Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. J. & Walshe, C., 15/01/2022, (Accepted/In press) In: Journal of the Royal Society of Medicine.

Research output: Contribution to journal › Journal article › peer-review

The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

Research output: Contribution to journal › Journal article › peer-review

Exploring the experiences of living with Lewy body dementia: An integrative review

Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.

Research output: Contribution to journal › Journal article › peer-review

The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

Bakthavatsalu, B., Walshe, C. & Simpson, J., 27/12/2021, (Accepted/In press) In: Chronic Illness.

Research output: Contribution to journal › Journal article › peer-review

Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers

Machin, L., Walshe, C. & Dunleavy, L., 13/12/2021, In: Journal of Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

Technology in Palliative Care (TIP): identification of digital health priorities for palliative care research using a modified Delphi method

Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/12/2021, (Accepted/In press) In: JMIR Aging.

Research output: Contribution to journal › Journal article › peer-review

A good death in the child with life shortening illness: A qualitative multiple-case study

Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

Research output: Contribution to journal › Journal article › peer-review

Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)

Dunleavy, L., Preston, N. & Walshe, C., 17/11/2021, (Accepted/In press) In: Journal of Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis

Coleman, H., Sanderson-Thomas, A. & Walshe, C., 17/11/2021, (Accepted/In press) In: Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Dunleavy, L., Walshe, C. & Preston, N., 10/11/2021, (Accepted/In press) In: Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

Research output: Contribution to journal › Journal article › peer-review

“Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 29/10/2021, In: Journal of Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research

Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 26/10/2021, In: Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

Applying an analytical process to longitudinal narrative interviews with couples living and dying with Lewy body dementia.

Bentley, A., Walshe, C. & Salifu, Y., 21/10/2021, (Accepted/In press) In: International Journal of Qualitative Methods.

Research output: Contribution to journal › Journal article › peer-review

What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

Research output: Contribution to journal › Journal article › peer-review

Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 6/09/2021, (Accepted/In press) In: International Journal of Health Policy and Management.

Research output: Contribution to journal › Journal article › peer-review

Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

Research output: Contribution to journal › Journal article › peer-review

The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.

Research output: Contribution to journal › Journal article › peer-review

Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

Research output: Contribution to journal › Journal article › peer-review

Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

Research output: Contribution to journal › Journal article › peer-review

Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

Drury, A., Payne, S. & Brady, A-M., 21/08/2021, In: Quality of Life Research. 18 p.

Research output: Contribution to journal › Journal article › peer-review

Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.

Research output: Contribution to journal › Journal article › peer-review

Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

Research output: Contribution to journal › Journal article › peer-review

Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

Research output: Contribution to journal › Journal article › peer-review

MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

Research output: Contribution to journal › Editorial › peer-review

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.

Research output: Contribution to journal › Journal article › peer-review

Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 20/07/2021, (Accepted/In press) In: Patient Education and Counseling.

Research output: Contribution to journal › Journal article › peer-review

Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method

Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

Research output: Contribution to journal › Journal article › peer-review

Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.

Research output: Contribution to journal › Journal article › peer-review

Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, In: Psycho-Oncology.

Research output: Contribution to journal › Journal article › peer-review

Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research

Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20

Research output: Contribution to journal › Journal article › peer-review

Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study

Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.

Research output: Contribution to journal › Journal article › peer-review

Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 23/04/2021, (Accepted/In press) In: Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 19/04/2021, (Accepted/In press) In: medRxiv.

Research output: Contribution to journal › Journal article

MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

Research output: Contribution to journal › Journal article › peer-review

Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

Research output: Contribution to journal › Journal article › peer-review

Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic

Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5

Research output: Contribution to journal › Journal article

International practice in relation to hastened death and assisted dying

Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.

Research output: Contribution to journal › Editorial › peer-review

Overview of voluntarily stopping eating and drinking to hasten death

Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.

Research output: Contribution to journal › Journal article › peer-review

Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

Research output: Contribution to journal › Journal article

Malignant pleural effusions: the patient experience

Jones, R., Steer, H., Preston, N. & Perkins, P., 11/03/2021, In: BMJ Supportive and Palliative Care.

Research output: Contribution to journal › Letter

No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

Research output: Contribution to journal › Journal article › peer-review