International Observatory on End of Life Care

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Published
What are the fears and support needs of those living alone in the last year of life and who responds?
Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis
Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Weighted blankets and sleep in autistic children - a randomised controlled trial
Gringras, P., Green, D., Wright, B., Rush, C., Sparrowhawk, M., Pratt, K., Allgar, V., Hooke, N., Moore, D., Zaiwalla, Z. & Wiggs, L., 8/09/2014, In: Journal of Sleep Research. 23, Suppl. 1, p. 320-320 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Wearable smartwatch technology to monitor symptoms in advanced illness
Nwosu, A., Quinn, C., Samuels, J., Mason, S. & Payne, T. R., 1/06/2018, In: BMJ Supportive and Palliative Care. 2018, 8, 1 p., 237.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: a grounded theory
Firn, J., Preston, N. J. & Walshe, C. E., 14/07/2017, In: BMC Palliative Care. 17, 12 p., 7.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Volunteering and end-of-life care: An evidence based toolkit
Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.
Research output: Book/Report/Proceedings › Other report
Published
Volunteering and community
Sallnow, L. & Richardson, H., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective . Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 185-196 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Voices in a Knowledge Conversation: an exploration of two narrative representations of Adult Literacy Learners
Varey, S., 2013, Lancaster: Lancaster University. 409 p.
Research output: Thesis › Doctoral Thesis
Published
Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption
Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 21/02/2024, In: BMJ Supportive and Palliative Care. 14, 1, p. 47-51 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Views about the use of traditional Chinese medicine in the UK.
Chapman, A., Payne, S., Seymour, J. & Holloway, M., 04/2006, In: Palliative Medicine. 20, 3, p. 253 Abstract number: 94.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Viewing patient need through professional writings: a systematic 'ethnographic' review of palliative care professionals' experiences of caring for people with cancer. at the end of life.
McDermott, E., Bingley, A. F., Thomas, C., Payne, S., Seymour, J. & Clark, D., 01/2006, In: Progress in Palliative Care. 14, 1, p. 9-18 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Vetting of medical imaging referrals: A scoping review of the radiographers’ role
CLARKE, J., Akudjedu, T. & Salifu, Y., 31/07/2023, In: Radiography. 29, 4, p. 767-776 10 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung: eine methodologische systematische Übersichtsarbeit
Jünger, S., Payne, S. A., Brine, J. J., Radbruch, L. & Brearley, S. G., 08/2016, In: Zeitschrift für Palliativmedizin. 17, 5, p. 174 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review
Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)
Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K., Karen, L., & 7 othersGuido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review
Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system
Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using stroke to explore the Life Thread Model : an alternative approach to understanding rehabilitation following an acquired disability.
Ellis-Hill, C., Payne, S. & Ward, C., 2008, In: Disability and Rehabilitation. 30, 2, p. 150-159 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom
Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Using computers in the analysis of qualitative data.
Froggatt, K., 09/2001, In: Palliative Medicine. 15, 6, p. 517-520 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with Heart Failure and Chronic Obstructive Pulmonary Disease (COPD)
Small, N., Gardiner, C., Barnes, S., Gott, M., Payne, S., Seamark, D. & Halpin, D., 10/2010, In: Palliative Medicine. 24, 7, p. 740-741 2 p.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
User-involvement in palliative care : a scoping study : final report.
Payne, S., Gott, M., Small, N., Oliviere, D., Thomas, J., Young, E. & Sargeant, A., 2005, St. Christopher's Hospice.
Research output: Working paper
Published
User involvement in palliative care : motivational factors for service users and professionals.
Sargeant, A., Payne, S., Gott, M., Small, N. & Oliviere, D., 06/2007, In: Progress in Palliative Care. 15, 3, p. 126-132 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
User involvement in palliative care : a scoping exercise.
