International Observatory on End of Life Care

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2013
Published
Continuous sedation (CS) until death: mapping the literature by bibliometric analysis
Papavasiliou, E., Payne, S., Brearley, S., Brown, J. & Seymour, J., 06/2013, In: Journal of Pain and Symptom Management. 45, 6, p. 1073-1082 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How to appraise a systematic review
Taylor, P., Hussain, J. A. & Gadoud, A., 06/2013, In: British Journal of Hospital Medicine. 74, 6, p. 331-334 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A narrative literature review of the contribution of volunteers in end of life care services
Morris, S., Wilmot, A., Hill, M., Ockenden, N. & Payne, S., 05/2013, In: Palliative Medicine. 27, 5, p. 428-436 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How to appraise a qualitative study
Gadoud, A., Taylor, P. & Hussain, J. A., 05/2013, In: British Journal of Hospital Medicine. 74, 5, p. 271-274 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
Higginson, I. J., Evans, C. J., Grande, G., Preston, N., Morgan, M., McCrone, P., Lewis, P., Fayers, P., Harding, R., Hotopf, M., Murray, S. A., Benalia, H., Gysels, M., Farquhar, M., Todd, C. & MORECare, 23/04/2013, In: BMC Pulmonary Medicine. 11, 11 p., 111.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How to appraise a randomized controlled trial
Hussain, J. A., Gadoud, A. & Taylor, P., 04/2013, In: British Journal of Hospital Medicine. 74, 4, p. 218-222 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life decisions: a cross-national study of treatment preference discussions and surrogate decision-maker appointments
Evans, N., Pasman, H. R., Vega Alonso, T., Van den Block, L., Miccinesi, G., Van Casteren, V., Donker, G., Bertolissi, S., Zurriaga, O., Deliens, L., Onwuteaka-Philipsen, B., EUROIMPACT & Brearley, S., 03/2013, In: PLoS ONE. 8, 3, 12 p., e57965.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences of spouses of people with dementia in long-term care
Mullin, J., Simpson, J. & Froggatt, K., 03/2013, In: Dementia. 12, 2, p. 177-191 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers' delivery of medications for the person dying at home: preliminary findings from the 'unpacking the home' study
Turner, M., Seamark, D., Milligan, C., Thomas, C., Brearley, S. G., Wang, X., Blake, S. & Payne, S., 03/2013, In: BMJ Supportive and Palliative Care. 3, 1, p. 125-126 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Peer education for advance care planning: volunteers’ perspectives on a training programme and community engagement activities
Seymour, J., Almack, K., Kennedy, S. & Froggatt, K., 03/2013, In: Health Expectations. 16, 1, p. 43-55 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study
MacPherson, A., Walshe, C., O'Donnell, V. & Vyas, A., 03/2013, In: Palliative Medicine. 27, 3, p. 265-272 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the Symptom Experience of Patients with Gastrointestinal Cancers in the First Year Following Diagnosis: Findings from a Qualitative Longitudinal Study
Ellis, J., Brearley, S. G., Craven, O. & Molassiotis, A., 03/2013, In: Journal of Gastrointestinal Cancer. 44, 1, p. 60-67 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Working at the coalface: using action research to study ‘integrative medicine’ in the NHS
Welch, P., Thomas, C. & Bingley, A., 02/2013, In: European Journal of Integrative Medicine. 5, 1, p. 75-82 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Overcoming the challenges of translating mental health instruments into signed languages
Moore, K., Wright, B., Collingridge Moore, D., Ogden, R. & Rogers, K., 1/01/2013, In: International Journal on Mental Health and Deafness. 3, 1, p. 20-29 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A Study to develop integrated working between primary health care services and care homes. NIHR Service Delivery and Organisation programme.
Goodman, C., Davies, S. L., Dickinson, A., Gage, H., Froggatt, K., Morbey, H., Victor, C., Masey, H., Martin, W. & Iliffe, S., 01/2013, NIHR Service Delivery and Organisation Programme. 276 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
The impact of chemotherapy-related nausea on patients' nutritional status, psychological distress and quality of life
Farrell, C., Brearley, S. G., Pilling, M. & Molassiotis, A., 01/2013, In: Supportive Care in Cancer. 21, 1, p. 59-66 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A narrative exploration of older people’s transitions into residential care
Lee, V. S. P., Simpson, J. & Froggatt, K., 2013, In: Aging and Mental Health. 17, 1, p. 48-56 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A qualitative exploration of sensing the presence of the deceased following bereavement
Keen, C., Murray, C. & Payne, S., 2013, In: Mortality. 18, 4, p. 339-357 18 p.
