International Observatory on End of Life Care

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Journal article
Published
Palliative care interventions in advanced dementia (Review)
Murphy, E., Froggatt, K. A., Connolly, S., O'Shea, E., Sampson, E., Casey, D. & Devane, D., 2/12/2016, In: Cochrane Database of Systematic Reviews. 12, 50 p., CD011513.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays
Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Collecting biological material from palliative care patients in the last weeks of life: a feasibility study
Coyle, S., Scott, A., Nwosu, A., Latten, R., Wilson, J., Mayland, C. R., Mason, S., Probert, C. & Ellershaw, J., 10/11/2016, In: BMJ Open. 6, 11, 6 p., e011763.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Language barriers to defining concepts in medicine: the case of palliative sedation
Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cochrane corner: interventions for the management of malignant pleural effusions
Clive, A., Bhatnagar, R., Preston, N. J., Maskell, N. & Jones, H. E., 31/10/2016, In: Thorax. 71, 10, p. 964-966 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Association of Hydration Status with Physical Signs, Symptoms and Survival in Advanced Cancer—The Use of Bioelectrical Impedance Vector Analysis (BIVA) Technology to Evaluate Fluid Volume in Palliative Care: An Observational Study
Nwosu, A., Mayland, C. R., Mason, S., Cox, T. F., Varro, A. & Ellershaw, J., 27/09/2016, In: PLoS ONE. 11, 9, 20 p., 0163114.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Online learning in palliative care: does it improve practice?
Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast
Nwosu, A., Monnery, D., Reid, V. & Chapman, L., 31/08/2016, In: BMJ Supportive and Palliative Care. 7, 2, p. 212-217 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review
Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
Walshe, C. E., Perez Algorta, G. D., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A. & Preston, N. J., 13/07/2016, In: BMC Palliative Care. 15, 9 p., 60.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease
Siouta, N., van Beek, K., van der Eerden, M., Preston, N. J., Hasselaar, J., Hughes, S., Garralda, E., Centeno, C., Csikos, A., Groot, M., Radbruch, L., Payne, S. A. & Menten, J., 8/07/2016, In: BMC Palliative Care. 15, 56, 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries
Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Interventions for the management of malignant pleural effusions: a network meta-analysis
Clive, A. O., Jones, H. E., Bhatnagar, R., Preston, N. J. & Maskell, N., 11/05/2016, In: The Cochrane Library. 5, 244 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective
EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences
Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions
Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Longitudinal bioimpedance assessments to evaluate hydration in POEMS syndrome
Nwosu, A., Morris, L., Mayland, C. R., Mason, S., Pettitt, A. & Ellershaw, J., 28/04/2016, In: BMJ Supportive and Palliative Care. 2016, 6, p. 369-372 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study
Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Improving palliative care for prisoners: the 'both sides of the fence' study
Turner, J. M., 03/2016, In: Prison Service Journal. 224
Research output: Contribution to Journal/Magazine › Journal article
Published
Building a taxonomy of integrated palliative care initiatives: results from a focus group
Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? a systematically constructed narrative synthesis
Firn, J., Preston, N. J. & Walshe, C. E., 03/2016, In: Palliative Medicine. 30, 3, p. 240-256 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care
Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Strategies designed to help healthcare professionals to recruit participants to research studies (Review)
Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)
Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries
Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model
Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses
Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Orientating disability studies to disablist austerity: applying Fraser’s insights
Dodd, S. R., 2016, In: Disability and Society. 31, 2, p. 149-165 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries
EURO IMPACT, 2016, In: Journal of Epidemiology and Community Health. 70, p. 17-24 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol
Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops
Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges
Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review
Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation
Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals
Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities
EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers providing support to a person dying in the home setting: a narrative literature review
Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design
Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study
Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States
Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis
ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluation of an advance care planning education programme for nursing homes: a longitudinal study
Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress
Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia
Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Place and wellbeing: shedding light on activity interventions for older men
Milligan, C., Payne, S., Bingley, A. & Cockshott, Z., 01/2015, In: Ageing and Society. 35, 1, p. 124-149 26 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2
Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes
Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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