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International Observatory on End of Life Care

  1. Unpublished

    Older men who care: understanding their support and support needs

    Milligan, C. & Morbey, H., 23/12/2013, (Unpublished) Lancaster: Lancaster University Centre for Ageing Research . 38 p.

    Research output: Book/Report/ProceedingsBook

  2. Published

    Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions

    Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Older Chinese people's views on food : implications for supportive cancer care.

    Payne, S., Seymour, J., Chapman, A. & Holloway, M., 11/2008, In: Ethnicity and Health. 13, 5, p. 497-514 18 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    Observing district nurses roles in palliative care: an understanding of aims and actions

    Walshe, C., Payne, S. & Luker, K., 2012, In: BMJ Supportive and Palliative Care. 2, Supplement 1, p. A2-A3 2 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  5. Published

    Observational study of patient-centeredness and 'positive' approach on outcomes of general practice consultations.

    Little, P., Everitt, H., Williamson, I., Warner, G., Moore, M., Gould, C., Ferrier, K. & Payne, S., 20/10/2001, In: BMJ. 323, 7318, p. 908-911 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Observation and action research.

    Ballinger, C., Yardley, L. & Payne, S., 2004, Research methods for clinical and health psychology. Marks, D. F. & Yardley, L. (eds.). London: Sage, 248 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  7. Published

    Nursing research : do we still need to be concernced?

    Payne, S., 2005, In: International Journal of Palliative Nursing. 11, 3, p. 106-107 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    Nursing life: 60 seconds with Sheila Payne

    Payne, S., 04/2011, In: Nursing Times. 107, 13, p. 24 1 p.

    Research output: Contribution to Journal/MagazineJournal article

  9. Published

    Nursing care, documentation and discourse.

    Davis, M. P. & Payne, S., 06/2009, In: Progress in Palliative Care. 17, 3, p. 109-110 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Nursing care : what is the optimal standard?

    Payne, S., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Nursing and palliative care: better practices within the team.

    O'Connor, M. & Payne, S., 12/2010, In: Progress in Palliative Care. 18, 6, p. 328-329 2 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  12. Published

    Nurse specialist assessment and management of palliative care patients who are depressed : a study of perceptions and attitudes.

    Lloyd-Williams, M. & Payne, S., 2002, In: Journal of Palliative Care. 18, 4, p. 270-274 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis

    Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J. E., 25/08/2023, In: medRxiv.

    Research output: Contribution to Journal/MagazineJournal article

  15. Published

    No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

    Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W., & 24 othersPiers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    NICE supportiveand palliative care guidance.

    Payne, S., 2004, In: International Journal of Palliative Nursing. 10, 3, p. 123

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    New age for end-of-life care.

    Payne, S., 2008, In: Cancer Nursing Practice. 7, 7, p. 28-31 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design

    Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Negotiating the contested terrain of narrative methods in illness contexts.

    Thomas, C., 05/2010, In: Sociology of Health and Illness. 32, 4, p. 647-660 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Unpublished

    Narratives of living and dying with cancer. [Invited speaker]

    Thomas, C., 2007, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  21. Unpublished

    Narrative Research Methods in Palliative Care Contexts. [Invited plenary paper]

    Thomas, C., 2008, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  22. Published

    Narrative research methods in palliative care contexts : two case studies.

    Thomas, C., Reeve, J., Bingley, A. F., Brown, J., Payne, S. & Lynch, T., 05/2009, In: Journal of Pain and Symptom Management. 37, 5, p. 788-796 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Narrative research in palliative care: reviewing methods used to analyse stories about the end of life.

    Brown, J., Thomas, C., Payne, S., Reeve, J. & Bingley, A., 2008, In: Palliative Medicine. 22, 4, p. 551-551 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Narrative research in palliative care.

    Rolls, L. & Payne, S., 12/2008, In: International Journal of Palliative Nursing. 14, 12, p. 576-577 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Narrative methods in supportive and palliative care: an annotated bibliography

    Rolls, E., Payne, S. & Brown, J., 2009, Lancaster: Observatory Publications. 130 p.