Research output: Contribution to Journal/Magazine › Journal article
Unpublished
Cancer and seeking normality: a longitudinal, qualitative study to explore how patients with advanced cancer and their carers cope and maintain psychological wellbeing
Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P., Kernaghan, S. & Walshe, C., 2013, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Sensing the presence of the deceased: A Narrative Review
Keen, C., Murray, C. & Payne, S., 2013, In: Mental Health, Religion and Culture. 16, 4, p. 384-402 19 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Voices in a Knowledge Conversation: an exploration of two narrative representations of Adult Literacy Learners
Varey, S., 2013, Lancaster: Lancaster University. 409 p.
Research output: Thesis › Doctoral Thesis
2012
Published
The perspectives of bereaved family carers on dying at home: the study protocol of 'unpacking the home: family carers' reflections on dying at home
Payne, S., Brearley, S., Milligan, C., Seamark, D., Thomas, C., Wang, X., Blake, S. & Turner, M., 22/11/2012, In: BMC Palliative Care. 11, 5 p., 23.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Integrated working between residential care homes and primary care: a survey of care homes in England
Gage, H., Dickinson, A., Victor, C., Williams, P., Cheynel, J., Davies, S., Iliffe, S., Froggatt, K. A., Martin, W. & Goodman, C., 14/11/2012, In: BMC Geriatrics. 12, 10 p., 71.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A bereavement group for parents whose son or daughter died from cancer: how shared experience can lessen isolation
Grinyer, A., 11/2012, In: Mortality. 17, 4, p. 338-354 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
An exploratory study to clarify the cluster of symptoms predictive of chemotherapy-related nausea using random forest modeling
Molassiotis, A., Farrell, C., Bourne, K., Brearley, S. G. & Pilling, M., 11/2012, In: Journal of Pain and Symptom Management. 44, 5, p. 692-703 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Integrating palliative care within acute stroke services: developing a programme theory of patient and family needs, preferences and staff perspectives
Burton, C. & Payne, S., 11/2012, In: BMC Neurology. 11, 22
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A comparison of strategies to recruit older patients and carers to end-of-life research in primary care
Hanratty, B., Lowson, E., Holmes, L., Addington-Hall, J., Arthur, T. A. A., Grande, G., Payne, S. & Seymour, J., 27/09/2012, In: BMC Health Services Research. 12, 7 p., 342.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Form-filling, power and the ILP: tensions and tutor strategies in one adult literacy classroom
Varey, S. & Tusting, K., 09/2012, More powerful literacies. Hamilton, M., Tett, L. & Crowther, J. (eds.). Leicester: NIACE, p. 105-116 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Consensus building in palliative care : a Europe-wide Delphi study on common understandings and conceptual differences
Jünger, S., Payne, S., Brearley, S., Ploenes, V. & Radbruch, L., 08/2012, In: Journal of Pain and Symptom Management. 44, 2, p. 192-205 14 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Predictors of non-remission of depression in a palliative care population
Goodwin, L., Lee, W., Price, A., Rayner, L., Monroe, B., Sykes, N., Hansford, P., Higginson, IJ. & Hotopf, M., 1/07/2012, In: Palliative Medicine. 26, 5, p. 683-695 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Quality indicators for palliative care: Debates and dilemmas
Payne, S., Leget, C., Peruselli, C. & Radbruch, L., 25/06/2012, In: Palliative Medicine. 26, 5, p. 679-680 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
'Unpacking the home' - a social science approach to researching dying at home
Turner, M., Seamark, D., Milligan, C., Brearley, S., Wang, X., Blake, S. & Payne, S., 1/06/2012, In: BMJ Supportive and Palliative Care. 2, 2, 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Access to opioid medication in Europe - Letter to the Editor
Radbruch, L., Juenger, S., Mantel-Teeuwisee, A., Gilson, A., Cleary, J., Payne, S. & Scholten, W., 06/2012, In: Journal of Pain and Palliative Care Pharmacotherapy. 26, 2, p. 200-201 2 p.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Maintaining integrity in the face of death: a grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care
Horne, G., Seymour, J. & Payne, S., 06/2012, In: International Journal of Nursing Studies. 49, 6, p. 718-726 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
MORECare research methods guidance development: recommendations for statistical methods in palliative and end of life care research
Preston, N., Grande, G., Fayers, P., Pilling, M., Higginson, I. J., Short, V., Anscombe, E., Evans, C. & Benalia, H., 06/2012, In: Palliative Medicine. 26, 4, p. 416-417 2 p., OA42.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research
Preston, N., Short, V., Hollingworth, W., McCrone, P., Grande, G., Evans, C., Anscombe, E., Benalia, H., Higginson, I. J. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 541 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
MORECare research methods guidance development: recommendations for presenting results to stakeholders from palliative and end of life care research
Preston, N., Short, V., Grande, G., Anscombe, E., Higginson, I. J., Evans, C., Benalia, H. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 540-541 2 p., P198.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Illness perceptions, adjustment to illness, and depression in a palliative care population.