Sargeant, A. & Payne, S., 2004, In: READ (Research Endeavours and Dissemination), School of Nursing & Midwifery, University of Sheffield. 2, p. 4-5 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of UK voluntary sector cancer support services
Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 2009, In: European Journal of Palliative Care. 16, p. 99-99 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast
Nwosu, A., Monnery, D., Reid, V. & Chapman, L., 31/08/2016, In: BMJ Supportive and Palliative Care. 7, 2, p. 212-217 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of antiemetics in the management of chemotherapy-related nausea and vomiting in current UK practice
Molassiotis, A., Brearley, S. G. & Stamataki, Z., 2011, In: Supportive Care in Cancer. 19, 7, p. 949-956 8 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Unpacking the Politics of Evaluation: A Dramaturgical Analysis
O'Brien, T., Payne, S., Nolan, M. & Ingleton, C., 10/2010, In: Evaluation. 16, 4, p. 431-444 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Unpacking the home' - a social science approach to researching dying at home
Turner, M., Seamark, D., Milligan, C., Brearley, S., Wang, X., Blake, S. & Payne, S., 1/06/2012, In: BMJ Supportive and Palliative Care. 2, 2, 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)
Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Undertaking bereavement research : sensitivities and sensibilities.
Payne, S. & Field, D., 2004, In: Grief Matters : Australian Journal of Bereavement. 7, 3, p. 52-56 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the Symptom Experience of Patients with Gastrointestinal Cancers in the First Year Following Diagnosis: Findings from a Qualitative Longitudinal Study
Ellis, J., Brearley, S. G., Craven, O. & Molassiotis, A., 03/2013, In: Journal of Gastrointestinal Cancer. 44, 1, p. 60-67 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic. A multi-national EAPC volunteer taskforce survey
Walshe, C., Pawłowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Sangild Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., 28/02/2023, In: Palliative Medicine. 37, 2, p. 203-214 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise
Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 28/02/2022, In: Palliative Medicine. 36, 2, p. 216-218 3 p.
Research output: Contribution to Journal/Magazine › Journal article
E-pub ahead of print
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. EM., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding nurses' roles in nurse-led chemotherapy clinics: a two phase study using survey and ethnographic observational methods
Farrell, C., Walshe, C. & Molassiotis, A., 09/2013, In: European Journal of Cancer. 49, Supplement 3, p. S370-S370 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Understanding implementation strategies to support the delivery of palliative care in long term care facilities (LTCFs): a scoping review from the PACE study.
Collingridge Moore, D., Payne, S., Ling, J., Van den Block, L. & Froggatt, K., 2019.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Unpublished
Understanding Health Inequalities: people, time and place.[Invited speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Understanding health inequalities: Locating people in geographical and social spaces
Gatrell, A. C., Thomas, C., Bennett, S., Bostock, L., Popay, J., Williams, G. & Shahtahmasebi, S., 2000, Understanding health inequalities. Graham, H. (ed.). Buckingham: Open University Press, p. 156-169 14 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Understanding care homes : a research and development perspective.
Froggatt, K., Davies, S. & Meyer, J., 2009, London: Jessica Kingsley. 272 p.
Research output: Book/Report/Proceedings › Book
Published
Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom
Turner, M. & Payne, S., 12/2008, In: Palliative Medicine. 22, 8, p. 973-974 2 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Unaddressed biases in reported prevalence of continuous deep sedation until death
Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Trying to be sociological : our experience of conducting a three year research project on 'The psychosocial needs of cancer patients and their main carers'.
Thomas, C., 12/2001, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Translation and psychometric assessment of the Persian version of the Rhodes Index of Nausea, Vomiting and Retching (INVR) scale for the assessment of chemotherapy-induced nausea and vomiting
Moradian, S., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M., Molassiotis, A. & Walshe, C., 11/2014, In: European Journal of Cancer Care. 23, 6, p. 811-818 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Transitions between care settings at the end of life in the Netherlands: results from a nationwide study
Abarshi, E., Echteld, M., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 03/2010, In: Palliative Medicine. 24, 2, p. 166-174 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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