Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Nwosu, A., Gadoud, A., Board, R., Swash, B., Coyle, S., Dickson, A., Partridge, A., Halvorsen, J. & Hulbert-Williams, N., 25/06/2024, In: BMC Palliative Care. 23, 1, 159.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    Implementation of an advance care planning intervention in nursing homes: an international multiple case study

    Brazil, K., Walshe, C., Doherty, J., Harding, A., Preston, N., Bavelaar, L., Cornally, N., Di Giulio, P., Gonella, S., Hartigan, I., Henderson, C., Kaasalainen, S., Loucka, M., Sussman, T., Vlckova, K. & van der Steen, J. T., 1/06/2024, In: The Gerontologist. 64, 6, gnae007.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published

    Correction: Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework

    Salins, N., Rao, K., Damani, A., Hughes, S. & Preston, N., 28/05/2024, In: BMC Palliative Care. 23, 1, 133.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published
  39. Published

    Cancer experiences in metaphors: A scoping review in 4D PICTURE Project

    Liu, Y., Payne, S., Rayson, P., Lal, D., Korfage, I., Rietjens, J. & Semino, E., 9/05/2024, In: Palliative Medicine. 38, Suppl. 2024 EAPC WR Congress, A05.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  40. Published

    Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

    Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 1/05/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e727-e735 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Palliative Care in Advanced Heart Failure

    Gadoud, A., 1/05/2024, Handbook of Palliative Care . Kitchen, R., Faull, C., Russell, S. & Wilson, J. (eds.). 4th ed. WILEY-BLACKWELL

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  42. Published

    Community perspectives on structural barriers to dying well at home in Canada

    Chan, W.-S., Funk, L., Krawczyk, M., Cohen, S. R., Cherba, M., Dujela, C. & Stajduhar, K., 30/04/2024, In: Palliative and Supportive Care. 22, 2, p. 347-353 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 30/04/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e1478-e1487 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis

    Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  45. Published

    How clinicians recognise people who are dying: An integrative review

    Colquhoun-Flannery, E., Goodwin, D. & Walshe, C., 31/03/2024, In: International Journal of Nursing Studies. 151, 104666.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  46. Published

    Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods

    Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Randomised Controlled Trials (RCTs) of palliative care for adult non-cancer patients are cost-saving or cost-neutral

    Janke, K., Salifu, Y., Gavini, S., Preston, N. & Gadoud, A., 1/03/2024, In: Palliative Medicine. 38 , 1_suppl, p. 28 OA3.4.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  48. Published

    Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design

    Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., Prevost, A. T., Walshe, C. & Walwyn, R., 23/02/2024, In: PLoS ONE. 19, 2, e0297184.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. E-pub ahead of print

    Self-perceived preparedness of the new UK palliative medicine consultants: A survey of clinical and non-clinical preparedness after higher specialty training

    Hanchanale, S., Nwosu, A. & Boland, J. W., 23/02/2024, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 21/02/2024, In: BMJ Supportive and Palliative Care. 14, 1, p. 47-51 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  51. Published

    How can technology be used to support communication in palliative care beyond the covid-19 pandemic: A mixed-methods national survey of palliative care healthcare professionals

    Stanley, S., Finucane, A., Thompson, A. & Nwosu, A., 14/02/2024, In: BMC Palliative Care. 23, 40.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  52. Published

    Experiences and perceptions of men following breast cancer diagnosis: A Mixed Method Systematic Review

    Abboah-Offei, M., Bayou, J., Salifu, Y., Ayobami Afolabi, O. & Akudjedu, T., 6/02/2024, In: BMC Cancer. 24, 1, p. 179 1 p., 179.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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