International Observatory on End of Life Care

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Published
Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study
Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring and understanding the views of older Chinese people about cancer and end-of-life care : final report.
Payne, S., Seymour, J., Holloway, M. & Chapman, A., 2005.
Research output: Working paper
Published
Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study
Snape, D., Kirkham, J., Preston, J., Popay, J., Britten, N., Collins, M., Froggatt, K., Gibson, A., Lobban, F., Wyatt, K. & Jacoby, A., 10/01/2014, In: BMJ Open. 4, 1, 12 p., e004217.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
Exploring Experience – disciplinary perspectives. [Invited speaker]
Thomas, C., 2006, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Exploring Experience: perspectives in disability studies and medical sociology.
Thomas, C., 2006.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
E-pub ahead of print
Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers
Machin, L., Walshe, C. & Dunleavy, L., 13/12/2021, (E-pub ahead of print) In: Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography
Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 31/07/2022, In: Journal of Clinical Nursing. 31, 13-14, p. 1947-1959 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the care needs of patients with advanced COPD : an overview of the literature.
Gardiner, C., Gott, M., Payne, S., Small, N., Barnes, S., Halpin, D., Ruse, C. & Seamark, D., 02/2010, In: Respiratory Medicine. 104, 2, p. 159-165 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project
Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Exploring the end of life decision-making and hospital experiences of families who did not donate organs or tissues for transplant operations : final report.
Sque, M., Allardyce, D., Long, T. & Payne, S., 02/2006, UK Transplant.
Research output: Working paper
Published
Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study
Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the experiences of living with Lewy body dementia: An integrative review
Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
Exploring the impact of user involvement on health and social care services for cancer in the UK.
Attree, P., Morris, S., Clifton, M., Hinder, S. & Vaughan, S., 01/2009, (Unpublished) Lancaster, UK, 92 p.
Research output: Working paper
Published
Exploring the influence of service user involvement on health and social care services for cancer.
Attree, P., Morris, S., Payne, S., Vaughan, S. & Hinder, S., 03/2011, In: Health Expectations. 14, 1, p. 48-58 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting
Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the research education needs of hospices : a focus group study conducted in Manchester and London.
Payne, S., Turner, M., Kerr, C., Amir, Z. & Brearley, S., 12/2008, Help the Hospices.
Research output: Working paper
Published
Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study
Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study
Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F., & 9 othersMercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Factors contributing to therapeutic exercise adherance for low back pain.
Dean, S., Weinman, J. & Payne, S., 2001, In: Proceedings of the British Psychological Society. 9, 1, p. 53-53 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Facts and indicators on palliative care development in 52 countries of the WHO European region: results of an EAPC task force
Centeno, C., Clark, D., Lynch, T., Rocafort, J., Praill, D., De Lima, L., Greenwood, A., Flores, L. A., Brasch, S. & Giordano, A., 09/2007, In: Palliative Medicine. 21, 6, p. 463-471 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Falling from grace or into expert hands? : alternative accounts about falling in older people.
Ballinger, C. & Payne, S., 12/2000, In: British Journal of Occupational Therapy. 63, 12, p. 573-579 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Families : a resource for home care
Payne, S., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Families who did not donate organs : recruiting potential participants : final report
Sque, M., Long, T. & Payne, S., 2004, British Organ Donor Society and National Lottery Community Fund.
Research output: Working paper
Published
Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study
Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers' delivery of medications for the person dying at home: preliminary findings from the 'unpacking the home' study
Turner, M., Seamark, D., Milligan, C., Thomas, C., Brearley, S. G., Wang, X., Blake, S. & Payne, S., 03/2013, In: BMJ Supportive and Palliative Care. 3, 1, p. 125-126 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Family carers in palliative care : a guide for health and social care professionals.
Hudson, P., Payne, S., Hudson, P. (ed.) & Payne, S. (ed.), 2009, Oxford: Oxford University Press. 309 p.
Research output: Book/Report/Proceedings › Book
Published
Family carers providing support to a person dying in the home setting: a narrative literature review
Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers’ experiences of coping  with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries
Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study
Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family members' experiences of assisted dying: A systematic literature review with thematic synthesis
Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review
Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Feminism and disability : the theoretical and political significance of the personal and the experiential.
Thomas, C., 2001, Disability, politics and the struggle for change. Barton, L. (ed.). London: David Fulton Publications, p. 48-58 11 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Final report of an evaluation of the North Trent Cancer Network District Nurse/Community Nurse education programme in palliative care.
