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International Observatory on End of Life Care

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  1. 2018
  2. Published

    Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Clear, simple, precise, meaningful: A quick guide to writing for publication

    Walshe, C. E., 15/10/2018, In: Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  4. Published

    Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom

    Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  5. Published

    Volunteering and end-of-life care: An evidence based toolkit

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.

    Research output: Book/Report/Proceedings › Other report

  6. Published

    Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

    Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

    Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

    Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Mixed Method Research in Palliative Care

    Walshe, C. E., 6/06/2018, Textbook of Palliative Care. MacLeod, R. D. & van den Block, L. (eds.). Cham: Springer, 19 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Entry for encyclopedia/dictionary

  11. Published

    Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

    den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature

    Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Wearable smartwatch technology to monitor symptoms in advanced illness

    Nwosu, A., Quinn, C., Samuels, J., Mason, S. & Payne, T. R., 1/06/2018, In: BMJ Supportive and Palliative Care. 2018, 8, 1 p., 237.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study

    Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Palliative Care Nursing: Principles and Evidence for Practice

    Walshe, C. E., Preston, N. J. & Johnston, B., 31/05/2018, 3rd ed. McGraw-Hill / Open University Press. 544 p.

    Research output: Book/Report/Proceedings › Book

  16. Published

    Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review

    Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  17. Published

    Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study

    Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  18. Published

    Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

    Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review

    Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Advanced heart failure: setting the research agenda

    Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, F., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

    Research output: Contribution to Journal/Magazine › Journal article

  21. Published

    The modern context of palliative care

    Payne, S. A. & Morris, S. M., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective. Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 15-27 13 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  22. Published

    Volunteering and community

    Sallnow, L. & Richardson, H., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective . Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 185-196 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  23. Published

    The views of adults with Huntington’s disease on assisted dying: a qualitative exploration

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

    Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S. & Baranska, I. & 5 others, Gambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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