Price, A., Goodwin, L., Rayner, L., Shaw, E., Hansford, P., Sykes, N., Monroe, B., Higginson, I., Hotopf, M. & Lee, W., 31/05/2012, In: Journal of Pain and Symptom Management. 43, 5, p. 819-832 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Funding health and social services for older people: a qualitative study of the views of care recipients in the last year of life
Hanratty, B., Lowson, E., Holmes, L., Grande, G., Addington-Hall, J., Payne, S. & Seymour, J., 05/2012, In: Journal of the Royal Society of Medicine. 105, 5, p. 201-207 7 p., JRSM-11-0189.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Psychology for Nurses and the Caring Professions
Walker, J. (ed.), Payne, S. (ed.), Jarrett, N. (ed.) & Ley, T. (ed.), 05/2012, 4th ed. London: Open University Press. 360 p.
Research output: Book/Report/Proceedings › Book
Published
Retaining older staff members in care homes and hospices in England and Australia: the impact of environment
Rigby, J. & O'Connor, M., 05/2012, In: International Journal of Palliative Nursing. 18, 5, p. 235-239 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative medicine and smartphones: an opportunity for innovation?
Nwosu, A. & Curie, S., 1/03/2012, In: BMJ Supportive and Palliative Care. 2, Suppl 1, p. A58 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical students talking to hospice patients
Gadoud, A., Jones, L., Johnson, M., Adcock, Y., Arolker, M. & Barnes, J., 02/2012, In: Clinical Teacher. 9, 1, p. 9-13 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative and end of life care for children and young people: home, hospice, hospital
Grinyer, A., 02/2012, 2nd ed. ed. Oxford: Blackwell. 184 p.
Research output: Book/Report/Proceedings › Book
Published
Breaking bad news sensitively: what is important to patients in their last year of life?
Hanratty, B., Lowson, E., Holmes, L., Grande, G., Jacoby, A., Payne, S., Seymour, J. & Whitehead, M., 31/01/2012, In: BMJ Supportive and Palliative Care. 2, 1, p. 24-28 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
An evaluation of research capacity building from the Cancer Experiences Collaborative
Payne, S., Seymour, J., Froggatt, K., Molassiotis, A., Lloyd-Williams, M., Foster, C., Addington-Hall, J., Rolls, L. & Todd, C., 2012, In: BMJ Supportive and Palliative Care. 2, 3, p. 280-285 6 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Blood transfusions for anaemia in patients with advanced cancer
Preston, N. J., Hurlow, A., Brine, J. & Bennett, M. I., 2012, In: Cochrane Database of Systematic Reviews. n/a, 2, 23 p., CD009007.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Foreword
Payne, S., 2012, Palliative Care Nursing: A Guide to Practice. O'Connor, M., Lee, S. & Aranda, S. (eds.). Third ed. Australia: Ausmed, p. vii-viii 2 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Improving Hospice Environments for Older People in England: A Documentary Analysis
Rigby, J., Payne, S. & Milligan, C., 2012. 0 p.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Methods of building and improving the research capacity of hospices
Turner, M. & Payne, S., 2012, In: European Journal of Palliative Care. 19, 1, p. 34-37 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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