    Research output: Book/Report/ProceedingsBook

  26. Published

    Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

    Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In: BMJ Open. 8, 11 p., 026531.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

    Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

    Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  30. Unpublished

    My Experience as a CECo Scholar

    Rigby, J., 10/05/2009, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  31. Published

    Motivational differences between service users and professionals can affect user involvement in palliative care.

    Sargeant, A., Payne, S., Gott, M., Small, N. & Oliviere, D., 03/2006, In: Palliative Medicine. 20, 2, p. 136-136 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published

    MORECare research methods guidance development: recommendations for presenting results to stakeholders from palliative and end of life care research

    Preston, N., Short, V., Grande, G., Anscombe, E., Higginson, I. J., Evans, C., Benalia, H. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 540-541 2 p., P198.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  33. Published

    MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research

    Preston, N., Short, V., Hollingworth, W., McCrone, P., Grande, G., Evans, C., Anscombe, E., Benalia, H., Higginson, I. J. & Todd, C., 06/2012, In: Palliative Medicine. 26, 4, p. 541 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  34. Published

    MORECare research methods guidance development: recommendations for statistical methods in palliative and end of life care research

    Preston, N., Grande, G., Fayers, P., Pilling, M., Higginson, I. J., Short, V., Anscombe, E., Evans, C. & Benalia, H., 06/2012, In: Palliative Medicine. 26, 4, p. 416-417 2 p., OA42.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  35. Published

    MoreCare research methods guidance development: recommendations for using mixed methods to develop and evaluate complex interventions in palliative and end of life care

    Farquhar, M., Preston, N., Short, V., Evans, C., Walshe, C., Grande, G., Benalia, H., Anscombe, E., Higginson, I. J. & Todd, C., 2012, In: Palliative Medicine. 26, 4, p. 419 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  36. Published

    Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol

    Rijpstra, M., Vissers, K., Centeno, C., Menten, J., Radbruch, L., Mercadante, S., Van der Elst, M., Adile, C., Arantzamendi, M., Kuip, E., Payne, S., Preston, N. & Hasselaar, J., 28/01/2023, In: BMC Palliative Care. 22, 1, 9 p., 8.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published

    Mixed Method Research in Palliative Care

    Walshe, C. E., 6/06/2018, Textbook of Palliative Care. MacLeod, R. D. & van den Block, L. (eds.). Cham: Springer, 19 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNEntry for encyclopedia/dictionary

  38. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  39. Published

    Mind your language; the complexity of interviewing older people at end of life.

    Larkin, P., Casey, D., Leime, A., O'Shea, E., Murphy, K., Froggatt, K. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 542-543 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Methods of building and improving the research capacity of hospices

    Turner, M. & Payne, S., 2012, In: European Journal of Palliative Care. 19, 1, p. 34-37 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care.

    Preston, N. & Tutton, E., 03/2004, In: Palliative Medicine. 18, 2, p. 167

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Unpublished

    Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)

    Preston, N., 2004, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  43. Unpublished

    Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)

    Preston, N., 2004, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  44. Unpublished

    Men's grief responses

    Hughes, S., 1999, (Unpublished) Manchester Metropolitan University.

    Research output: ThesisMaster's Thesis

  45. Published

    Meet the Expert Session: user Involvement and Palliative Care.

    Oliviere, D. & Payne, S., 2007, In: European Journal of Palliative Care. 10th C, p. 102-102 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  46. Published

    Medicine, gender and disability : disabled women's health care encounter.

    Thomas, C., 04/2001, In: Health Care for Women International. 22, 3, p. 245-262 18 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Medical Students Writing on Death, Dying and Palliative Care: A Qualitative Analysis of Reflective Essays Palliative Medicine.

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/03/2016, Abstracts of the 9th World Research Congress of the European Association for Palliative Care (EAPC). 6 ed. Vol. 30. (Palliative Medicine).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNConference contribution/Paperpeer-review

  48. Published

    Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Medical students talking to hospice patients

    Gadoud, A., Jones, L., Johnson, M., Adcock, Y., Arolker, M. & Barnes, J., 02/2012, In: Clinical Teacher. 9, 1, p. 9-13 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    Medical sociology and disability theory.

    Thomas, C., 2010, New directions in the sociology of chronic and disabling conditions : assaults on the lifeworld. Scambler, G. & Scambler, S. (eds.). Basingstoke ; New York: Palgrave Macmillan, 233 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

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