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International Observatory on End of Life Care

  1. 2020
  2. Published

    Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. E-pub ahead of print

    Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

    Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, (E-pub ahead of print) In: International Journal of Geriatric Psychiatry. 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    63 Systematic review of prognostic variables associated with mortality in adult patients with heart failure

    Hancock, S., Oriani, A., Johnson, M. J., Macleod, U. & Gadoud, A., 1/03/2020, Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. Suppl 1 ed. Vol. 10. p. A30-A31 (BMJ Supportive and Palliative Care).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNConference contribution/Paperpeer-review

  5. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M. & Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    European Palliative Sedation Project

    Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  8. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

    Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

    De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In: Palliative Medicine. 34, 2, p. 195-208 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials

    Oriani, A., Dunleavy, L., Sharples, P., Perez Algorta, G. & Preston, N. J., 9/01/2020, In: BMC Palliative Care. 19, 1, p. 6 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  15. Published

    Palliative Care for Older People

    Collingridge Moore, D. & Payne, S., 2020, Encyclopedia of Biomedical Gerontology. Rattan, S. (ed.). Elsevier Academic Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  16. 2019
  17. E-pub ahead of print

    The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

    Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M.-H., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

    Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G. & Bassal, C. & 5 others, De Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Telehealth in palliative care is being described but not evaluated: A systematic review

    Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

    Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In: BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G. & Pautex, S. & 4 others, Bassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K. & Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A. & Rossi, P. & 14 others, Segat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

    Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    Robotic technology for palliative and supportive care: Strengths, weaknesses, opportunities and threats

    Nwosu, A., Sturgeon, B., McGlinchey, T., Goodwin, C., Behera, A., Mason, S., Stanley, S. & Payne, T. R., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1106-1113 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R. & Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P. & Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  36. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  37. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  39. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Development of a hospice research culture through staff development, education and collaboration

    Stanley, S., McDougall, A., Chapman, L. & Nwosu, A., 16/04/2019, In: BMJ Supportive and Palliative Care. 9, 3, p. 359-360 2 p.

    Research output: Contribution to Journal/MagazineLetterpeer-review

  41. Published

    Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

    Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    Bioelectrical impedance vector analysis (BIVA) as a method to compare body composition differences according to cancer stage and type

    Nwosu, A., Mayland, C. R., Mason, S., Cox, T. F., Varro, A., Stanley, S. & Ellershaw, J., 19/02/2019, In: Clinical Nutition ESPEN. 30, p. 59-66 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

    Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In: COPD. 15, 6, p. 600-611 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  46. Published

    Palliative care for older people

    Moore, D. C. & Payne, S., 1/01/2019, Encyclopedia of Biomedical Gerontology. Rattan, S. (ed.). Academic Press, p. 8-17 10 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  47. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  48. Published

    The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

    Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published
  50. 2018
  51. Published

    Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

    Bunn, F., Lynch, J., Sharpe, R., Goodman, C., Walshe, C. E., Preston, N. J. & Froggatt, K. A., 6/12/2018, In: BMC Geriatrics. 18, 303, 15 p., 303.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  52. Published

    "We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

    Peacock, M., Turner, M. & Varey, S., 1/12/2018, In: Sociology. 52, 6, p. 1152-1168 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  53. Published

    Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

    Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In: BMJ Open. 8, 11 p., 026531.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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