Hughes, P., Payne, S. & Noble, B., 2004, London: Department of Health.
Research output: Working paper
Published
Final transitions to place of death: Patients and families wishes
EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Finding a language to talk about older people : clinical discourses used by nurses.
Payne, S. & Hardy, M., 2001, In: Proceedings of the British Psychological Society. 9, 2, p. 145-145 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Flooded homes, broken bonds: the meaning of home, psychological processes and their impact on psychological health in a disaster.
Carroll, B., Morbey, H., Balogh, R. & Araoz, G., 06/2009, In: Health and Place. 15, 2, p. 540-547 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Following bereavement, poor health is more likely in carers who perceived that their support from health services was insufficient or whose family member did not die in the carer’s preferred place of death: commentary on: McNamara B, Rosenwax L. Which carers of family members at the end of life need more support from health services and why? Social Science and Medicine 2010, 70: 1035-1041
Payne, S., 2010, In: Evidence-Based Nursing. 13, 3, p. 94-95 2 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Foreword
Payne, S., 2012, Palliative Care Nursing: A Guide to Practice. O'Connor, M., Lee, S. & Aranda, S. (eds.). Third ed. Australia: Ausmed, p. vii-viii 2 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Foreword.
Payne, S., 2006, An annotated bibliography for the management of pain in the older adult.. Schofield, P., Dunham, M., Clarke, A., Faulkner, M., Ryan, T. & Howarth, A. (eds.). Sheffield: University of Sheffield, School of Nursing and Midwifery.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Foreword.
Payne, S., 2006, An annotated bibliography for the management of pain in the older adult. Schofield, P., Dunham, M., Clarke, A., Faulkner, M., Ryan, T. & Howarth, A. (eds.). Sheffield: University of Sheffield, School of Nursing and Midwifery
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings
Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Form-filling, power and the ILP: tensions and tutor strategies in one adult literacy classroom
Varey, S. & Tusting, K., 09/2012, More powerful literacies. Hamilton, M., Tett, L. & Crowther, J. (eds.). Leicester: NIACE, p. 105-116 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
From sedation to continuous deep sedation until death: how has the conceptual base of the practice changed over time? addendum
Papavasiliou, E., Brearley, S., Seymour, J., Brown, J. & Payne, S., 02/2014, In: Journal of Pain and Symptom Management. 47, 2, p. 370 1 p., 3.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
From sedation to continuous sedation until death: how has the conceptual basis of sedation in end-of-life care changed over time?
Papavasiliou, E. S., Brearley, S. G., Seymour, J. E., Brown, J., Payne, S. A. & EUROIMPACT, 11/2013, In: Journal of Pain and Symptom Management. 46, 5, p. 691-706 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
From understanding to implementation : meeting the needs of families and individuals affected by post mortem organ retention : final report.
Sque, M., Long, T. & Payne, S., 2004, London: Department of Health and the Retained Organs Commission.
Research output: Working paper
Published
Frontline direct care workers experiences of providing domiciliary care towards the end of life: a systematic literature review and narrative synthesis
Hughes, S., Holt, V. L. & Preston, N. J., 19/05/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Funding health and social services for older people: a qualitative study of the views of care recipients in the last year of life
Hanratty, B., Lowson, E., Holmes, L., Grande, G., Addington-Hall, J., Payne, S. & Seymour, J., 05/2012, In: Journal of the Royal Society of Medicine. 105, 5, p. 201-207 7 p., JRSM-11-0189.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Gastro-intestinal cancer patients: how they perceive and cope with disease and treatment-related symptoms over a 12-month period
Brearley, S. G., Craven, O., Wilson, B., Brunton, L. & Molassiotis, A., 09/2009, In: EJC Supplements. 7, 2, p. 234-234 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Gate keeping and legitimisation were central in the interactions between informal carers of older people and healthcare workers.
May, J., Ellis-Hill, C. & Payne, S., 07/2002, In: Evidence-Based Nursing. 5, 3, p. 95-95 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Gatekeeping and legitimisation : how informal carers' relationship with health care workers is revealed in their everyday interactions.
May, J., Ellis-Hill, C. & Payne, S., 11/2001, In: Journal of Advanced Nursing. 36, 3, p. 364-375 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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