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International Observatory on End of Life Care

  1. Journal article
  2. Published

    Correction: Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework

    Salins, N., Rao, K., Damani, A., Hughes, S. & Preston, N., 28/05/2024, In: BMC Palliative Care. 23, 1, 133.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

    Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 1/05/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e727-e735 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 30/04/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e1478-e1487 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Community perspectives on structural barriers to dying well at home in Canada

    Chan, W.-S., Funk, L., Krawczyk, M., Cohen, S. R., Cherba, M., Dujela, C. & Stajduhar, K., 30/04/2024, In: Palliative and Supportive Care. 22, 2, p. 347-353 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods

    Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design

    Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., Prevost, A. T., Walshe, C. & Walwyn, R., 23/02/2024, In: PLoS ONE. 19, 2, e0297184.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. E-pub ahead of print

    Self-perceived preparedness of the new UK palliative medicine consultants: A survey of clinical and non-clinical preparedness after higher specialty training

    Hanchanale, S., Nwosu, A. & Boland, J. W., 23/02/2024, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 21/02/2024, In: BMJ Supportive and Palliative Care. 14, 1, p. 47-51 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    How can technology be used to support communication in palliative care beyond the covid-19 pandemic: A mixed-methods national survey of palliative care healthcare professionals

    Stanley, S., Finucane, A., Thompson, A. & Nwosu, A., 14/02/2024, In: BMC Palliative Care. 23, 40.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Experiences and perceptions of men following breast cancer diagnosis: A Mixed Method Systematic Review

    Abboah-Offei, M., Bayou, J., Salifu, Y., Ayobami Afolabi, O. & Akudjedu, T., 6/02/2024, In: BMC Cancer. 24, 1, p. 179 1 p., 179.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)

    Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development

    Chan, W.-S., Payne, S. & Funk, L., 2/01/2024, In: Mortality. 29, 1, p. 159-175 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial

    Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)

    Hocaoglu, M., Murtagh, F., Walshe, C., Chambers, R., Maddocks, M., Sleeman, K., Oluyase, A., Dunleavy, L., Bradshaw, A., Bajwah, S., Fraser, L., Preston, N. & Irene, H., 31/12/2023, In: Health and Quality of Life Outcomes. 21, 12 p., 29.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings

    Thelen, M., Walshe, C. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1474 - 1483 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study

    Dunleavy, L., Preston, N. & Walshe, C., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1540 - 1553 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published
  19. Published

    A Grounded Theory Study Exploring Palliative Care Healthcare Professionals’ Experiences of Managing Digital Legacy as Part of Advance Care Planning for People Receiving Palliative Care

    Stanley, S., Higginbotham, K., Finucane, A. & Nwosu, A., 31/10/2023, In: Palliative Medicine. 37, 9, p. 1424-1433 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    The lived experiences of UK physiotherapists involved in Cauda Equina Syndrome litigation: A qualitative study

    Yeowell, G., Leech, R., Greenhalgh, S., Willis, E. & Selfe, J., 14/09/2023, In: PLoS One. 18, 9, e0290882.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis

    Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J. E., 25/08/2023, In: medRxiv.

    Research output: Contribution to Journal/MagazineJournal article

  22. Published
  23. Published

    Stakeholder Engagement as a Strategy to Enhance Palliative Care Involvement in Intensive Care Units: A Theory of Change Approach

    Rao, S., Salins, N., Remawi, B., Rao, S., Shanbaug, V., Arjun, N. R., Bhat, N., Shetty, R., Karanth, S., Gupta, V., Jahan, N., Setlur, R., Simha, S., Walshe, C. & Preston, N., 30/06/2023, In: Journal of Critical Care. 75, 7 p., 154244.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Sense of Coherence at End of Life in Older People: An Interpretive Description

    Gagne Henderson, R., Holland, C. & Walshe, C., 1/06/2023, In: Journal of Hospice and Palliative Nursing . 25, 3, p. 165-172 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 1/06/2023, In: Chronic Illness. 19, 2, p. 339-353 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning

    ACTION Consortium, 31/05/2023, In: Palliative Medicine. 37, 5, p. 707-718 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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